Hi, it’s been a while since I’ve been here, I’m BC free since 2012, and drug free since 2019.
I have suffered from hot flushes and night sweats constantly since then. I’ve tried absolutely everything you can think of, nothing has made a difference, so I would very much like to try this new drug.
I would like some advice on how I go about getting it prescribed for me (my oncologist is no longer working) please
I’d try your GP first.
I believe Veoza is approved in England now with a Scottish decision imminent.
Thank you Bluetit11, that’s interesting to know. I was led to believe it’s Lynkuet and not Veozah that’s had the relevant trials for people that have or have had BC
Hi @paula161,
Thanks for your post.
It’s understandable you would like to know how to go about getting Lynkuet (elinzanetant) prescribed for you as you have been experiencing hot flushes and night sweats.
Elinzanetant is one of the new non-hormonal based drugs that targets receptors in the brain that control temperature which in turn helps manage hot flushes and night sweats. Elinzanetant has been approved for use in the UK.
Although the recent studies have shown this drug to be well tolerated. Side effects include headaches, dizziness, fatigue and diarrhoea.
Elinzanetant has been studied in women on hormone therapy for breast cancer and the Medicines and Healthcare products Regulatory Agency (MHRA) recently approved elinzanetant as a non-hormonal option to manage menopausal hot flushes. Elinzanetant is currently waiting for approval from the National Institute for Health and Care Excellence (NICE) so is not yet available on the NHS but may be available to access privately.
Hot flushes and night sweats are the most commonly reported menopausal symptom due to breast cancer treatment, and many women contact us describing the difficulties they are experiencing with them. The frequency and severity vary from person to person. For most women they will fade over time and become less severe, but for some they can really affect their quality of life.
We know that there are different things that help with hot flushes. You can speak with your GP to discuss possible options for managing hot flushes. You may want to ask about a referral to specialist menopause clinic where you can get further advice and information about coping with menopausal symptoms.
You may find our upcoming speaker live session on menopause and cancer of interest.
We offer a range of free supportive services which you may be interested in. They include face to face and online courses and events.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to additional support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks.
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