Hi @jaynealis,
Thanks for your message about the breast lymphoedema you are experiencing.
Lymphoedema is swelling caused by a build-up of lymph fluid in the surface tissues of the body. This can happen as a result of damage to the lymphatic system following surgery and/or radiotherapy to the breast or armpit (axilla). Other risk factors include being overweight and infection in the skin on the treated side.
It’s not clear why some people develop lymphoedema and others do not, but lymphoedema can develop soon after treatment or may occur many years later. The risk is greatest for those who have both surgery and radiotherapy to the axilla (armpit).
Symptoms of lymphoedema include swelling in the arm, hand, fingers, and also in the breast, as you have mentioned, on the side of the body where you had your surgery or radiotherapy. The area can feel tight and uncomfortable, and the skin can become dry.
As your breast care nurse has informed you that have lymphoedema, our Living with lymphoedema booklet explains more about what can be done to help. If you have not been referred already, you can ask your breast care nurse to refer you to a local lymphoedema clinic.
The Lymphoedema Wales Clinical Network have produced a leaflet specifically about the management of breast lymphoedema, which you can find on the previous link.
Jen Mckenzie is a breast cancer physio who specialises in lymphoedema management and has produced some videos which you may find helpful. This includes a video on self massage for breast lymphoedema. However, it is advisable to speak with a lymphoedema specialist before undertaking any self massage.
You may be interested in our Moving Forward services which include our Moving forward booklet and Moving courses that feature a session on lymphoedema. The course is open to people who have had a primary breast cancer diagnosis and have finished their hospital-based treatment within the last two years. You can find out more and register for the programme on our website.
Additionally, you may find the Lymphoedema Support Network a helpful resource.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to additional support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
Our number is 0808 800 6000. If you have hearing or speech difficulties dial 18001 followed by our number and the call will go through Relay UK. Our helpline has access to telephone interpreters if language translation is required.
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Best wishes,
Natasha
Breast Care Nurse
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