Lymphoedema and NICE guidelines

Public Archive
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Hi All

I’ve been extremely heartened, not to say touched, by the postive comments I have received on this site about the Lymphoedema petition, so I thought I would just mention this as well.

The LSN (Lymphoedema Support Network), together with other bodies, will shortly be submitting a request to the National Institute for Health and Clinical Excellence (NICE) for the prodution of a clinical guideline for the diagnosis of lymphoedema (this would include primary, secondary and children, by the way).

It is very important to secure NICE guidelines for lymphoedema, as without them there is no onus on the NHS to provide treatment at all for it. This means that what is currently offered to sufferers varies enormously and can easily be withdrawn or cut back to save money, with no danger of any kind of legal comeback.

If the guidelines are introduced, it would go a long way in ensuring that all patients get a correct diagnosis and appropriate treatment.

You don’t have to be a member to add your name. The Information about the NICE guideline is now available at:

www.lymphoedema.org/lsn (hope it’s OK to post this link?)

where there is a NICE guideline button to click.

Thanks, everyone

S

S

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Thanks for keeping us informed. Fingers crossed that the guidelines are introduced.

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Thanks, Janet

Hope nobody minds me ‘bumping’ this up again to keep it in sight.

S

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Thanks so much for this petition, i have forwarded it to everyone on my email address and also to an MP friend of my mothers. What would we do without people who make a stand and try to make things better for us, it is so much appreciated and thanks to everyone who has signed the petition as well whether they are suffereing from lymphoedema or not every signature is making history!

Love to you all
Suzzanne

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Hi Suzanne

Thanks for your support and for spreading the word! I, too, have badgered friends, family and former collegues to add their names. There are currently over 350 signatures, which I am really pleased about.

S