Just FYI following 1st dose Docetaxal last Tuesday. The aches etc started Friday and been ongoing, thought improving but not very much even dosed on paracetamol and ibuprofen. Been a bit miserable tbh. Got extra pain relief yesterday but now in assessment unit cos of temp. Fine in myself but they’re checking for neutropenia. After flying through EC (relatively) this has brought me up short! Just a blip I know but feel like I’ve just lost 5 days to SE - annoying
2 Likes
I really hope you’re ok. Good you’re getting checked over. Take care x
1 Like
I feel for you. I didn’t like EC but I didn’t get any awful SE’s. But this first paclitaxel has knocked me for six. The bone pains were depressing and I’m now day 4 in hospital with a temperature.
Hope you get to go home after your blood results
2 Likes
Thanks both. Neutropenia (0.2 - last week it was 2.8 before Docetaxal dose). Two IV antibiotics, plus a week of antibiotic tablets. The chemo drug leak has flared and they think that’s site of infection. Agreed I could come home (literally just got home) if sensible. Any issues tonight straight to ED. Have to be at clinic in morning to repeat bloods, might mean extra doses filgastrim
Good news is the pains have pretty much stopped!
This might repeat after subsequent doses (but only two to go) - at least I know what to expect/be aware of
For future doses I now have naproxen and codeine in case for pains - hopefully you will be given something extra too! Hope you feel better soon
3 Likes
3rd EC done today! Now I’m hoping for an easier time as it was on a reduced dose again and tapering steroids. I’ll be happy in 10 days and through any side effects and then I’ll be able to say I’ve made it thru the brutal EC!
Then onto weekly paclitaxal. The dose I’m being given is much lower so hoping this will be ok as I’ve got 12 weeks
Night all
Proud of you all x
7 Likes
Really hope you’re ok are they keeping you in x
Yes 4th night in hospital now 
If no temperature overnight I should be able to go home tomorrow 
2 Likes
@lauzloo sorry to hear you have to deal with these SE 
every body is so different, you never know what to expect. Hopefully you feel much better soon! 
I choose to have a blood transfusion since my hemoglobin is very low and I’m so tired of being out of breath all the time. Also no make up can cover my pallor and dark circles now. Tbh I don’t like a thought of having someone’s blood in me but they said they could cover a bag so I don’t see it 
1 Like
How are you today?
Hi there, I’m feeling ok, feel like I’ve got a hangover so I haven’t done much. Fingers crossed I have an easier time once the steroids stop. I’ll be pleased when I’m through the first week and out the other side. How are you? X
1 Like
How are you x
I’m home 
They wanted to keep me one more night but I was desperate to get home to the children and I was temperature free 48hours so they agreed.
On oral antibiotics now for 5 days
4 Likes
Phew I bet you’re so glad to come home. I tried to message you last night but the system kept failing. Bet your kids are pleased to have you home x
1 Like
So far so good thanks, apart from a few more nights of insomnia this time, I was pretty whacked yesterday so thought id sleep last night but was up a 2.30. also taste has gone again
1 Like
Hi
Today is the day, mum is having her first chemo. It will be roughly 6 hours only for today as observation is also included since it’s her first time. Don’t know whether I’m feeling anxious or glad, just mixed feelings hehe.
Can she wear her compression socks during chemo and do you continue wear them over night or you can take it off once chemo done
What to take with you for first chemo any tips 
3 Likes
Hi. Had ny first session of Pac with bo cold cap. Thought id update you on timings as it did take a little longer than I told you the other day.
With the faffing if cannulatuon, pre meds and priming line i went in at 10 but the treatment didnt start til 11. 1 hour with flush and obs so all in all i was there for 3 hours.
Hope youre feeling ok after your final EC x
1 Like
I was the same last night; I was awake til 330am! My face is v red again today x
Thanks for the update, glad it went well. My ec went ok, I’m now dreading the next few days as it’s usually when it hits me hardest. But I’m on a further reduced dose so I’m hoping it won’t be as bad. But at least I know it’s my last EC. Hope paclitaxel is easy on us. Keep in touch xx
1 Like
Ive found Pacs to be ok and recover far quicker each week than when i have pacs and carbo together so really hope you have an easier ride on it. Felt wiped last 2 days (had it on wed) but feel stronger today and hoping to get out and do some gardening!
Heres hoping for a smooth ride this weekend for everyone🤞
3 Likes