Morning Deb, It is a scary time, boobs are sensitive, but I have to say that the surgery on my boob was not too bad in that department, I was more uncomfortable with the surgery for the lymph nodes under the arm. My friends who have been through this have said surgery is the easy part. I do have blue dye near my nipple, which will fade in time, I just tell my husband, he has his own little blue tit, you have to laugh at some of this 
When I go on Friday, they will tell me if I have clear margins round the cancer and if any lymph nodes are involved, if I am clear, its radiation for me, if not, I am still on this roller coaster.
Dear Deb, What is your story? X
Hello Ladies,
I was diagnosed with ILC in November 2012 and underwent mastectomy and axillary node clearance - 23 of the 24 nodes were positive. I had quite a problem with a seroma that needed regular draining but that is now much better but still causing a bit of a problem. I am receiving FEC-Taxotere chemo and had my second dose on Tuesday. So far it is going very well and side efffects are minimal. I have a PICC line in my arm, so no more needles! It was quite a problem to have the line inserted (it took four attempts) but despite the soreness and bruising that took almost three weeks to clear, I am really pleased that I have it. Chemo will be followed by radiotherapy to the chest wall and gland drainage areas because my cancer is high risk because of the extent of the lymph node involvement.
Like everyone else I have experienced all the awful emotions that this can chuck at us. At 63, it was not the loss of my breast, but just the fact that I had cancer, and because it was lobular, harder to detect so my tumor was 46mm. I kept telling people that I was going to be really positive, but inwardly didnāt really feel it - now I do. I am pleased that there is now an ILC thread, and going forward can share in similar, if not the same, issues. I would also be happy to answer any questions if I can help.
Kind regards, Christine
My story isā¦went to the docs re a change in my nipple. I was told I would need to go for a mammogram which I did on the 24 jan 2013 and whilst I was there I also had an ultrasound and a biopsy. A Week later went for my results on the 31st jan 2013 I was told I had invasive lobular breast cancer. I was told i had a lump behind my nipple approx 17mm in size, that I would need a WLE but because of where the lump was this would mean I would lose my nipple and areola as well as a chunk of my boob. Before surgery I would need an MRI (this coming Monday) then a meeting with consultant to discuss MRI results etc (next Thursday). After surgery poss chemo 3 weeks of rads and 5 years of tablets.
Think am still in shock a bit but me being me started reading up about it etc and am still finding it frustrating that I canāt find any photos of what I may look like. As I said earlier the photos seem to be of a MX or a boob which has had a lumpectomy but no removal of the nipple.
i asked my breast nurse if she could show me any piccys on my next visit and even she hasnāt got any. Surely to god I am not the only person to have this type of WLE.
deb 
Hope everything goes well for you tomorrow janemod. My fingers will be well and truly crossed that its all out and you donāt need chemo 
let me know how you get on wont you x
Hi Deb, just read your post, it sounds a little bit like mine, apart from the size and where it is located. The MRI results will help to see if its the only cancer you have, then it will be clearer for the next course of treatment. I know several friends that have had breast cancer, but not in the way you have it, so photoās might be scarce. I know the team that will be looking after you will give you the best treatment needed, we are all different. I took Olly Murs new CD with me, when I had my MRI scan, but couldnāt hear a word, but the nurses enjoyed him. Sorry you are going through this, I hope you have family and friends that will support you. from a very scared one to another.
Hi Deb, OMG, I have just come back from the hospital and had the best news I could ever have now, all the cancer is clear in my breast and no lymph nodes involved. They took 16mm of cancer and tissue out in the end, and moved some tissue around to fill in the space, but I rather they did that, then second lumpectomy We are over the moon, I am still so sore, my arm pit is on fire, but my doctor said, early days, every thing is to be expected, rub E45 into the wound when it is not so sore, and resume to normal life when I feel up to it. Just waiting now for the hospital to contact me about the radiotherapy. My family are crying with the good news, for me I am going to bed, because I didnāt get much sleep last night. Please let me know how you get on with your results and wishing you all the best too. Take care Deb, speak soon ZZZZZZZZZZZ
Hey thatās brill Iād pmād you before I saw this sorry. Bet your glad all that part of it is over and you donāt need chemo sure you will sleep better tonight. Am really pleased for you. Take care and keep in touch x
Morning Deb, You were right, I have had the best night sleep in ages. I also feel so much better, now the main worry has gone. I know you will feel the same once you get through this process of treatment. Stay strong, because it is a wonderful feeling when you get out the other end. I know it will always be in the back of my mind, but its not as bad as the last 2 months of been. Let me know how you get on in the week, speak soon, take care. jane XX
Just popped in from Feb valentines.
