I was diagnosed with DCIS high grade on April the 9th,
I had attended a randomly selected invite for an early Breast screening where they found a cluster of Calcification and a suspicious cyst, I had a biopsy on both
(both in the left breast) and had to wait 15 days for the results…
The cyst came back as benign but the Calcification is cancerous.
I was told the best option was to have a lumpectomy then 4 weeks Radiotherapy, my consultant seemed very happy and confident that with this treatment, I would be completely rid of all cancer, so I was happy, confident and feeling very positive too,
I was called in for the surgery to be done last Monday but when they went to put the wires in, they found some more Calcification so instead of surgery I had another biopsy, (I had a massive wobble at this point and not feeling very positive or confident anymore) but because of what happened the last time I really don’t know wheather to continue as planned or just opt for a mastectomy, my confidence has completely gone now,
I would appreciate hearing others experience in this situation
Welcome to the club no one wants to join. I’m sorry to hear about your diagnose.
I was diagnosed with medium grade DCIS around 18 months ago, 7-8mm in my right breast. I was offered a mastectomy and a sentinel node biopsy (SNB) but other treatment. I didn’t think to ask about a lumpectomy or question why it wasn’t offered, however I did insist on an immediate reconstruction.
Have to admit I haven’t coped well with the mastectomy. I didn’t realize how important my breasts were to me until I didn’t have one anymore. Although I’ve had the reconstruction I am very uneven, which has also effected me mentally and physically.
The SNB was negative so I has the mastectomy. When I got the results afterward they said the DCIS was high grade not medium and 6mm in length. It was close to my skin so I was given 15 rounds of radiotherapy to my chest and armpit. As it was DCIS I wasn’t given any long term meds. It was strange my medical team kept saying I was lucky because it was found at an early stage. Funny, it didn’t feel that way :smileyindifferent:
Remember it’s different for everyone. You may want to ask some questions about the risk of reoccurrence before making your final decision.
I was diagnosed with high grade DCIS in Sept 2016. I had a lumpectomy then a cavity shave as they didnt get clear margins the first time. I then had 15 shots of radiotherapy and my treatment was over.
In August 2017 I had my first yearly follow up mammogram. The next day I got a call to come in as they had found more calcification. I had a more precise mammogram and stereotatic biopsies. 10 days later I was diagnosed with grade 2, er+ and her2+ Invasive Ductal Carcinoma! I had a bone scan and CT to check for spread but Thank God it hadn’t. There was no lymph nodes involved.
I had 6 chemo followed by a mastectomy (with tissue expanderd implant) and a SNB. The cancer had all gone and nodes were clear. I have had no trouble at all with my new boob and forget that I have it. I had a year off work but am now back teaching full time.
We all have our own experiences and feelings but I wish I had been offered a mastectomy the first time around as I might have avoided the 2nd diagnosis. Good luck with whatever you decide to do and I hope everything goes smoothly xx
Thank you for sharing your stories with me, I hope you’re both well ?
It has been a really tough time and I decided to go for the lumpectomy and radiotherapy,I just feel like it’s impossible to make the right decision, I was scared of having a mastectomy needlessly but then I was scared that it’s gonna come back if I just had a lumpectomy
I had the surgery last Friday,
I go back for the results next Wednesday, but I’m already dreading my mammogram next year,
