Hi,
This is my first time posting, I have recently been diagnosed with lobular cancer and positive with E&P, negative for Her2. I am grade 2, but cancer has spread to lymph nodes and bones. I have been told that I cant have surgery as it has spread, has anyone else been told this? I am waiting to have my appointment to discuss treatment, but the doctor who gave me my diagnosis told me it would be hormonal only.
I am in a state not knowing what next steps are. Although this is stage 4, am I kidding myself that I can get a lot of decent years ahead of me with just hormonal? I have no symptoms, and although a 7cm lump, nothing has been picked up on 3 mammograms or ultrasound. I don’t really know what my question is, just wanted to know if anyone else has had similar x
Hi @elsie5 I wanted to welcome you to the forum and say I’m so sorry to hear of your situation. I am not Stage 4 myself but wanted to suggest that you post in the specific stream for those that do. You can find it here Living with secondary breast cancer - Breast Cancer Now forum and the first subcategory is called Treatments and Medical issues which might be seen by more of those who can answer your question and support you. I also suggest that you call our nurses on 0808 800 6000 from 9am tomorrow (the helpline closed at 4pm) to talk over these points to get some clearer understanding. They are lovely and very experienced and knowledgeable ladies who won’t rush you - I think it will help you particularly at this stage when you have questions but no immediate recourse to answers. I wish you all the very best in the future.
i have a prayer group friend who had said she had but turned out it was benign then recently she got it and refused tx.
The most interesting thing is her daughter was stage 4 but somehow with treatment she said she is in remission with no sign of cancer. i don’t know how or what.