carolyn1709,
can i ask what grade the lump was and was any nodes affected. was these mentioned as part of criteria?
Many thanks TTM xxx
Hi TTM
lump was 35mm invasive lobular cancer, no lymph affected and grade 2 but kept changing to 3 but think that was because of affects of taking Tamoxifen during treatments. They said all this and age affected criteria. Hope this helps, but remember it seems that every hospital decides different things.
Don’t worry yourself too much Knoxybabes as I reassure myself with the fact that they are the professionals and know what they’re doing. Will think of you tomorrow and make sure you keep us informed.
Hugs to all
Carolyn xx
Got my letter through this morning for 1st appt with onc next week, think that until this arrived I was in denial and am now thinking SH** this is really going to happen.
Carolyn - like you, thought of losing eye brows and eye lashes - dont we deserve some dignity going through this. Its not something we asked for and we seem to be punished every step of the way [I sound a little bitter but …]
TTM hope all is well, not seen or heard for a few days and was getting worried - take care xxx
Am hoping Leicester offers cold cap treatment, would like the chance to try it. Am thinking of wig styles, always wanted the Cleopatra look so maybe this is my chance.
Love to all out there going through this experience [apparently its character building - my character was fine as it was] xx
caroline
Thanks for sharing i have decided to go for oncotype DX and then decide
Carolyn are you being treated at Glenfield. They are a big centre so may do cold cap
love poppy x
Hello Ladies,
EBHippo and PoppyD are you both being treated at Glenfield Hospital.
Knoxybabes, hope you are feeling a bit better as the day has gone on, will be thinking of you tomorrow.
EBHippo, I know what you mean about being in denial, thats what happened to me when my letter came through the door.
I should be starting chemo either at the end of Feb or beginning of March and am so scared.
Deb xx
Hi ladies I continue to love all your comments.
No not being treated at Glenfield, could be different part of the country. Although registrar waffled something about cold cap I’m hoping to find out more, and maybe even digest more info when I go to chemotherapy for first visit.
Think it’s actually hitting home now and have even made the decision to look at wigs just in case, although weirdly all that does is make me want to giggle! Did have a bit of a laugh ( which at these times can sometimes be thin on the ground), read on one thread somewhere that they had always wanted a cleopatra style wig so that got me thinking I always wanted to look like Crystaltips from the tv programme Crystaltips and Alastair when I suggested to oh I got a very definite NO! and that’s without running this thought past my grown up daughter god only knows what she would say?
Love to all
Carolyn xxx
its me that thinking of cleopatra
been at glenfield so far but think chemo is carried out at the royal
Hi EBHippo,
I had my op at Glenfield and starting chemo soon at the Royal, where abouts in Leicester do you live.
Deb xx
Hi All,
Carolyn a Crystall tips wig would be amazing!! lol
I feel really low today, I have Onc appointment on Monday and its all starting to feel too real - I feel like I’ve coped really well so far, but I’m not sure I can manage chemo.
But the posts on here really do help, from those who are going through it at the same time, and those who are coming out the other end, so thank you.
xxx
EBH Hip and Deb
I am not in leic but not far are you central to leic or out in the sticks
have been to glenfield for some of my treatment dont know why but it feels good to know that you are not too far away
good luck with your treatment
our paths may cross
lots of love
poppy x
Deb i know its terrifying but somehow you will endure it. I sometimes think these things are influenced by our expectations. If we could find way of reducing stress then body may cope better but easier said than done
Some ladies manage to be very positive one lady on live chat last night called Ruth was doing very well through her chemo
I know i will find it hard and be terrified too which is why i find it so hard to make deciscion
thinking of you
love poppy x
Morning ladies
Caren PM me if you need a winge, chat or whatever.
I met with my friends from work yesterday and that helped, but as one of my close friends said ‘Carolyn you’re still burying your head in the sand’, and she’s probably right but I quite like feeling like this is all happening to someone else and I’m just looking in on it!
