Hi
When I was told that my BC was most likely lobular, the consultant said that this is ‘slightly in my favour’. Can anybody tell me why this is so?
I know I should have asked at the time but my head was a whirl!
I’m still waiting for the full results.
Thanks
Freddie xxxxxxxxxxxx
Hi
I do not know what the advantages are really. I was dx with lobular and the treatments are the same. In fact I have had to have everything and am still getting it in the case of Herceptin and Arimidex. In fact I have read that lobular is often picked up later and then more likely to have spread to lymph nodes hence more intensive treatment. Certainly in my case.
I did read one article in the Mail! how true I do not know that lobular is more easily treatable.
I too would be interested to hear others comments.
Hi Starfish
I was diagnosed with lobular Cancer in May 2007 also lower grade ductal, had mastectomy followed by Arimidex the difference really is that Lobular is not always so easily seen on Mammo, saying that mine was thank God and most are! Only about 10 to 15% of cancers are lobular, the treatment and outcome is no differenct between the two cancers. Some hospitals offer breast MRI for lobualar patients as well as mammogram and ultrasound but this is still very new and only offered in a few hospitals. I went private for one just over a week ago and have been called back for ultrasound so i am hoping to God there is nothing that has shown up that should not be there!!
Hope this helps
Suzy
Hi
My appointment is finally tomrrow so I’m going to make sure that I ask him why he said it. Hopefully it will shed some light on the matter.
Love
Freddie xx
let me know!, mine is lobular too! Good luck for today Debs xxx
Suzy
I hope they do not find anything. It may be of some assurance that I have heard that they take no chances once you have had bc and if they see anything they think might be suspicious they double check it to be on the safe side. Certainly this was the case with a friend of mine.
Interesting you had an MRI. I am also thinking of having this rather than a mammogram. Mammograms and I was told this by my onc cannot see lobular very well. Also should I get secondaries I feel MRI will pick this up much earlier. I do wonder how long my lobular had been there bearing in mind I had a mammogram only 15 months before and nothing was found and then I find it and by then its in six lymph nodes. Needless to say as you can probably tell I do not have much faith in the screening. They keep saying it saves 1400 lives but 12,000 die of bc and most of the people I have met found a lump themselves.
Hi Starfish
I can imagine your concern, when they told me that i was lobular after a ‘clear’ mammogram 12 months earlier i was also amazed, i really thought things could not develop so quickly in a year and when i went for the ultrasound biopsy route i was convinced it was just calcification that had been spotted 4 years earlier and was completely benign. I also did not have a lump so was totally feeling a fraud for worrying my children and hubby for nothing as i thought! Saying that the mammo did pick it up so i would still urge you to go for your mammo, go for everything that is offered, just in case!
When i went for my mammo a year ago the radiologist said that as i was lobular it might be an idea if i could afford it to go for the new breast MRI, this only does the breast area it is not like the big MRI where they do the whole body. Your remaining brast is fitted into a cup with a coil in it, you lie face down, very uncomfortable if you have a big tummy like me, and have to stay still for about 15min then they run a dye through you and you wait for another 10 mins perfectly still. It did cost £550 which is a hell of a lot of money but worth it for reassurance. Just hope i am reassured! I would love to see this offered on the NHS for all lobular ladies, if i had lived 35 miles down the road i would have had one for free!
Take care i will keep you posted on how everything goes, the waiting is the worse.
Love
Suzy
im a fello lobular diognosed in 2006 have gone down the route aof most cancer patients with mastectomy lymph removal(12 of the 16 taken were infected ) have secs in my liver from the original lobular so think it wouldnt have mattered really as the liver was affected at the same time as they found the lobular ,it is harder to find mine didnt show on mammo i had mri and ultrasound prior to my op .with the chemo im ok at the moment no further spread ,but saying that im to see the consultant tommorow re my right side which is causing me bother ,thank god for the nhs! lynn x
Hi Everyone,
Well i wnt for the ultrasound on Friday morning, he concentrated on one place on my remaining bood very near the armpit, then he scanned my armpit too! Hubby by this time was getting concerned, then they said they would do an FNA, hubby told them that calcification had shown up on my last mammo and the doctor got quite shirty with him, told him this was definately not calcification and was ‘something’ between 2 small cysts!! That bloody ‘something’ again! Anyway they decided to do a core biopsey there and then and told me it would cost another £450! Hubby siad he would stay with me which was reassuring while they did the procedure but when the doctor came in with a big long needle and a long tube he ran for the hills!! Typical!
Now of course is the wait for results, I honestly have not felt anything but then did not have a lump last time. I was checked over in October by the breast nurse who said there was nothing! the doctor kept asking when my last mammo was and i told him last May, when they keep asking questions and also when my surgery was it does get you a bit worried, ok terrified! Just waiating and hoping it is totally nothing as i have so much planned for this year and my daughter is giving me my first grandchild in September, albeit in Canada!!!
Love to everyone
Suzy
Hi everyone doctor phoned with results and thank god it is a papilloma of some kind, it has to come out but it is not cancer, god how lucky am i, what a relief.
Love to everyone
Suzy
I DONT SEE A ADVANTAGE LOL NOT IF ITS HARD TO PICK UP BY MAMOGRAMME IVE HAD SCANS ON BONES AND INTERNAL ORGANS ALSO HAVE TO HAVE CT SCAN ALOT OF HEADACHES IN 3WEEK AFTER CHEMO BUT ITS JUST CHEMO NOT ANYTHING TO WORRY ABOUT WELL THATS HOW I FEEL BUT LOVE YO NOW IF I HAVE A BRAIN BUT NOT OFFERED A MRI LIKE ALOT OF OTHER PATIENTS IVE DONE MY FIRST 4 CYCLES OF CHEMO START ANOTHER FOR IN TWO WEEKS TIME THEN MYSTECTOMY THEN RADIATION TEMOXIFEN LALALALAL SO ON AND SO ON MY LIBC ALSO UNDER MY ARM PITS NOT SURE HOW MUCH IS EFFECTED AND HER2 NEG HORMONE POS I THINK TO ME MINES IS SLOW GROWNING FOR NOW WELL THATS WHAT THEY SAID GRADE 1 BUT WILL NOW MORE WHEN I HAVE OP
FEEL TIRED AND FED UP BUT THATS JUST ME HAVING A LOW DAY WHICH WE ARE ALL ENTITLED TO THE ONLY TROUBLE IS NO ONE LIKES US TO BE ANYTHING BUT POSITIVE I AM VERY POSITIVE PERSON BUT ONLY HUMANE
HOPE YOU ARE ALL ENJOYING THE WEATHER IM MAKING MOST OF IT GOT HUBBY OUT ME HAIR GOT HIM DECORATING LOL XX