What a shit show @joodles 
. Sounds like terrible communication, and no help or comfort to you as no explanation. Absolutely rubbish. Iād be so cross. Hope you still manage to enjoy the weekend 
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Two weeks off chemo and Iām being super careful with carbs and doing way more exercise now, but Iāl definitely take fluid retention as something to blame for my extra 2kg 
.
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Thatās extremely unfair to get yourself all geared up only for it to be moved without you knowing! Hereās hoping the consultant can give you some answers. A delay seems reasonable but is a 2 week delay necessary?
Steroid high is less than with EC. I come home exhausted by the day so fall to sleep but awake with the birds by 3am 
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@susie2cute i am the same water tastes like metal to me
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My mouth feels very slippery today. Ive got some mouthwash at the ready, will use it a few times today I think.
Hydrate, hydrate, hydrate. Thatās on repeat in my head. Oh and stay away from cheese
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Spoken to consultant - they are putting me on a Nab-paclitaxel infusion - hopefully less reactions. Also itās three weekly so donāt have to go in every week which is much nicer in my opinion. My next infusion is 4th June but just get to rest and regroup until then. Really pleased. 
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Nab is less likely to cause adverse and slightly delayed adverse reactions. It was the reason my oncologist switched me to it.
I did not get a break from the drug I kept reacting to and went straight into trialling nab. It has a protein carrier unlike ducataxel and paxitaxel but costs a lot more so your oncologist may have been arguing why you medically needed it.
TBH nab less than a week after three adverse reactions absolutely wiped the floor with me so l am glad you get two weeks between for your body to recover. Nab tends to run very slowly. ( My nurses describe it as having a consistency akin to wall paper paste) till the oncologist is sure you are okay on it so plan to spend the whole day in the chemotheraphy unit.
Hope the drug change suits you and proves helpful.
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Hey everyone! Just catching up on the thread, @joodles that sounds really annoying but with a slightly better outcome for you at least! Bit of time for more healing and you can enjoy the bank holiday weekend feeling hopefully better than you would of if chemo would of gone ahead and what beautiful weather to sit out in the garden (under shade of course 
)
Whatās everybodies plans for this lovely Bank Holiday weekend? Iām working for a few hours this weekend, having a nice family Bbq on Monday (might put mine in the over to make sure itās cooked thoroughly) and getting the pool out and then the penultimate chemo on Tuesday kids are off for 2 weeks so lots of family days out planned too 
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Crikey @joodles - that sounded like a nightmare day 
. Glad though that you have a resolution and one youāre happy with. A few weeks break to let your body recover sounds what you need.
Glad you got your infusion @faxgem - so strange what it does to taste isnāt it
I have been and still am wiped out from Docextaxel on Monday. Very fatigued but canāt sleep and indigestion but on the plus side my hands are doing much better! Just started on all the meds they gave me plus injections so my weekend is to do what I can and rest when I have to !
I seem to have lost a little more than 2kg - not sure how thatās happened (maybe the indigestion as had to limit what Iām eating) but it has been steady over the last 2 months so not too concerned and will no doubt put it back on again due to all this fatigue !
I hope everyone is ok this bank holiday and can have some rest and respite from the treatment cycle lottery xxxx
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Happy bank holiday all @katie91 your plans sound wonderful enjoy every second
Iām going to avoid the sun as much as possible especially as Iām only 3 days after my infusion. And as a ginge I dont want to push it haha
So I havent got much planned but waiting on the paclitaxel pain although so far so good. My red tomato face went down very quickly this time. Hereās hoping the gallons of liquids I drunk made the difference. Feel silly that my bad round 5 could have been my own fault for not hydrating
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maybe some pottering about gardening in the garden when itās cooler. Lovely DS has filled two large pots so I can plant up sweet peas when I have a bit of spare energy. feeling inspired after watching a lady with cancer on gardeners world (episode 10) Doing some knitting, reading now my new glasses have finally arrived and I can see again, and starting to do simple watercolour sketches again. Discovered I could not only face but actually enjoy Tescoās VEGAN tomato and basil soup again. FIrst thing I have been able to eat in three days. oranges now taste okay so I have bought some frozen Del Monte orange juice ice lollies ( no sweetners or added sugars) and maybe I can venture into a basil tomato and Italian cheese salad for lunch. carbs still make me feel very sick so younger DD bought me home some Rice Krispies to eat instead. hoping this time round I can eat some veg and fruit that it will help for the next bloods. Tofu is okay and milder cheese and the occasional egg but meat is blarg and I cannot face fish. this time round I am craving tomatoes. How I have missed them.Found they are easier to digest if grilled and then cooled before making into simple meals. for those able to face BBQs have fun.
thank you to whoever it was who suggested Greens Ginger and lemongrass cordial, that and fever-trees three ginger ale mixers (150ml small cans) are helping along with the hospital drugs.
