Even with lowering the doses the fatigue as a side effects is accumulating.I can relate, the fatigue is unbearable even now I stopped chemo I was smashed after going to do quick shopping for 18min.
Exactly that! The fatigue hasnāt lifted at all. Hope youāre ok x
Met with oncologist today, bloods all good but heās put my next round on hold for 3 weeks while I recover from peripheral neuropathy. Says I risk permanent damage if we keep putting more chemo drugs in. I had thought the end was in sight with only 2 cycles to go but the goal posts have moved again .
I should add I totally get it and donāt want to suffer from permanent joint pain and pins and needles, Iām just disappointed in the short term.
Hope everyone else is doing ok x
I hope youāre ok. I had a weeks break due to neuropathy and then they reduced the dose. On weekly they omit a week and they donāt add it on at the end. What is your end date now? X
Yeah, itās very hard to plan with the treatment being moved, itās so unpredictable.
Talking about goal posts. I was getting ready for my next EC round next week when my oncologist called and said that the tumor stopped shrinking, so they were cancelling the rest of the chemo and moving straight to surgery in like 2 weeks! I was shocked I kind of had a different timeline in my head.
Now, when I digested this info a bit, I became happy that my chemo is over! I still canāt fully understand it. I thought I would celebrate and feel it like a big milestone but so far I donāt feel muchā¦
Of course, itās too early to celebrate, I might need more chemo after surgery if the results are not clean but still! Iām done with chemo for now
I hope this week goes well for everyone, we have done so much already, the finish line is in sight
Congratulations on finishing chemo.
I have my surgery in 2 weeks too xx
How is everyone doing?
Iāve had a busy week of appointments and scans. Iām booked in for surgery on the 10th July! Feeling really nervous as the surgery is a big one. Iām having diep reconstruction so the recovery is going to be long.
Has anyone else had/having diep??
Also, I shaved my hair off today. I cold capped throughout my chemo and kept maybe half of my hair. But now the bald patches have grown back I decided it was time to brave the shave.
Felt quite liberating
Picture of my new look
Hello everyone, I met with my surgeon today and she said that my tumour melt totally even I stopped chemo at 4 rounds instead of 6.
She booked me for surgery three weeks from now for single mastectomy with skin saving and immediate reconstruction with implant as I lost 10kg no fat for Diep flap.
Keep having phesgo injection every week tough as the gap btw my last chemo and surgery will be 7 weeks !!!
Happy for the ladies that finish the horrible chemo and good luck for the one having surgery.
We almost there letās keep fighting
No idea what my end date will be. Will depend on the next cycle which may or may not be my last. Iām on a wait and see at the moment. Just wish I could start planning my life again. Hate the not knowing. X
This happened to my sister too. She thought they had a plan in place but when the tumour didnāt respond to chemo they had to live quickly onto surgery. She did end up having to have further chemo but itās not a given.
If Iāve learned anything on this journey itās that as information is gathered we need to bend and sway with it. There is definitely no one size fits all approach to cancer treatment and itās reassuring to know the professionals are able to make changes as required. Good luck with the surgery when it comes. X
I know what you mean, I had my oncologist call today. Weāre sticking to my plan for the next 3 weeks. Iāll then be at 9 pax and 3 to go. Iāll see how tired I am then as I do find each week on paclitaxel that Iām getting more and more tired. The oncologist said today radiotherapy will start soon after chemo ends. In one way itās good but in another I want a break! Take care x
I know what you mean, I had my last chemo aboit 10 days ago and thought Iād celebrate too but feel like I canāt get too happy as still more treatment and surgery to go! Glad the big chemo is over though. Good luck with your surgery, youāve got this!
@lauzloo great pic and you look awesome! I felt better after I shaved too, although I lost most of mine during my first cycle! I hope your aurgery goes well also. Im having a lumpectomy and lymph node clearance but not till end of July x
Looking fabulous have you all been on or booked your look good feel better sessions too through your local Macmillanās? Free goody bag of makeup and session with others with professional make up artists who will show you tips and tricks
Shi xx
Thanks! Congrats on ending the chemo! It makes me think if I ever feel happy about the end of the treatment. First, you wait for the end of each milestone but then when itās over, you get anxious about the next one⦠And then when that one is done, the recurrence anxiety is there. My goal is to learn to celebrate small wins and try to live in a moment. Itās damn hard though
I did the im person skin care wokshop which I enjoyed and received lots of goodies. I have also recently done the styling with confidence online workshop which was also really helpful. Learned lots about dressing for my body shape and what colours work best on me.
I feel a shopping spree coming on⦠When I have the energy
Iāve done the make up one face to face, it was v good. Now booked into the online nail one next week. The freebies are amazing!
Cried my eyes out today, as I was feeling bit ok to take my son to nursery and meet some of my old walking group friends most of them comments on how I my looks changed and how skinny I become or how quite I become.
Itās not easy to be diagnosed with cancer and go through the brutal chemotherapy or waiting for surgery to take your boob out plus the anxiety that comes with it.
How they expect you to be the same person and why they canāt give positive thoughts instead of bad negative energy.
I was thinking of going back to my activities but now I am in doubt
Oh no, thatās awful that theyāve made you feel like that. They wonāt have meant it or known the impact of what they were saying but itās no excuse.
Youāre doing fab, it takes such strength to put a face on and put ourselves out there when weāre not who we were before but you should do whatever makes you feel better. If anyone has said anything to me like I look tired or anything I always reply saying yeah having cancer takes it out of me sometimes.
I really hope youāre ok. People can be untactful and donāt know what to say so the wrong thing comes out. Iāve got a neighbour who always asks how long Iāve got on chemo. This week I said another 6 weeks. She said omg another 6 weeks itād been going on for ages! I said tell me about it! Ha! Try not to let them change you or what you were planning to do x
Thanks hasnae, I took my mum out for coffee today and we were saying how difficult chemo must be if you have children to look after.
I hope youāre feeling ok after your 5th, itās so tough Are you due 6 rounds? My mum has her 6th next Friday and I keep saying to her, but once you start feeling better after this cycle, thatās it, you wonāt have to worry about being battered again!
Sending you a big, healing hug x