Thankyou so much ladies for your concern
I normaly try to remain positive but I think because my hubby is my mainstay I rely so much on him as I cannot walk properly and do not drive I need him well. His attitude is wait and see what happens on Tuesday trouble is Wednesday is my hospital day and I feel I shouldn’t be thinking about me.
Thankfully Marie has brought the Cafe back to life on bone mets and I am finding it a distraction.
Again thanks to all xxx
Hiya marirose.
I understand as since I dx last Oct my hubs has been my carer too. He has heart probs and I was always the active one . Now I also cannot drive and not that mobile I panic when he has a bad day too. It’s like the blind leading the blind but hopefully if u c doc on Tuesday it will put your minds at rest.
Hugs xxx
Hiya marirose.
Just touching base with you. How r things?
Hope hubs is feeling more positive and u r coping .
Hugs xxx
Thankyou Carolyn for asking
Hubby has an appointment for 28th April not as early as we would like but he says he feels ok but I still worry.
I have a ct scan next tuesday and then the DMT meeting takes place following morning (I thought it took longer for scan results but they are the bosses) but apparently if one chooses to look at it more closely on his screen then it will take longer and the onc will ring me.
We are going away until Monday in the caravan just to see if we are ok with it if not we will sell it.
So I am still feeling low but I will get over it.
Thanks to everyone for their concern I love you all (((hugs)))) xxx
So glad to hear from you as u have been having some dark days and I thought u would like to know we are all thinking of you.
I’m waiting for a scan appointment too and that doesn’t worry me one bit but the results will!
I’m sure once u have been away for a few days u will feel much clearer and rested.
So enjoy your break and very big hugs.xxx
Hi Marianne，enjoy your break in your caravan. We are currently sat in ours on the east coast and our fingers are crossed that there might be a seasonal pitch available for us by the end of the break. This will make life so much easier.
Don’t rush into a decision to get rid of yours I’m sure you would miss the change of scenery.
Hugs to you and your husband xx
Hi Marianne，enjoy your break in your caravan. We are currently sat in ours on the east coast and our fingers are crossed that there might be a seasonal pitch available for us by the end of the break. This will make life so much easier.
Don’t rush into a decision to get rid of yours I’m sure you would miss the change of scenery.
Hugs to you and your husband xx
Sorry I got your name wrong Marirose. Call it a senior moment xxx
Need some cheering up ladies, trying to find some positive thoughts but it’s late and my aches and pains aren’t helping. I went to see my onc on Friday. I’ve got bone mets and have had shortness of breath for 6 months which they have been putting down to asthma as lung ct scans show nothing specific.
i ended up with pneumonia last week after my trip to Egypt and he has always been suspicious of mets in my airways even though a broncoscopy 2 weeks ago again showed nothing conclusive. I’m just not getting better with the breathing.
He told me he thinks it’s time to start chemo - weekly taxol - starting in a fortnight. I’m devastated as I wasn’t expecting it and the whole thought of it has just made me feel more poorly. It’s that psychosomatic thing I’m sure but just feel pain and worse symptoms now and very down.
What really made me cry is that my wedding is on July 9th and I’ve been growing my hair for ages so unless very lucky with tolerating coldcap, which I gave up on in 10 mins last time, I’m gonna be a bald bride. I can’t do wigs and was ok being bald last time but now the thought of the wedding photos just makes me sad :-((
Helen
Hiya Helen.
I do feel for you as we women all take pride in our looks and the hair thing is the worse bit. We can cope with sickness , aches but hair loss is the final straw.
I did chemo in 2004 and hated it too. I don’t know how good the cold caps are but I think you can hire your own through a website which is international . Did read about them somewhere and they got good reviews. I will have a look and see if I can find it.
In the meantime lots of hugs xx
Hiya Helen.
Me again. It’s penguincoldcaps …have a look online and read the reviews.its the only suggestion I can offer if you want to keep your hair.
Unfortunately July is a long way off and it would be a bad move to delay chemo that long
In the meantime … like everyone says …take a deep breath and be strong.
Hugs xx
Helen, with or without hair you will be a beautiful bride on your wedding day. Your vows and commitment to each other will be the important thing.
Stay strong xxx
Hiya Helen. The hospitals do have cold caps for free so that would b the best option but better to ask a lot of questions first on success rates for them. There are a lot of threads here from other ladies but I guess they vary from one hospital to another. Personally ladies , no offence to those that have lost their hair ( been there and lost it 2004) I think I would try to keep mine ( I’m vain) but there is I think a little chance of a cancer cell hiding in the scalp with cold capping and oncologist might b a little wary.
Hugs to whatever you do but please keep in touch with us for support.
Xxx
Oh Miller what a lovely posting and you are so right …
Xx
Dear Helen
Don’t let the “C” stop your big day I agree with miller she is so right. I know losing your hair would be upsetting but try not to lose it and if you did well how about a nice wig it’s the day that matters and anyway I bet you will look lovely no matter what happens.
((((hugs)))) x