Hi Everyone, I was diagnosed with High grade DCIS about a month ago and had to have two further biopsies for different areas. I won’t be getting the results for a further 3 weeks until my consultant appt. I have been feeling ok until today, things have been getting too much, my mum is poorly and currently in hospital, I care for my son with special needs and I just feel very tearful and also feel resentment. I know I have been told my diagnosis is treatable but I just seem to have so many mixed emotions, I feel guilty for feeling this way and trying to tell myself to get myself together
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Hi Mitch
Your feelings are very normal, most people going through this have highs and lows, and they continue long after treatment has finished. Different things trigger different emotions and they don’t always seem obvious or logical.
Take time for yourself, the run up to your diagnosis is stressful and full of anxiety. For many, myself included once treatment is discussed and put into action, the pressure seems to ease of.
Your family concerns right now will be adding to that stress. But just do small amounts at a pace that you can manage. If you have any friends or family, ask for help to lighten the load.
I don’t know if this applies to everyone but sometimes we have no choice but to plod on, meaning, we find the strength to take another step forward until we get to the end of that dark tunnel. And for most, there is light at the end.
Best wishes x
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Hi Sal1, thanks so much for your response. I do think the waiting for results is difficult and hopefully once I see the Consultant and find out treatment plan it will be easier xx
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I’m sorry to hear you’re in that awful waiting limbo. Waiting for results/treatment plan is the absolute worst.
Please don’t feel guilty over feeling perfectly normal and valid emotions while going through a really stressful time. I’m a very positive person generally and I also ended up feeling really low, anxious and tearful at times while waiting for full results. I’ve seen many others on here say similar. So please know you are not alone, and don’t beat yourself up for not being able to just snap out of it.
Once I got all the test results and a treatment plan, I felt SOOOOOO much better. The weight of uncertainty was lifted and I could plan towards surgery. I am sure you’ll also feel better once you know what you’re facing.
You are clearly a strong person who others lean on. But it’s ok, in fact necessary, to also lean on others a bit when you’re facing difficult things. Is there a good friend you can talk to about how you’re feeling? Don’t underestimate the power of being able to get things off your chest while talking to someone who cares about you.
I wish you the best of luck with everything, and do keep posting if it helps xx
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Thank you so much, I hope you are doing ok xx
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Hi mitch2,
So sorry to find you on here and feeling so down. I totally get how you feel. One of our sons has special needs - now an adult and my mother who was always so marvellous with him and a wonderful help became ill last year with dementia and is now in a care home. I’m sorry your mother is unwell, I hope she makes a speedy recovery. When we’re carers we rarely put ourselves first, so I understand the rollercoaster of emotions you must be feeling and the worry.
I hope you have others to help you while you get through this difficult time of test results. If your vulnerable person has a social worker do contact them. You may need more care for them whilst you attend hospital etc and they can arrange funding for this for you or arrange some more respite. We did this.
Take it one day at a time. You’ve got a lot on your plate at the moment. You will get to the other side of it all. Good luck.
Frances x
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Thank you so much Frances
Hi
I was diagnosed with DCIS Grade 3 in June. I have had two biopsies. I had my first surgery on 8th July but margins weren’t clear so now having a second surgery. You will have good days and not so good days. Except them. It’s a lot to cope with. Waiting for results between each stage is actually the hardest part of the whole process. Keep strong!
Good morning 
I went through the same as you (aged 42) I had three vacuum assisted biopsies, the first two came back clear, so I thought I was ok, it then the last one showed high grade DCIS. I then had an MRI. I went to meet the surgeon and had surgery about two weeks later (it was over Xmas/new year), I had never had a general anaesthetic before so I was really worried about it, but actually it was fine and I strong afterwards. I had to wait about a week for the results to see if they had got it all, the cancer nurse called me and said unfortunately the margins weren’t clear so I needed another operation the following week. I felt scared, but I knew process by this point so so felt ok. Roll on another week and the margins still weren’t clear, so another operation the following week. By this point I was starting to lose hope that they would get it all. BUT good news, they got it all! I had radiotherapy (which was fine) and I was clear. I had my first mammogram in February and it was clear.
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Thank you, good luck with your second surgery x
Thank you for your message, great news your latest mammogram was clear x