Pachit - I really don’t understand how they decide on treatment - I had one lymph node effected but only had lumpectomy not mx ! I worry when I don’t understand ! X
I’m having 3 Fec then 3 x tax plus rads and tamoxifen. I shouldn’t wind myself up about things I know nothing about
In bed now so goodnight all xxx
Hi Joan. Last of the FEC for me too this week. Wonder what the Tax will be like for us. I’m hoping it’s better than the FEC as I’ve hated the nausea. I find the day or two before treatment starts a bit low as I dread starting the cycle again! Horrible knowing what’s coming & that I will be out of action for so long. All I can say is that this treatment had better bl**dy work this time. Don’t want anymore recurrences.
Will be hard saying goodbye to hubby in the morning. I wish he didn’t have to work away but he’s lucky to be working ( was out of work for two years previously) so shouldn’t really complain. We talked a little about a career change for him to get him back up here. We need to try planning something as we both hate being apart.
Suppose we ought to be heading to bed as his alarm goes off at an early hour.
Hugs
Twinky x
Good evening Ladies, hope everyone is ok. Have spent most of the day in tears today. A benign tumour that I’ve had for years in my pelvis has suddenly decided to give me loads of pain. On top of everything else it has been too much (with the exhaustion and nausea from chemo last week). Hubby has been really upset as well and I just feel so bad for him. Its hard coping with one thing and I’ve had a lot of operations, everytime I go to speak I’m in floods of tears. Sorry to sound so depressed but this site gives a lot of encouragement and is a really good place to vent your feelings.
Hope everyone has a good night
Bettie xx
Evening ladies xx
I haven’t read here again soz…been writing me notes for tomorrow…dreamt the ONC said i only had 3 days left!
I’m not even on chemo yet…and i went to wipe my nose on a teabag as i was going to put it in the cup…would i have used it i wonder …if someone i wasn’t keen on was here!!!
Remember when i treated the OH to a massage for his b’day…i had one too! well my OH was telling his daughter…and she said to him…you didn’t go THERE did you? …Its a ‘knocking shop’ …well i thought it was a bit…raunchy looking when i went in…but it looked ok! So i’ll have to discreetly ask about on that one! lol
I hope the ONC hasn’t got a second job!..
Night all
Dulcie xxx
Bertie - let it all out x tomorrow will be a better day x hugs and good vibes coming your way
Ceej, think I had an mx coxs the tumour was 57mm.
Twinky, it must be hard for you to be apart. Hope you can get something sorted out soon. xx
Bettie, sorry you are feeling so low. Its good to be able to write everything down, I find it really theraputic. Hope you feel a bit better tomorrow and hope the pain in your pelvis is better. Dont feel bad for feeling low, we all get those times but tomorrow is another day. Lets hope its a good one! xx
Hugs to all
Joan xxx
Evening all
Hi Smilesnic glad you found us ok.
Rae, I had a portacath fitted 3 weeks ago tomorrow. I normally heal quite quickly but have found that I have not healed very quickly this time round so can only assume that is another SE of the chemo.
Initially I found it a little bit sore the first two or three days and struggled to lie on my left side, I think that is mainly due to the fact that the portacath is just above my right boob (cup size E) and the weight of the boob drags on the scar. No problems now although I occasionaly get some nerve twinges, I don’t think I helped by doing some gardening a week after it was put in as that made it hurt again.
Several of us on this thread have had one fitted and some have even had them used. Mine will be used the 1st time next monday - bloods willing. As well as the incision iover the actual portacath, some people have small incisions on the neck where they find the vein, mine ie about 2" long and lies under my bra strap so once clothed it can not be seen. Hope your op goes ok - Chocciemuffin recommends them to others if they can get them.
Molli43 glad you are finally home
Good luck to all those having their 2nd or 3rd treatments this week, may your SEs be minor.
Sleep well and sweet dreams to all xx
Hi Pargayan,
Thanks for the advice. They want to use the mine the day after it is fitted so are leaving the access needle in (or something like that).
I think i may have the same problem as you re: weight of boobs, so thats good to know.
Fingers crossed all will go well.
I am glad yours has settled down now. 
Rae
x
Oh and good luck to all having treatment this week.
I’m still getting used to being blad…i dont like it! 