Whatever your plans over this coming weekend I hope it brings you some joy and you all get some moments of fun and smiles.
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@foxgem that is an easy mistake to do especially when you feel blarg post chemotherapy and everything tastes weird. Aim for a little more hydration over this coming bank holiday weekend if you can as itās going to be hot and your body will need more to cope with the combination of heat and chemo.
TBH just have a range of none alcoholic drinks, ice lollies and all you can pick from and see what helps this time round.
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Pacs pain is the worst 
Honestly the only part of me that doesnt have lightening bolts going off is my hands and feet. Fatigued and slow moving. Scared to eat because the plumbing has stopped and I dont want to risk any pain in that respect. Not much fun but distraction seems to help. Iāve started a Paint By Numbers canvas my mum bought me.
I hope everyone else is having a better bank holiday
Tomorrow I have a meeting with my doctor/surgeon to discuss my next steps after chemo. Due to my wonky BRCA2 gene I will opt for a bilateral mastectomy and I am hoping this can happen sooner rather than later. I have no idea what to ask or what to want. Hoping to just be lead by his expertise.
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Sending you love Foxgem doesnt sound great.
You are over halfway through now and youve done amazing
Im having a sofa day today as Im just exhausted.
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@foxgem That sounds like A MEETING! I make lots of notes, keeps me thinking and focused plus husband is an extra set of listening ears. I am sure they will have lots to tell you and will have reviewed your specific circumstances, it will be food for thought and I donāt doubt someone on here will have been through the mastectomy mill before for top tips. I hear you on the bone pain - that was me last weekend for four days. I hope it abates soon. Xxx
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Not sure if itās todays heat plus inherited red headed skin plus chemo on Weds but agree, today is being extra painful. Resorted to paracetamol and collapsed on my bed only to wake up an hour and a half later. Mil is still in hospital following last weeks stroke. DH and SiL have told me not to go and see her as she is being very aggressive, attacking staff and throwing anything she can get hold of at anyone who comes near her. In honesty l hope this ends sooner rather than later for her sake. I have no idea how she is still here a week on.
Then l went down the rabbit hole of having a SMX and auxiliary lymph node clearance at the end July/ early august after another ultrasound next week and I think it all just got way too much. Decided today is one of those days.
Yesterday l managed to get to TKMaxx and bought a couple of lovely silk scarves that can be wrapped over bold beanies, a new 100% cotton duvet cover and looser sleeved button fronted pure sheer cotton pjs. I even managed a coffee and cake out with DH at the independent coffee shop whose hygiene l trust.
Today must be one of THOSE days. sigh
@foxgem do what you can with the hand you have been given for today and hopefully tomorrow will be a bit better.
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Good luck with that meeting @foxgem . All you can do is listen and be guided but do ask questions and then do use this forum (there are loads of threads on surgery too) to help. I had a single MX last November and tbh it was the easiest of all the treatments Iāve had. For me anyway. Try to keep the whole bloody thing in its box and enjoy life as much as you can
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Has anyone else really struggled with the heat today? My temp shot up to 37.9 so I panicked, but I was also sweaty, dizzy and panting like a dog. Had a cold shower, big cold drink and lay in just my pants on my bed! 
An hour later it was back down to 37.1. have kept an eye on it and itās been fine since.
Did a quick bit of reading and discovered that chemo makes it difficult for your body to regulate itās own temperature. Apparently weāre prone to rapid overheating because of it too.
Any tips for staying cool? The kids were in the sprinkler today, would have joined them if not for having a PICC line!
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The heat is killing. ice cubes in a washing up bowl filled with water to dip feet into is nice. Also I put freezer packs in any trouser pocket i can find and also just place down my tee-shirt (down place direct on skin, wrap in cloth), this is great for keeping cool.
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Ive been a vampire the last couple of days. Curtains closed/blinds down haha none of them are black out so its not pitch black but other than a quick trip to asda ive just stayed home to stay cool. Cold drinks, a fan and tv/crafts
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