Locally advanced primary breast cancer

Hi,

Im new to this forum and feeling devastated by my recent diagnosis. I’m hoping to connect with someone who may have had a similar experience.

I was diagnosed with primary breast cancer in June, had surgery in July and was due to start radiotherapy in September. My oncotype result suggested not to have chemotherapy. The day before radiotherapy started I was contacted by the oncologist secretary and had an urgent appointment the following day. The radiotherapy planning scan showed another tumour in the internal mammary node which is not operable. This had been present on the initial MRI scan but missed by the radiologist! I have therefore been on the wrong treatment plan. I am now having drug treatment rather than chemotherapy initially then radiotherapy at some stage. 

I feel that I don’t fit with either primary or secondary breast cancer groups at all and the rollercoaster of my diagnosis has been really traumatic. Having initially been given an optimistic prognosis I’m now feeling really overwhelmed.

Would appreciate hearing from anyone who has had a similar experience.

Hi @Marie9  

Thank you for sharing your experience. It sounds like you have had a difficult time and it’s natural to be feeling how you are. We would just like to say that we are here for you. If you would like to chat about any concerns or questions about what you are going through, our nurses are just at the end of our free Helpline 0808 800 6000. It’s open 9am-4pm weekdays and 9am-1pm Saturdays.

Hopefully someone will be along soon to share their experience with you too.

Take care,
Laura at Breast Cancer Now