March 2026 chemo starters

How long is it Katie? Maybe see how short you can cut it, just to lessen any weight on it. It’s awful isnt it I’m so sorry we have to deal with this :frowning:

My lady garden has started abandoning me today, right on day 17 which was a pattern I saw on this forum haha so weird

3 Likes

Sending love.

I cut mine to collar bone length before chemo and it’s feeling too long already! Can see why some of you ladies went pixie or shorter. Mine is so thin now. Also my scalp is sore and feels prickly.

Tiny internal nose hairs seem to be coming out too!

Any suggested places for hair toppers? X

2 Likes

It’s around boob length now it was really long before but I kept chopping bits off the end to make it easier, I might take it abit shorter though tonight!
It really is just crap isn’t it, think I’m on a steroid come down today tbh!

Hhaa unfortunately my lady garden is clinging on for dearlife unlike my head hair :joy::joy::joy:

How re you feeling today? Xxx

2 Likes

Thank you :heart: this forum is just what I need on days like today, not people telling me it will grow back! I know it will but I just want to vent about it :joy:

I think I may go to shoulder length tonight too, think the length is just making it tangle more now!

I totally get the shaving head/pixie cuts too!!! My head is itchy and tingly, what I’d give to have one of those japanese head spas now!! Xx

1 Like

@katie91 it is crap but I’m holding out hope we will retain some scraggly bits which will actually be ok for supplementing with toppers and the missing bits will fill in quickly.

Everyone keeps saying it’ll grow back… I keep replying YES BUT IT TAKES AGES!

If it helps I actually love my shorter above shoulder length cut and it has made it far easier to manage. Mine was the same length as yours before. It must be hard having the extra length when it comes out as it feels even more severe.

The other side of this when we have hair again we will never be ungrateful for our locks!

Will keep up the cold cap as I am invested now.

Anyone lost brows and lashes? My new target is to retain those or most!

2 Likes

In positive news symptoms otherwise are pretty good this week!

3 Likes

Exactly, I know they mean we’ll and before going through it myself I’d of probably said the same thing :sweat_smile:

I keep saying this I will never ever take my hair for granted again :joy: same as you I’m fully invested n the cold cap now!!

Brows, lashes and the rest of my bodily hair are clinging on so far!!!

Xx

1 Like

Shaved my hair after it was hurting me too much I think day 21 of EC. Lady garden started abandoning me around then too, completely gone now - might be TMI but I really don’t like it, I can’t walk the same without knickers :joy:

Never realised how much I loved having nose hair - I’ve gone through so many tissues. I think it took starting Paclitaxel to clear out my moustache though - very happy about that one.

Shout out to my leg hair though that is indestructible so far :joy: And my eyebrows are clinging on, I might have lost some but they started big and bushy so it’s hard to tell - I do hope they stick around. 9 more weeks to go.

I find having a bit of morbid scientific curiosity about the whole thing helps make it easier :smiley:

3 Likes

Brows and lashes holding on. I literally dont rub them at all and I bought a water based mascara that comes off super easy with a splash of water. Ive started putting some caster oil on my brows, typical me I read something that says it could help and I’m all in but who knows :rofl:

I think acceptance that for the next couple of months we will all start looking a little rough around the edges, do what you can to help the situation but we can’t change it. Ive bought some huge sunglasses to wear when I’m out walking, literally no one would know if I had eyebrows. Lots of beanie hats and baseball hats. Just keep remembering, this will pass :heart::heart::heart:

1 Like

I think we make a rule now that there’s never too much information here. We all get a free pass to vent and rant and share all the ugly details. If we can’there then where can we!

6 Likes

Hair hair hair! Amazing how much we take it for granted. I’ve got week 7 of paclitaxel tomorrow and I think my head hair has finally really slowed down its shedding. When I moisturise my head (it really needs it, it’s mad!) I’ve stopped getting my hands covered in tiny bits of hair and there’s less on my pillow. Am hoping this might be as bad as it gets and I won’t be completely bald, just thin/shaved. We’ll see!

Nose hair has gone and mine drips all the time. Really annoying. Never realised it was doing such a job!

I’m not sure about being “bare” below, it feels really weird and as someone else said, your underwear doesn’t seem to sit quite right. Arm and leg hair all gone. Still got eyebrows and lashes for now :crossed_fingers::crossed_fingers:. On basis that head hair seems to have almost stopped shedding maybe I’ll keep them?

In other news had my 3 weekly oncology review today (by phone). Main issue is my face rash which although a bit better since daily antihistamine and switching to La Roche Posay it’s not disappearing and they think it’s definitely an allergic reaction to paclitaxel. They’re putting me on a much stronger antihistamine and some steroid cream as from tomorrow. My neutrophils are hanging in there - 1.66 this week so a small drop from last week but still above the magic number 1. Am pondering what more I can do to support them….

