Does anyone on here have ongoing lymphoedema? I am not sure which category I fit into. My HER2++ breast cancer was diagnosed 11 years ago and I had chemo, wide excision and radiotherapy plus Herceptin for 12 months. I was in a clinical trial to see how many people developed lymphoedema, which was good because I did. I received excellent support from the local Lewis Manning Hospice clinic and have coped over the years with regular private MLD (manual lymphatic drainage) massages, though these have to be self-funded. I have also kept up with self massaging techniques and I wear a compression sleeve.
Back in 2013, 2014 and 2015 I was so grateful to belong to this forum and I received such good support. This was especially helpful because my cancer had been diagnosed shortly after my husband had died unexpectedly.
There have been lots of ups and downs but my big problem at the moment is the lymphoedema, which has flared up a few times. I have been in hospital twice with cellulitis and recently my arm has swollen more than usual and is not responding to the massages.
Is there a section here, please, that deals with ongoing problems with lymphoedema? Talking to someone else who has coped with it would be really helpful. I am obviously really grateful that I am still alive but it is hard having a problem with your right arm when you are right-handed!
Greetings to all forum members and thanks to all who run this forum, it is invaluable.
Petal8
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Welcome back to the forum @petal8 . There is a lymphoedema section of the forum Lymphoedema but you could also post in the Recovering from treatment section too . Best wishes Jill
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Thank you Jill1998, I have re-posted on the Lymphoedema thread.
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