Hello, I had high grade DCIS in 2018 (left brreast) and had a mastectomy with sentinel lymph node removal and immediate impant reconstruction. All healed well with occasional lymphodema if I overdid the gardening or something, but a compression bra helped. Ive recently been diagnosed with grade 3 HER2 + in my right breast and had my first round of EC chemo 4 days ago. My side effects have so far been minimal but the lymphodema has been extremely uncomfortable. Not a huge amount of swelling, but noticable and very uncomfortable. Is this to be expected with chemo? Or is it just part of lymph node surgery long term? Thank you x
Hi hollyhock63
Thanks for posting.
I imagine being diagnosed with, and having treatment for a second breast cancer is difficult. It’s understandable you’re wondering if the increase in your lymphoedema symptoms is in any way related to your recent chemotherapy.
There could be a number of reasons for the increased swelling and discomfort you describe, and it’s important to have this fully assessed. So we would encourage you to give your breast care nurse or chemotherapy team a call.
We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events.
You may also be interested in our Managing lymphoedema booklet or read about top tips for managing lymphoedema from someone who has lymphoedema.
Jen Mckenzie is a breast cancer physio who specialises in lymphoedema management and has produced some videos which you may find helpful.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to additional support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
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