Lost, who am I now

Hello, Had TNBC I was diagnosed seven months ago. I really don’t know where to start. I just finished my last chemo treatment March 11, 2025. I had two bad reaction. The first one was bad. The second one was mild. march 31 I will see my doctor, I’m not sure what he’s going to say what I need to do after this . I lost all my hair pretty much everywhere. I have a little bit of eyebrows left and little eyelashes. I’m supposed to start back working May 1, 2025. I started walking two days ago. I was so out of breath and my legs hurt. It was hard but it’s getting better. My worry is the reoccurrence that might come back because I am triple negative I lost both my breast. They caught my cancer at the first stage wasn’t too big. They said I didn’t spread they removed five lymph nodes under my left side which I still have a knot. I did not have cancer in my right breast but I chose to have it removed anyway to avoid further complications. I have prosthetic breast now while waiting on reconstruction surgery in June. My fre flap surgery failed in November, so I woke up with no breast. But I woke up after a 13 hour procedure. Four months later I just finished my chemo. I’m still not sure what to expect. I have nightmares not as much as before I do feel better, yet I feel different, I just don’t know what it is, I feel lost it’s been 7 months since I’ve worked. I have to stay strong for my adult children and grandchildren, and my Mom. This is my first time speaking out, like I said I feel lost. Even though I’m in the same place. I don’t like crying because I’m supposed to be the strong one. By the way I only had to do 4 sessions of chemo and no radiation just in case anyone was wondering. Lost and lost without words. So they said I made it through

9 Likes

Hi, welcome to the forum. I am so sorry for all that you are going through, it sounds incredibly tough.

You talk about staying strong, but I think you need to make sure others are stepping up to care for you. Do you have access to any support services? After my diagnosis I spent all my energy in being totally positive and upbeat for my friends and family and when I went in to my local Maggies Centre just to see what it was all about I cried for the first time because I felt I could.

I can’t offer much other advice but just wanted to send you a virtual hug x

2 Likes

Hello, I do have access to support services but I haven’t tried to contact them yet. I will soon I’m sure. My family is here for me physically but mentally I keep everything bottled up, I’m not ready to let them know how I feel because I’m not sure myself. I’m in a relationship he was there for every appointment I had. Even with my bald head and no breast he still insists on being in my life and giving me support. I just feel like I’m missing something my Mom hasn’t been very nice to him and he is very kind to me. She feels like I don’t need him and that she can be there for me like he is. He just handles stress a lot better than she does. It’s just to much going on I probably will reach out to a support group real soon, thank you for the advice.

1 Like

Hi @kat2koo,

Wow, it sounds like you have been through a lot in such a short space of time. I’m sure it has felt like you’ve been caught up in a whirlwind. I’m so sorry to hear what you’re going through.

Firstly, you’ve done a really brave thing in speaking out. And you’ve come to the right place - the forum is an extremely supportive and friendly place. There are so many posts that you can even use the search function to find people who have gone through similar experiences. One of our threads is solely dedicated to those with a triple negative diagnosis so you might find it useful to read through the posts there Latest Diagnosed with breast cancer/Triple negative and inflammatory breast cancer topics - Breast Cancer Now forum

Fear of recurrence is a totally normal and natural response to what you’ve been through. You can read some info on our website here about life after treatment Life after treatment | Breast Cancer Now

I would also really strongly recommend checking out our Moving Forward courses. They happen online and in person, and they are designed exactly for people in your position, who have finished active treatment and are unsure where to go from here Moving Forward | Breast Cancer Now

Please know that our nurses are always on hand to answer any questions you have, or just to help you talk things through if you’re having a bad day. You can reach them on our free helpline 0808 800 6000 Mon - Friday 9 - 4 and Sat 9 - 1.

You can also ask them any questions you have over on the Ask our Nurses section of the forum.

Sending all the love, I really do hope you find the forum and these resources helpful.

Alice :heart:

1 Like

Hi @kat2koo :slight_smile:
I’m so sorry to hear everything you’ve been through, treatment plans are so different for all of us but we all get it!

I was diagnosed with TNBC in July 2023. I’ll be honest, I’m still recovering. I expected to recover quickly and be back to “normal”, but I’m starting to learn that this will take time and maybe we should be easier on ourselves :heartpulse: Please tell your team if you are still struggling, and please reach out to your GP too.

If you would like to speak to someone, I used the Someone Like Me service through Breast Cancer Now and it really helped speaking to someone who was a few years past their diagnosis for that reassurance.

I know it’s easier said than done, but take it easy, we’ve all got you :sparkling_heart:

3 Likes

@kat2koo
Hi, I’m 2 years post treatment now and although my family n friends were very supportive, it feels amazing to speak to women who’ve been through it. Please make sure u get in contact with a support group-I’m sure it will help u a lot. It just feels better to pour your heart out to strangers rather than people who know u well. I attended my local “Moving Forward” course and have made 4 lovely new friends. We chat openly about our experiences and it helps a lot.
Take care xxx

2 Likes

Thank you, I really appreciate it. I’m looking forward to it. Congratulations I’m glad you’re doing well.

1 Like

dear kat2koo ! hello ! i just did read your note and i feel like i always feel, when i read through all this notes from incredible woman on here… moved, angry and so helples, as there is so little, if not nothing someone can do to help, or at least to make it a little bit better for everyone on here. i myself have no cancer but im on here, to support my 28 year old daughter, who only got over a week ago diagnosed with grade 3 breast cancer- many resultst still pending. but i also use this forum to stay sane and reach out to other people on here.
so i dare would respond to anything cancer related, but i reach out to you because it upset me to read, that you feel you cant cry, because you feel that you have to be the strong one, to hold it all together… even if i DO understand where you are coming from, i also find it sad, that you feel like that. first of all you have all the right to brake down and cry… YOU are the one, who is going through this… YOUR mind must be all over the place with fear, worry, emotions, medicat terms left right and centre, medical info, treatment aso… the list is endless… you are dealing with so, so much ! personally im a HUGE believer in crying , as i believe it can be very cleansing, freeing and so very important ! you should not feel guilty to do so… you should be able to do this, without worrying, if this is the right thing to do… it hopefully will help YOU, to clear your head a little, may even to gather strength a little, to face all what is still ahead of you ! i dont know, where you do live, if you are near to nature, a wood, countryside or the sea… but i find all these places wonderful soothing places, to sit, stoll or walk, and to cry… may even scream all- EVERYTHING what is hold back inside you… let it out… because kept inside you it will eat you more and more up, make you unwell… please dont do that to yourself !! you have ALL THE RIGHT to make your emotions heared - in what form it may be…
how incredible brave of you, to reach out to all this wonderful ladies on here ! everyone on here is so supportive, so full of care for each other, so open and honest… it is an incredible and so important place … and im sure, these ladies will help and support you in all those ways they can !
i hope you will be able to set your emotions free… let them run wild… let yourself and your needs be… and find a healing , soothing and being able to cry !
i wish you well, never give up the fight and hope… stay strong…
T

Thank you very much . Everything you said was wonderful and it means a lot to me. I will let it all out. I’m close to the beach, I’m going to take some time away from everybody and deal with how I really feel, and move on. I will do my best and since I open up in this group I do feel much better. Thank you. You are a great woman being there for your daughter and others. I wish you all the best thanks for reaching out to me.

2 Likes