Thanks @demimiray . I know, you’re right and i don’t want any more side effects thanks. I’m hovering just above 1 which is ok for treatment but if it dips below it’s a no-go. Frustrating as I feel well and don’t have a temperature or anything like that. We’ll see how it goes 
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Do you think you are resting enough? Your diet is 10/10 so maybe you just need a little more sofa time?
My mum has asked me to walk less this time as my neuts dropped so much. It will be interesting to see if being less active helps. Although its not a fair contest as ive had an extra 2 days to recover this time
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Maybe? I have eased off exercise a bit this week, done less than I usually do. I’m just not very good at the sofa stuff, I feel I have so much energy! Probably my own worst enemy 
. I guess I’ll find out.
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Good luck to everyone today. I had my second cold cap EC yesterday with a side order of Zolendeonic acid. No sleep at all last night but hey that’s the way it often is. I’ll be thinking of you and I hope good counts mean success for having treatment this week. They didn’t tell me my blood count just said all good - not sure if I want to know or not
. I did manage a little walk afterwards but I get the idea of not doing too much - it’s hard though isn’t when you’re used rushing around ! Heartburn and acid been pretty bad so I now I have some Lanzoprazole to add in to the mix. Lots of love and positive vibes to everyone at all our different stages and in managing the range of glorious side effects
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I dreaded round 2 
very emotional so glad it’s behind me and good to hear that might not be the case next time - hope all goes well xxx
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Hope today goes well for those if is having chemo today. We can do this! 
Hoping I can manage the cold cap with my growing bald patch. Will find it very hard if I can’t.
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In the chair, got my book open already.
Neutrophils are 3.3 today, up from 2.2. I definitely ate better this time adding the magic cocoa powder and lots more fruit (kiwi/pinapple specifically), I walked a bit less also but ive got 2 extra days so it could just be those helping recovery.
Big hugs to all 
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Good luck all for today 
you’ve got this 
@foxgem all that good food must be helping I dread to think what mine will be after all the easter eggs I may have indulged in 
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Great news @foxgem 
! Well done and hope it all goes well today 
Good luck to all the Infusion Lovelies today! Hope you manage cold caps and not too many bleeping machines. Sat in the garden viewing my flaking nails and trying to cover them in good nail treatments and polish - an uphill battle for a normally low maintenance kinda gal! Had some friends visit for a garden coffee - it was lovely to just chat and hang out. Have a good day all.
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Kiwi and pineapple are my go to fruit too ! xxx
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Home after a successful round 3 and loving the fact that the next round will be half way and the end of ec!
Bit of a blip in the care plan… Had my genetics testing back and I have the BRAC2 gene. So now to look into what all that means
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@foxgem I keep trying to remind myself knowledge is power. The more we know the better armed we are to move forward with a bright and exciting future of good times. Sending you a big hug. Xx
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That’s big news - it’s gonna take some time to process. I also found out I have BRCA2 because of the cancer diagnosis, it came a couple of months after my initial diagnosis too so it felt like a whole 'nother sucker punch.
One good thing is you don’t need to do anything about it right now, you can just take time to process. There’s no need to rush into any decisions.
Sending you much love today - it’s not an easy card to be dealt
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Definitely take some time to process and find out more about what this means for you. This feels like a curve ball I guess but as was said knowledge is something to work with. Sending much love xxx
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Be as kind and gentle on yourself as you can @foxgem .
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Back home after six hours. Oncologist has ordered all infusions to be done at half speed with extra infused steroids then extra steroid tablets to take. Three days normal post chemo steroids then five days of prendasolone plus daily antihistamines in the hope that will stop my skin from flaring and my immune system from going nuts. Nurse watched me like a hawk and was constantly checking for allergic reactions.
Got handed the blue steroid card which has not made my day. Nor did the advice to be xtra careful around anyone who may have any type of infection. Looks like two weeks stuck at home with careful walks when it’s very quiet. Bloody atopic genes can go and do one.The only highlight is the eczema pjs I ordered are now on route. I left with two bags of drugs and emollients from the pharmacy.
So fed up with this but accept that the oncologist really is doing all they can to make the next four treatments pre surgery as bearable as possible.
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Ah @foxgem that’s a bag of s**t. So sorry. I don’t know anything about it but I hope it’s not all bad. In any case you’re rocking the chemo atm and bucking the neutrophil trend so all the signs are positive for you . Hope you sleep and have an easy post treatment night
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@wibbles at least you know they’re on your case and looking out for you regarding management of your side effects. Would be worse if they didn’t care. What antihistamines have they given you to have at home? My skin is so much better after mine so hopefully same for you . As someone who’s never far from neutropenia I sympathise with the “avoid people” card you’ve got. But at least the weather is better and you can still have a life just need to do more of it outdoors. I’ve been moderately careful rather than uber careful and touch wood I’ve not caught anything yet. Am sure you’ve got this
It’s carry on with daily cetrazine so far. Oncologist will review steroid dose in three weeks based on what my skin decides to do. I can assure you any problems and they will hear from me even though the phobic reaction to being in any hospital is still very much work in progress with trauma counsellor. Today l handed a list of side effects to the oncology nurses as l was too much of a wreck to speak. They managed to locate latex free dressings and allowed me to use an old pure cotton pillowcase washed in sensitive non bio over the pillow and absorbent mat they normally use. Go on guess whose skin reacted badly to said mat last time….
At least the people in charge of the chemo unit know my trauma response to any beeps etc is beyond my ability to manage on my own and allow my husband to stay with me as l trust him and he is about the only person who can talk me off the ceiling and knows what the trauma counsellor has been using to help me reground.
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