FEC no. 3 on Tuesday and and so dont want to do it… it is beginning to drown me with thinking of nothing else…
I have Grade 3 triple negative BC,…(still cant say the word)
Can anyone tell me if the Mirena coil can cause BC?
Can anyone tell me if the side effects get worse for the chemo… Week 3 used to be my good week but now im falling asleep…and grouchy?
Is there anyone who has had therapy over this? if so does it help. Not sure I am coming to terms with it
thank you for listening to me
Hello Van, sorry to hear you are not feeling very good. I guess you are just coming up to halfway with the chemo so that is a very big milestone. That is one of the ways I coped with mine (6x FEC). I finished chemo August 09. I cant help with info about the mirena coil but I am sure someone will come along with some info shortly. I found the side effects increased when my blood count dropped so do what you can with diet to keep that up - if it drops too low it can delay them giving you the chemo - it never happened to me but I was terrified it would do which would have knocked me off my path of ticking off each one and staying focused! I also know of other ladies who have had therapy and or anti depressants to help them so dont suffer in silence. All I can say is just bide your time, you will get there and life does get back to some sense of normal. Lots of love to you, Debbie x
Dear Van,
I am sure you will soon get a lot of replies from other forum members, but please remember you can also call our Helpline to talk things over with one of our trained staff. The number is 0808 800 6000. They are open from 9.00am- 5.00pm on weekdays and 9.00- 2.00 on Saturdays.
Very best wishes
Janet
BCC Facilitator
Hi Van, I was dx Feb 2009 with grade 2 triple negative. Had 4 ec, 4tax, then mx, then rads. Have had some therapy, some chats with counsellors, but the best is the hyponotherapy I’m having at the moment. There were times for me when I could think of nothing else but the bc, you can get through it. The chemo is tough, but its the best the medics have to treat the bc. Please do keep in touch with people on this site, I found it so helpful and met some wonderful people along the way. It is a journey, but there is light at the end.
Lots of love and hugs
Clare X
Sorry don’t know about the coil, never had one, perhaps others have had.
Thanks for your comments…
Im just having a down day as its near Tuesday and its making me tearful just thinking about it…
I still think I havent come to terms with it… scared of what it may do… scared of everything…
but thank you anyway… ill ask about mirena coil on Tuesday
Hi Van
Sorry youre feeling mixed up with all thats going on with your treatment plan. Ive used this site loads and I know there will be others along who will be able to help more than me.
I can only say I have still got the mirena coil in and saw some posts on here a while ago about it.
I checked with my GP who said it played no part in my BC. THe hormone in it is tiny aparently. But you may be able to do a search in this forum and see other veiwpoints/comments.
Hope you get peace of mind soon and continue with your treatment without more anxiety.
Best wishes
Cathie
Hi Van,
Sorry to hear that you are feeling quite wobbly with the chemo at the moment. I think it is quiet common to feel like that half way through, I know I did. I found chemo to have a build up of tiredness and fatigue, I was pretty tired by the last one. Best thing is to listen to your body and get as much rest as possible if you’re tired. You will get there, I’m a year on from starting chemo and I’m much better now…There is no doubting that this can be a long haul, but it is doable…coming on here really helps on the difficult days…we are all here to listen.
Regarding the coil. There have been lots of discussions on here as to whether the mirena causes breast cancer. I know that it has been mentioned on the leaflet. Being triple negative, your cancer isn’t triggered by hormones so I don’t think having a coil in would cause it…The coil has progesterone in it…I am positive for progesterone and my surgeon and Onc made me have it removed immediately.
Wishing you all the best for Tuesday, hope it goes smoothly for you.
Fiona xxx
Hi Van
Sorry you don’t feel so good it’s all ups & downs isn’t it ? For me, I remember not knowing whether to feel Oh good, halfway, or Oh God, ONLY halfway. So after this one you’ll be past halfway, atleast I hope so, I had 6 altogether so maybe I’m assuming too much.
Anyway just to say I had a mirena coil in for 10 years, removed 2years+ before dx, & onc didn’t seem to find that of any interest at all.
Good luck Van, you’ll get there.
I, too, am grade 3 triple negative and had a mirena coil.The hormone effect from the coil is very small and I was told highly unlikely to cause bc. However Triple negative bc is not hormone fuelled. We don’t know the cause of it but it won’t be the coil, the pill etc.
So sorry you are feeling down. Chemo is rough but you will get through it.
Love Kathy
Hi Van
I found the third and fourth round of chemo the hardest by a long way - and had a major wobble - I think most of us have a low point in the middle somewhere. At that stage it seems to be going on forever. Hold on in there - you’ll soon be over half way.
finty xxx
Like otheres have said, I found no 4 really hard. That was the one when I started crying whilst it was being. In fact I cried as I walked into oncology. The nurse said most people find no 4 really hard. Probably because you have as much to do as you have already done.
I also found no 5 pretty hard, but no 6 was a lot easier. It seemed to go very quickly getting from no 4 to no 6. I am now 4 weeks post chemo and I almost forgotten how I felt (a bit like giving birth but witout the lovely outcome!)
thank you for your words of wisdom… I really appreciate them
Hi Van
Sorry your feeling bad i totally relate i have been having a hard time the last few weeks and get no 4 1st TAX tomorrow. I have tried everything this time Acupuncture, hypnosis, eft and Louise L Hay tape. I think they have helped a bit but i am still a bit scared about tomorrow and the following days.
Am going to the Haven also if you have one nearby.
I had the merina coil too and i feel it played a part in this for me i am p+ and E+. My personality changed completly when i got it and had to have it out within 5 weeks, the onc has said there is no evidence which is true but my gut feeling is it did play a part for me.
Will be thinking of you tomorrow Van sending you a big hug.
Lots of love
Jayne
Hiya Van will be thinking of you tomorrow. I am having my sixth cycle of chemo out of eight starting tomorrow. I found mid way hard and can remember being awake the night before and it freaking me out as the treatment went into my arm via the drip. I think we all just get progressively more weary as it goes along and I found myself almost anticipating the side effects.
take care, hope it goes well for you love Carol x
girls, you CAN do it… just focus on the positives, it’s medicine that will make you better. I completed 8 cycles and finished November 09 and the last 2 were horrid, just felt completely washed out, but resolved myself to the fact that it was only 6 weeks of really feeling like cr*p. Listen to your bodies, don’t push yourselves and it really will soon be a distant memory.
Much love
xxx
looking forward to the distant memory…
I still have Mirena coil. Had lumpectomy end of March. At post op appointment the surgeon siad to have it removed but breast care nurse said to wait and ask oncologist as there are varied opinions. I’m seening onc tomorrow so plan to ask again. Another thing to do before chemo starts in a couple of weeks…
Hi. Van,
Had 5th of 6 today and found that 3rd was my most emotional and difficult. think some of it was so many people saying that i was half way there. Well I felt actually that i still had half to do !!
4th was probably the best of the lot and will see in next few days how I react to 5th.
Have felt increasingly tired with each one but just rest when I need to and say what the hell to the housework etc.
Have had lots of ups and downs and it is B****Y hard but we will get there and look back in time and know it was worth it
oops pressed too soon.
Wishing you well Van
K x
Hello to you all… thank you
completely pants day today… Veins have collasped in both arms and now I need to be fitted with a PICC tomorrow evening ready for chemo again on Thursday… then found out I needed 25 radio therapy and not 15 that I first thought…
I am feeling totally flat… so dont want to have anymore treatment and I know that is being very childish… but yep youre all right I am childish… I am 40 years old and want to enjoy my bloody life again