I hope some of you ladies are able to help me.
I have noticed in my pathology report that I had in situ and infiltrating lobular breast cancer. I would be interested to know if anyone can tell me if it is normal to have both at the same time or is it more likely I had in situ first which went on to be invasive at a later date. It may be that I will need to ask my surgeon about this but thought I would ask you ladies in the meantime.
Regards.
Jeannie
i can’t give you any advice as i had invasive ductal carcinoma, it might be a good idea to get your bcn to tell you more about it in detail or ring the helpline here, i’ll be thinking about you
lots of love
Alisonxxx
Hi Jeannie,
I had/have LCIS in both breasts and invasive lobular cancer. I had the breast with the tumours in removed last March. My right breast is full of LCIS so I could either have regular mammograms twice a yearto montitor it or another mastectomy because I am at high risk for developing cancer in the remaining breast. I am having the remaining breast removed in April.
As to your question – not sure which came first!
Best of luck to you,
Jacki x
Hi Jeannie
I had DCIS diagnosed in 2003 and then in May 2007 had a grade 1 invasive Ductual and also a grade 2 invasive lobular both in the same breast, as i had been having private yearly mammograms the ductal must have gone from a 0 to 1 in the year but as for the lobular where that came from i have no idea unless as my breast nurse says it is very difficult to pick up on a mammogram. It was only found when the biopsey was done.
Speak to your team about this but i guess the insitu must have come first.
Best of luck
Suzzanne
Hi Jeannie,
I too had an invasive lobular cancer tumour and the lab report after mastectomy reported LCIS as well. The LCIS comes first and is a precancerous condition and may not become cancer, but both are difficult to diagnose. Hope this helps and all is well with you.
I can’t understand why they would leave a LCIS or do some not progress and does it mean if you have LCIS there will be no spread?
Bunny did they find your LCIS just on a mammogram because i thought Lobular was hard enough to find even when it is invasive on mammograms.
My mammogram in oct was clear but I never feel confident as my left breast for a long time was not normal but the GP’s fobbed me off.
I had 4 mammograms at DX and even then was inconclusive until scan and needle biopsy.
Sometimes i think they should just take off the affected breast as so many ladies who opt for mastectomies find that they are dealing with a far more widespread cancer than originally thought.
3 of the 6 of us on the ward i was n found this quite depressing and worrying.
Its one thing to keep a breast for a women for cosmetic purposes but quite another to prolong life.
Rx
They found both the LCIS and the invasive lobular cancer (two small tumours) on my first mammogram. As far as my remaining breast goes, they compared my original mammogram with the one I had a couple of months ago and there was no change. I find mammograms just agony and I hate wearing my prosthesis cos my scar is still very tender almost a year on, so I have opted to have another mastectomy.
I could have opted for continual checks, but was concerned that everything would be fine until I got much older (I’m 46) and then I wouldn’t be as healthy as I am now to have major surgery to remove the breast.
It’s a very personal decision. I’m just fine with mine!
–Jacki x
Hi girls,
I had invasive lobular cancer which did not show up on the mammogram - I was found to also have LCIS in the same breast from the histology from the WLE. Subsequently I had a mastectomy as my consultant said though the LCIS may not develop into more invasive cancer, it would be mad to leave it.
My worry is that the LCIS didn’t show up on the mammogram or the MRI (til they looked reeeaally closely at it) - lobular is more likely to appear in the other breast and is much more difficult to find. So I don’t know if there’s LCIS in the ok boob and if there is, do I have to wait for it to become invasive and therefore risk spread to the lymph nodes (it didn’t last time) before I can have a mastectomy?
I’m seriously thinking about asking for another mastectomy to reduce the risk of it coming back - my fiance’s first wife died from secondary cancer and I don’t want to put him or his children through it again - or my kids - or me!
That was a bit long - sorry - has anyone else had a preventative mastectomy done without knowing if they have LCIS in their remaining breast?
Thanks,
Sally xx
I asked why they didn’t just remove the other breast too - I had lobular invasive and mastectomy - and was told by my BC nurse you could still get cancer there even if it was removed. This sounds very pessimistic considering some ladies choose early on to have double mastectomies to avoid developing cancer.
Sarcath
I didn’t have both breasts removed at the same time (although it was discussed) even though both had LCIS because my Consultant was more concerned with the one that had tumours and he felt that if I needed chemo afterwards, I would take longer to heal, therefore having to wait for my chemo. It turned out that I did not need chemo.
It is possible to get cancer even if you have both breasts removed cos they can’t remove all the tissue, but it will at least reduce the risk.
Jacki x