Now EB Hippo you have a lot to answer for, as my creative juices have got charging ahead and all sorts of wig styles keep coming to mind:)
Hope all getting results or visiting oncologists are ok today, the rest of you ladies definitely keep me going.
Love to all
Carolyn xxx
hi Everyone
got resuls yesterday got to have another operation but then chemo and radio
hope you dont mind me joining i should start chemo end of march i was hoping i didnt need it but unfortunately i do im so frighten of starting it
lots of love tracy x x
Hi everyone - just popping in from February Chemo to give you positive thoughts. I had my first session Wednesday gone and it honestly wasn’t as bad as I thought - I was terrified of sickness but it hasn’t happened - just make sure you take your anti-sickness tablets even if you don’t feel icky and my best advice is to drink as much water as you can - try for 2 litres - after chemo - i think it works the chems out of your body a lot quicker.
Ask any questions you want to!
Love and best wishes!
Jan
x
Hi Everyone,
I start my chemo on March 1 and I’m getting what’s called “dose intense” where I get two full courses of treatment in the space of one. The first is epirubicin and cyclophosphamide for three sessions and then another three sessions of Taxotere. Essentially I’ll be getting double doses so I’ve been warned it’s going to be tough.
I’m hoping to be able to work during part of it but I guess much depends on the side effects. Unfortunately I’ve got lobular invasive cancer and it was a large tumour with seven lymph nodes affected so they have said they are throwing everything at it. After this I get radiotherapy and then Arimidex.
Yesterday Breast Cancer Care put me in touch with someone who has already had similar treatment and it was great to hear how she dealt with the side effects, which have been my biggest concern. I’ll be talking to her again next week after I’ve seen the pharmacist.
If anyone wants to talk their treatment over like this then just ring the helpline, they fixed me up with someone in just a few hours and I feel very reassured as a result.
KC
Hi KC
Snap had call today to say visit suite on 29th then start first course on 1st. I too have invasive lobular grade 2 or 3 they can’t seem to de die, but luckily no lymph nodes affected. Been told it’ll be FEC so maybe not as harsh as yours. Again snap then it’ll be radiotherapy and Tamoxifen for me. God it’s hit me like a sledge hammer so sharing with everyone else makes it more bearable. Think I’ll take your advice and ring BC nurse.
Carolyn xx
Hi PoppyD,
I live very close to the centre of Leicester, are you having your chemo at the Royal Infirmary.
Deb xx
Evening ladies
I haven’t been on for a couple of days, so have just caught up with all your posts. I had a really bad day yesterday. My lovely cat, Patch, who is 18, has been off colour this week so I took her to the vet yesterday morning. Can’t believe it really, but she has cancer! Come out in sympathy with me! Nothing they can do really, she has had a steroid injection which has given her a boost, and she may be able to have steroid tablets iif she is gettting on ok, but in reality she is nearing the end of her life. I am really sad and upset. I had thought she would keep me company when I am having treatment, joining me for duvet days, but that wont happen now. This is a very trying time in my life!
Carolyn and KitKat, I too have invasive lobular cancer, grade 3, 57mm. I am having exactly the same treatment as Carolyn, not as intensive as KitKat. I am 51 and was told that I am also young to be going through this. Don’t feel it though!! Carolyn, I think you just have to deal with things the best way for you. That isnt really burying your head in the sand, its just adapting to the situation as you go along.
My first session is also 1st March, looks like there will be a few of us going on that day! We can all hold hands virtually to give each other strength and positivity!
Good luck everyone,
Joan x
Ah Joan bless, yes we will all definitely be holding hands together. So sorry about the cat, animals often share confidences more than people.
Love to all
Carolyn xxx
Thank you Carolyn, that’s sort of how I feel about her. Its like she is taking my cancer away from me, but I feel silly saying that!! She is always around me when I am at home, under my feet or on my lap. She is a gorgeous girl!
Hugs and xxx
Joan