Wow that’s great to hear! My 2nd EC is on Tuesday. I’ve sailed through compared to many. Hoping this will continue but if I get a bad day I’ll deal with it then.
Just getting some minor hair loss - ‘a bit ‘down there’ and a bit on head but on head not much more than I’d lose brushing anyway. I hear 2nd cycle likely to lose more. We’ll see - will carry on cold capping anyway (I’m stubborn).
On someone else’s recommendation I bought some Polybalm as big toenails were discolouring. Only 3rd day but (unless it’s just wishful thinking) seeing a small improvement.
Thanks!We v/c regularly but he obviously thinks I am a great wactress! I have told him I’ve been fortunate with SE… I’ve made new friends and I’ve kinda leaned into it as a “hobby” Lots to read about, exercising more than ever (not a lot compared to others but massive improvement for me). Even splashed out on clothing for port access… not needed but retail therapy .
Like you say… something more may be round the corner, SE might be cumulative. I will try to deal with it.
Yes, “down there” first to shed Day17 but only the grey ones… and cold capping and just one spot a bit bald but 99% OK. EC next Thurs.
Hi. I am on Paclitaxel. The morning after each of my two sessions, I woke with a very red face and neck. It was gone by about lunch each time. I was told it was probably the steroids.
K
Hiya, yes managed to get some sleep, they have to come in every now and then to take obs and give me antibiotics, now up in a ward in a side room. They still not sure where infection is coming from but should be reviewed by oncology tomorrow. I’m wondering if the high wbc is due to the injections now Im not too bad, got no appetite, have diarrhoea and nausea but temp seems ok now. Thank you for asking, I hope you are doing well x
Hi everyone
We have info on Someone Like Me which @feck mentioned here: Someone Like Me | Breast Cancer Now
There are some FAQs at the bottom in case anything isn’t clear.
Bernard
Thats so good to hear, glad you are doing well so far, I hope it continues xx. I am just freeking out at the moment, bloods tomorow, nurse phoned today and wants me to take in my concent form ready to start EC on thursday, I just want to run away
I know exactly what you mean! For me, fear of it was worse than the actual experience. It really was ok Staff were lovely, knew exactly what they were doing and worked hard to put me at ease and reassure me. They wouldn’t be saying have chemo if it wasn’t going to be of benefit to you. Knowing the difference it could make helped me no end. Good luck it’s my cycle 2 tomorrow. I know a bit about what to expect now which helps no end. See you on the other side
I was exactly the same. Terrified. However, the sooner you begin, the sooner you finish.
Drink loads. If water tastes funny try squash. Try your best to take a walk every day… slow as you like, minimum 10 mins…ideally 30 mins, don’t know why but everyone I know says it worked!!!.
Sending you the biggest virtual hug and so much love. You WILL get through this. Will be having EC 3 on Thurs and my blood test tomorrow (Tues). xxxx
Hi everyone, good to see that everyone is coping more or less ok!
This week I’ve got a clot in my arm because of the PICC line
Now have to do injections for 2 weeks before they can put it out and install a port instead… The pain is real, hopefully the meds help soon.
I wish someone properly explained me the risks of both PICC line and port before I made a decision. It was so much info to process, how was I supposed to know that? Quite annoyed right now, feeling that I need to be on top of everything to make it right, quite a mental load…
Just ask them to tell more about the risks or google it to have all information. Veins is a weak point for everyone in my family but it might go completely ok for you.
During the chemo session I noticed that majority of the patients around me had ports though
In case anyone is in two minds about calling the BCN number here I can reassure you that it’s definitely worth it.
I’ve been struggling with some information spinning round my head and the nurse I just spoke to really helped me organise my thoughts and just throw a bit of water on the fire in my brain.
They are compassionate, patient and knowledgeable. The three things you really need when your head is spinning.
So thank you, I’m very grateful for that conversation today x
Has anyone booked onto Look Good Feel Better face to face? I was just looking at the dates and they seem to fall close to each of my cycles, so not knowing what my SE will be, wondering if its best to wait until treatments are over.
It was the same for me, all dates in my city were the same dates as I have chemo sessions scheduled
Eventually I found a session next day after chemo…if I don’t feel well then, I’ll just cancel
Hi everyone. Started chemo 7th March 2025. I am having 4 rounds of docetaxel and cyclophosphanide (think its aka TC). Numerous side effects so far, the ones I expected ie nausea and gastric upset but a couple of others thrown in ie tinnnitus, headaches and bloody nose. Also had bone pain from the injections. Hoping I will feel better in coming days but does anyone know if these symptoms are likely to get more severe as the cycles go on ? Wishing everyone well with their treatment and beyond. Love & hugs xxx
Take it a treatment at a time as day at a time everyone’s side effects are different. If your antisickness meds don’t work ring your team they will tweak till they get right combination for you. Any temperature or drop in temperature ring your team to see if they need you in, burning pee ring your team it could be uti and will need antibiotics during chemo not just over counter system. Thrush in mouth or below which can happen during chemo ring your team they’ll prescribe something for you )ask for fluconzole, sorry you find yourself here everyone on the forums here so ask away and use breast cancer now as much or as little as you need to Shi xx
My hair started shedding today, first day after the 3rd chemo session. It seems to be in line with everyone else’s experience… The nose is much more runny as well, so I guess that nose hair goes away too
Even though I’m kind of ready for it, it’s quite upsetting
Will wait as long as I can and then will book time to shave it. I guess no matter how well you prepare for it, it’s a shock