Hi, I would like some nice positive stories please (if possible, but if there’s only negative I kind of what to be warned too).
I have recently developed ONJ. Been on Denosumab from 2017 to 2025, stopped when tooth problems started. Had tooth removed by MaxFac dept at hospital. Now a second area of bone has appeared so looks like it’s worsening rather than improving. How long have people coped with this?
Hi @dragoncarine,
I’m so sorry you’re going through this.
There might be some comments here that you find helpful Tooth extraction after Zometa infusions - Life after a breast cancer diagnosis / Coping with fear and anxiety - Breast Cancer Now forum and here Tooth extraction after Zometa infusions - Life after a breast cancer diagnosis / Coping with fear and anxiety - Breast Cancer Now forum
You might also find it helpful to phone our nurses on our free helpline 0808 800 6000 as they will be able to give more tailored advice.
Sending all our best,
Alice 