Hello
My first post on a forum that I never thought I would have cause to frequent. ![]()
I found a lump a few months ago but because I have had two in the past and was told they were cysts (the last time a couple of years ago my GP didn’t event refer me) so I thought this one was nothing too.
Then I had a bilatéral multiple pulmonary embolism and recovering from that, endless tests and procedures, PTSD, fibromyalgia and CFS meant that when I felt a lump about eight months ago I really didn’t want to go to the doctor about it. Have had enough hospital visits in the last two years to last me a lifetime and they trigger unpleasant flashbacks. ![]()
Fast forward to two weeks ago by which point I could really feel and see the lump and was starting to think maybe I should go just to have it confirmed as a cyst. My partner insisted so off I went to my GP who examined me and arranged an urgent referral. I was a bit shocked as I was expecting to be sent home again and was trying really hard to be “positive”. Anyway a week later I had my appt at the local breast screening unit, was examined, palpable lump confirmed that the consultant said was more “craggy” than she would like, then a mammogram and the radiologist immediately said after taking the first images to the consultant that she wanted to take some more images (seven in total). By that point I was scared. Then I was told I would have an ultrasound straight away and was introduced to the radiologist consultant (also a surgeon) who immediately told me I would need a biopsy right away and that I would definitely require surgery to have it removed. I asked her if there was any way it could be a cyst or benign and she said no it is solid and in her opinion and experience there was no way it was benign. Then she said I’m sorry, I cried, she did the biopsy and was introduced to “my nurse” and given her contact details. I then saw the first consultant again who explained it looked highly suspicious and they would confirm results in a week and treatment options but definitely surgery to remove the tumour and probably radiotherapy and/or chemotherapy.
Since then I have received a copy of the letter they have sent to my GP which states my mammogram was M5 which I understand is a cancer diagnosis from radiology images. So my tumour is 2.2cm, irregular borders, feels “craggy”. Is there any way I could not have cancer?
If I do, what treatment can I have as somebody who is high risk pulmonary embolism and on rivaroxaban (bloodthinners) for life? Can I keep taking them? I dont want another PE. I don’t know that I would be able to take hormone treatments. I had a Mirena fitted as an emergency procedure in July last year to control bleeding from rivaroxaban but now wondering if Mirena safe? Is radiotherapy safe on rivaroxaban? Not sure about chemo either. Feel a bit like I might be caught between the devil and the deep blue sea. :-/
Trying very hard to stay calm and hopeful but struggling. I am 45 years old and a single parent with an 11 year old daughter who needs me. No cause found for PE but am now thinking the cancer must have already been in my body when I had it so is quite possibly linked. I had tests for cancer after including a mammogram in Nov 2014 and it was clear. So either it didn’t show yet or it grew pretty fast. :-/
Any tips on how to cope with the wait and not knowing exactly what I’m dealing with yet would be very gratefully received. Thank you.