Am waiting for chemo but I have to say to Deb I have the same feeling regarding photoās. WHAT am I going to look like? was the first question I asked. Neither the BC nurse nor the consultant had any pics. I too lost nipple and areola. Now that Iāve had time to consider, discuss and take it all in, it seems that ladies in our situation donāt get asked if theyād be willing to have pics taken. I agree it is a sensitive issue and many would say get lost BUTā¦ I would have said yes, to help those who come after me.
To this end my lovely OH agreed to take pictures of my boob before and after WLE (and the stages of blue following SNB) Like you I had nipple and areola removal and was terrified. My surgeron did a fab job and all is well now. I could have nipple tatoo to complete if I wanted but dont think Iāll bother.
Do you think itād be worth starting a thread about photo willingness to help national BC nurses or is it too sensitive?
Any Ideas from mods would be of help tooā¦
Mandy
Afternoon Deb
I was diagnosed with invasive lobular grade 1 cancer on 30 October 2012 . My cancer was 9 mm. I had a MRI scan before I had my operation to see if it had spread but folrtunately it hadnt. I had WLE (lumpectomy and SNB) in November. My Surgeon did a great job the scar is not noticeable around my nipple. I went back to see my Consultant after Christmas and was told that they had got everything out and it had not spread to my lymph nodes . I have to take Anastrozole and Calcichew tablets for the next 5 years. My Consultant sent me for a bone scan as one of the side effects of Anastrozole is that it can thin your bones. My bones are normal and I started my radiotherapy last Wednesday. So only another 12 to go.
I have also used E45 together with E45 shower cream since I my wound healed.
Good luck with your treatment.
Margaret
Janemod thought you would sleep better and it must be a huge relief even tho ur not at the end of ur treatment yet x
Millymolly ive not had it done yet but that is what has been spoken about to date. It does depend on the MRI scan results tho. And I will be saying yes to photos definitely as long as they donāt get my face in. So what was ur boob like? You said ur surgeon did a good job. Was it better than you expected. And how much about did they take off? do u need ur other boob seeing to to make it similar size for instance as that is what they have said to me but not for 12 months or so x
Blast - pics have not come out please see PM for more details.
M
Hi Deb,
Have been desparately trying to send you a PM with pics but canāt. Think mods might remove this but will try all the same.
First pic is before I had any surgery. Second is after WLE removing nipple and 2nd op for Left tubular and SNB (hence blue). Sorry 2 pics not at same distance some stress involved in getting them done but best I can do. x
Deb, have sent you an email.
M
I am posting this on behalf of new user Si
Hi Deb, yr story is mirroring mine i go for MRI scan Tuesday very scary time good look for Monday hate having to wait just want it out of me and feel numb hope all goes well for u. x
Hi Si
whatās happening with you? How big is your lump, where is it etc?
deb
Hi Deb, How are you feeling. Hope the MRI went well on Monday, and you get some positive results on Thursday. Also I hope you have had some answers to the questions you have been asking for, difficult time. Three weeks ago I became a grandmother again, this time to a beautiful little girl called Matilda, I already have a grandson called Noah who is a absolutely gorgeous, even though I say it myself. My daughter-in-law brought them over today, I spent the afternoon cooking with Noah and cuddling little one. Such perfect moments. Take care Deb let me know how you are getting on. Jane XX
Hi Deb, Just wanted you to know that I am thinking of you, is it tomorrow you get your MRI results? hope they will be good ones. I did get lot of comfort from mine, have you been given the details of your next part of treatment yet? Thinking of you, JaneXX