To those hating losing your hair I’m so sorry, it’s no fun especially if you’re younger/have younger kids (my 24 year old daughter told me I look like a rock chick with my shaved head - she says all the right things :heart:). But it will pass and maybe some of us will end up with a complete new hairstyle that we’d never have tried otherwise but that we love!

To those mastering the nausea conundrum, again I feel for you all; I’ve had nothing like that on chemo (the chemical taste for 24 hours after infusion but that’s all) but I did have awful sickness/vomiting with both pregnancies so I can empathise. Looks like some of the meds are helping. Try ginger too - in whatever shape or form you can. Ginger cordial is good! Ginger shots too!

Sun is out today (we had snow here yesterday :squinting_face_with_tongue:) so things feel a bit better :smiling_face_with_three_hearts:.

3 Likes

I agree with the never TMI - we’re all going through a rough ride so we need somewhere to yell about it and who better to do that with than people who really get it.

I think I’m a week or two behind some of you guys so no hair loss yet (anywhere :wink:) but I’m preparing for it with all your stories - although how the hell you prepare for it I don’t really know - get used to the idea maybe :thinking: . This is a tough gig and losing hair, motivation, fitness , sense of taste and energy and all the other crap that comes with it is hard to take isn’t it although some days are better than others which I’m holding on to.

I feel almost constantly dizzy and I can’t remember where I’ve put anything at all or even what I’m talking about half the time ! Significantly brain fog :roll_eyes: although the hot flushes keeping me awake most of the night might also be a part of it.

Anyway fellow warriors sending much love to everyone for whatever’s coming next - let’s yell about it all xxxx

4 Likes

@katie91 i am also day 3 of my final EC. Yesterday I felt ok but I get wioed out by this. I still have steriods for 2 more days which makes my anxiety worse. Glad to see the back of EC and hoping Dicetacel will be kinder. Im bracing myself for a bad 3 or 4 days now.

Your right its nice to have woman understand this shit is hard xx

1 Like

Hi guys, is there anything i can eat/drink to boost my neutrophils like fast? Thank you x

1 Like

@sam1204 ….. one for you to advise, as you are the Queen of this! :growing_heart::growing_heart::growing_heart:

1 Like

@cheltjojo79 Hiya :waving_hand:t2: … no, it feels that there’s not many of us TN ladies so it’s always lovely to say hello to a fellow TN :heart: … I’m on my third week of weekly chemotherapy (Paclitaxel) … the first week I had Paclitaxel, another chemotherapy drug that I can’t remember the name of, plus immunotherapy … so, my next ‘Triple Whammy’ as I’m calling it, is next week … so far, so good if I’m being honest … the Filgrastim injections have given me red, angry-looking acne-style spots and inflammation on my face, but I always wear make-up so that’s covering it well … plus a rash all over my hands/arms/torso, but it’s not itchy and I feel fine so in the grand scheme of things … I’m not bothered by it! My Oncologist checked it out on Tuesday before my treatment and she’s not worried by it … so if she’s not, I’m not! My hair started shedding yesterday … I have a short, pixie cut anyway (I have for years!) so I only noticed when I was styling it as it was sticking to the wax on my hands! :rofl: …. I’m working from home, keeping active …. I’m not naive to think that this is the way it’ll be for the next 29 weeks of chemotherapy and immunotherapy - but - I can’t complain so far …

I hope that you’re doing ok :growing_heart: - keep in touch - Kerry :grinning_face:

2 Likes

@catlover2 here’s my list!

100% cocoa - big spoonful every day any way you can get it down you (smoothie, hot chocolate, several brownies!). Plus a few squares of at least 80% dark chocolate daily.

Protein - I don’t eat meat or fish so this is a challenge for me, but just make sure you have a good amount of protein at each meal. I major on eggs, tofu, nuts and seeds (2 or 3 different types per day), cheese (cottage cheese is high protein but don’t go for the low fat as it tastes awful and has less protein), at least 5% fat Greek yogurt (has more protein than other types), beans and pulses.

Fruit - major on kiwis, pomegranate, cherries (fresh, frozen or dried), cranberries (dried, frozen, juice), blueberries, citrus fruit.

Other things - turmeric is meant to be good but I’d say don’t go for a supplement just try to cook with it (dhals, soups etc). Green tea (I don’t like it so I’m not very good at taking it!).

Other people may have other ideas to add but this list comes from fairly extensive research! And it’s working for me so far :crossed_fingers:

3 Likes

This article served me very well but I do think there can be a random element to it too as we’re all different. That said papayas saved my gut on EC xx Foods to Boost White Blood Cells (Immunity) - Ironwood Cancer & Research Centers

3 Likes

A good way to get turmeric in you is to find a Golden Milk recipe that you like. Recipes include milk of your choice, warmed up with added turmeric, ginger, cinnamon, a pinch of pepper (this is important to absorb everything) and then maple syrup or something to sweeten it. Ive still not perfected this but it is lovely of an evening before bed

1 Like

I have only got 70% dark choc but it tastes bloody awful! But if it works im eating it ha. Thank you x

1 Like