Also is any of you losing eyebrows/eyelashes? I feel I’m the only one so far… Now I have to paint eyebrows everytime before I go out, it’s so odd
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All my eyelashes pretty much gone and some of my eyebrows. Got some great false lashes and luckily (someone else’s tip) managed to get eyebrows microbladed before chemo so just a little pencil needed.
Hope goes well for you.
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Got a few eyelashes still hanging in there. Eyebrows are sparse - it’s taking longer each day to fill in the gaps. They stayed put during EC, so I was happy about that, but mine obviously don’t like paclitaxel.
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Eyelashes still there but eyebrows very thin now and Ive lost more hair, scalp is prominant
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6/12 done, no take home meds yeeha, counting down, someone rang the bell today we all cheered. Taste is still an issue, I found some mixed smoothies/juice in chiller isle Lidl and can taste those so at least I can drink more, also got some Rountrees jelly tots and their ice lollies, not the healthiest diet. Tonight trying steamed brocoli, cauliflower and a stronger cheese.
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Well done you’re getting thru them!!
My eyebrows have gone and lashes v thin but I have noticed my hair growing a bit on paclitaxel. I didn’t realise that even tho we’re on weekly chemo it still follows a 3 week pattern. So today I’m 3 days after my 2nd chemo and that means I’m on day 10 (the oncologist today said that when we’re at risky stage). That’s why they were hyper vigilant about me seeing the dentist for broken tooth x
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There’s so much I’m writing down that I think we should know about in advance. I’ll feed it back after. Today with my broken tooth I rang 24/7 line and they said it’s fine go to dentist. I then thought I’d check with my bcn and she said no you can’t go until you have a blood test in hospital and oncologist gives the go ahead!
So there’s lots of inconsistencies at the same hospital! And it’s a really important thing to get right x
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I asked about the bell in our hospital and they said they don’t have one but there is one in radiotherapy. They said as it’s not a breast only unit there’s lots of people having chemo who are treatable but not curable so they’re having chemo for life. They don’t have a bell for this reason. It does make total sense. But I’ll be ringing the bell in radiotherapy in 10 weeks for sure!
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Thank you I didn’t know that, can you remember the length of time were more at risk? I’m going to get the magnifying glass out to see if hair is growing now 
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What to do when the steroid insomnia hits at midnight… I do competitions on Instagram, Loquax, Money Saving Expert, so far this year I’ve won a choc hamper, Gardners World tickets to Beaulie, a Christmas book, Love2shop voucher, £500 flooring… go on give it a try, I mostly do free entry comps but will occasionally do a purchase necessary. TIP if you enter an instant win overnight you’ve got a better chance of winning 
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That’s so good! I’ll def give it a try! I like a competition!
The lowest days are 7-14. I only found out yesterday that even tho we’re weekly we’re on a 3 week cycle. So Im day 4 of week 2, but really I’m day 11 so in the risky stage @cruising
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I really thought weekly chemo would be easier but blimey the fatigue just won’t lift, and then it’s time for the next treatment. I do a bit around the house and then I’m done. I have to sit down and could easily fall asleep. It’s like this every day even on more steroids. I’m 49 and feel so tired all the time. Will tell the dr before my next one on Tuesday. I really think I’ll need a week off. Feeling upset about it today as I’ve still got 10 weekly chemos to go (I’ve done 3 ecs and 2 pac so far) x
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You are doing amazing. I had 12 weekly Paclitaxel and I kept reading on the forum that it was easier than 3 weekly. It was hard for me, got worse over time, allergic reaction and infection that put me in hospital for 6 days. I had it at a reduced dose from the beginning due to my health and family history, then reduced a couple of times over the 12 weeks as well as a few weeks off due to being ill.
Rest when you need. Take care
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Thanks for replying, sorry you had a rough ride, but makes me feel that I’m not alone. I’ve got to rest rest rest and just listen to my body. I’m so fed up and upset today, usually I’m positive but today it’s hard x
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This cancer journey is full of ups and downs. You have been so supportive of others on this thread. It’s ok to not be ok sometimes. As women we are always trying to please everyone and do everything, with a cancer diagnosis, it’s hard to do.
BCN helpline is not open until Monday but MacMillan have a helpline open 7 days a week 8-8 on 0808 800 0000 if you want to talk to someone. Talking when you are down can help and they will ‘get’ it.
Take care
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Thank you. Xx
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Had my first (of 4) paxitaxel cycle last week. No issues at all for first two days but last night my lower legs started throbbing. Today my knees, ankles, calves and heels have been agony. Can barely put any weight on them and can’t get comfy sitting or lying down either. My legs are constantly throbbing. I know joint and muscle pain can be a side effect but I didn’t expect this. I’ve been taking paracetamol and ibuprofen regularly but nothing is touching it. Anyone had similar or have any advice for me?
I’m hoping it only lasts a short while but as this is my first pax cycle the fear of the unknown is getting to me again.
Take care everyone x
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Hope you catch a break and start to feel better soon. You’ve definitely had a rough ride with the chemo despite having such a positive attitude.
You’ve got this xx
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My eyelashes are going now too 
. I really hoped I’d keep them as I know many people do. My eyebrows aren’t so bad but I’ve had them microbladed (have done for a few years now). So glad about that.
Take care xx
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I am 31 & I am experiencing this. It is unfortunate to feel so tired all of the time from what seems like nothing. I have been in bed all day today & I have treatment again on Monday. I wish I had the energy to clean around the house more.
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