Is there anyone who has been diagnosed with locally advanced breast cancer.Im struggling with a lack of a solid treatment plan atm.Also this is causing me e treme extreme anxiety due to all the uncertainty.
Yes, my tumour was in the breast, skin, chestwall and lymph node (inflammatory MpTNBC). I didnt research anything (looked up the word metaplastic which scared the life out of me) and just followed the treatment plan offered - 6 months of chemo, mastectomy and lymph node removal, radiotherapy and immunotherapy.
Your treatment will be determined by your type of BC. My breast care nurse nurse has been amazing and reassuring - my locally advanced cancer was being treated to cure ( I kind of got a bit muddled up as the term advanced is used for stage 4).
I am still undergoing treatment but received a complete pathological response.
The waiting for treatment really is the worst and I am an anxious person and have been very needy, but I have been treated fantastically by everyone in the NHS
Sending my very best wishes to you
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Thank you for replying.I saw the word metastatic too and had a complete meltdown over it .
My lump is above the breast which I can see .Started targeted therapy in January in the hope it will shrink as it’s too near nerves atm .I am a complete emotional wreck but so glad to hear you got through your treatment successfully x
Hello, sorry you are going through this. In 2022 I found a lump above my collar bone which was a recurrence of bc. I think they called that locally advanced, but I try not to get too hung up on all the terminology. I was referred to the Head & Neck surgeons and they got it all out. I had chemo and rads, aimed at a cure, 3 years on I’m still “no evidence of disease“ and hoping to stay that way. It is all so scary for you now, but hang on to the positives and i hope you’ll be the same. XX
Thank you .I’m glad you’re well .
Hi @clarabell I’m sorry you’re dealing with a breast cancer diagnosis, the early days is the hardest part but it does get easier, so feel all the feels because soon you’ll be on treatment mode and this will feel like a distant memory at least that’s what it was for me. I’ve been on the forums since summer 2024 but I’ve never shared because I had a complicated journey. I was misdiagnosed for two years and then I got a divided diagnosis, after a pet scan my surgeon told me I didn’t have distant spread and then the week after I met with my oncologist and she told me that I did infact have MBC. So that was a shock, so many emotional ups and downs. I started treatment and then 6 months later I was restaged back to locally advanced and 7 months later NED. I have had a right sided mastectomy axillary clearance and recently finished radiation. So it’s been a ride! I used a TCM doctor and acupuncture alongside my conventional care, gave up alcohol, cleaned up my diet a bit, got a therapist, exercised regularly, I lived my life as fully as I could and I went to church where I found peace of mind in my faith. you’ll get through this! Lots of love 
Hi Thank you for sharing your story and I’m so glad you’re well now.
I am having a CT scan next week so hopefully I may at least have more of an idea where I’m headed. Just praying that the cancer can be removed surgically and therefore potentially curable.
It’s such a wicked disease and I have been an emotional wreck the last 3 months so just praying for some good news .