Hey guys, I wonder if someone can help or provide some support.
I was diagnosed with grade 3 dcis of right breast.
I had a lumpectomy and level 2 lymph node clearance, followed by another surgery 3 weeks later as they did not get clear margins.
I then had 6 rounds of FECT , but was unable to do radiotherapy that was planned due to COVID.
3 months later my collar bone had s golf ball size swelling so I contacted my oncologist who referred me for a scan.
The scan showed that the cancer had spread to my lymph nodes in my collar bone, behind my breast bone , the base of my neck and the rest of my armpit that wasnt cleared.
I have now got to do 6 to 8 rounds of capecitabine , followed by radiotherapy.
In the meantime I have excruciating pain starting from behind my shoulder blade, radiating into my elbow, wrist and down my arm.
I have been prescribed oramorph, gabapentin and paracetamol but it all wears off very quickly.
They have put ne under the palliative care team for pain and they hope to start me on chemo in 2 weeks if my enzyme test comes back negative.
I am so very scared, tired from the pain and feel very alone.
Is there someone out there who has been through the same and can offer me some hope?.
Sorry to ramble on, I just feel at present that I will not be able to fight this next battle xx