I hate looking at my reflection now… i miss my hair…
This bl***y cancer makes me so cross some times!
grrrrrrrrrrr
Love to all…moan over
Rae
xx
Morning ladies,
I am feeling a lot better this morning just very tired and the antibiotics have given me thrush,I am on oral antibiotics now for the abcess I had on my scar it just fire on and on.
I am string the oncologist tomorrow and I hope they can delay no 2 ad I don’t feel mentally it physically ready try need a few me days to feel slightly normal.
The worst bit about all this is my husband broke down and sobbed at the hospital he was so worried about mro.he is not generally emotional in tony of me but a friend of mine left the hospital on Saturday and said he wad really upset,it really affects us all in different ways.good luck to all having treatment this week. Debbie x
Glad to see you are on the mend Mollie (altough it does seem to be one thing after another for you). Bless you. Sending you a big hug.
RE; hubby, i know this sounds odd but may be it was good for him to cry. An emotional release. I would be more worried if he were bottling it all up.
Glad you feel better.
Rae
x
Morning everyone.
The sun is out in leicestershire but its very chilly round the neck and ears.
I have woke up today (6 days post 2nd fec) and feel like I’ve had a kicking while I’ve slept. there isn’t one part of my body that is not hurting and that tender it hurts to have anything touching me. Every gland in my body also seems to be swollen. just wondered if anyone else has had this sort of se.
Speak to you all soon.
Enjoy the sunshine x x
Moring ladies,
Have lovely sunshine here in Norfolk at present, although a tad breezy. Think I will potter in greenhouse today, as keeping myself away from people and germs this week.
Amylou- it may be worth phoning you help line to get advice, especially as your glands are swollen, I had a sore mouth and throat , but it turned out to be thrush rather than infection, but they didin’t mind me checking.
Patchit - yes at times my scar resembles the Sahara desert.
Mollie- gald you are feeling alot better, hopefully you can get something sorted for your thrush, As Raechi said emotional release is good and everybody has limit, My hubby has only cried once , that I am aware of and that is whern I was told it was cancer, so that was back in December.
Bettie- hope you are feeling a bit better today and your pain has eased. It’s a good place to vent your feelings, Big Hug.
Ceej- I had mastectomy and they took 33 lymph nodes but only 1 had cancer, then I am having same regime as you. I am 44 so don’t know if that is a factor. Have still got eyebrows and eye lashes!!!
Angelherts- love the pic of you and your wig.
Peanut- hope you are doing ok, hopefully the cafe is busy.
Hugs to all I haven’t mentioned and that we haven’t heard from for a while.EBHippo hope you are doing ok and sorted for the wedding.
Jane
Morning lovely ladies
Been up a while but feeling more human now that I’ve showered and wash my stubble. Hair washing is a breeze now and that’s a bonus when we’re not feeling quite so good. Daughter is on her way, she left me a text at 9.30, so should be here around 2.00pm. We’ll have a big hug and a few tears no doubt but that’s all part of it. We will be speaking to our other daughter on Skype whilst she is here so that will be interesting. They tend to hit off one another with jokes and laughter and with the delay in transmission it can get a bit mad.
Amylou29 - Can’t say that I have felt like that but have found that the back and front of my neck has felt tender. It has settled down now but don’t know if it’s the chemo or injections. I agree with Marie it would be worth giving the Helpline a ring and check your temperature, if you haven’t already. It may all be nothing but they will be able to advise. When I have had to phone them nothing was to silly or any trouble. They would rather you do that than leave something worrying you and feeling horrible.
My husband gets upset when I do because we are both very sensitive people. He said he feels helpless and thinks that he should be able to do more to get me through this. He couldn’t possibly do more than he already does and gives me so much support and encouragement.
Hopefuly, all the ladies we haven’t heard from in a while are doing OK. Anyone having blood tests, chemo today/tomorrow hope everything goes OK for you.
Angelherts - Great picture and wig. Mine is covered up on its stand again and will no doubt show it to my daughter sometime during her visit.
Bye for now
Beryl XX
Hi Everyone
Sun is shining in Blackpool today so hopefully we will have a busy day.
Kitcat- I also feel exhausted and forgetful, OH keeps saying i am repeating myself so you are not alone!!
Angelherts- hope the nausea settles for you, awful isnt it. They only gave me Metoclorpromide after chemo and when nausea was bad the helpline organised Ondanston for me which was much better. Ring and ask for something better. Other ladies on here have had Emend, I believe is is expensive but that should not matter. Good luck, thinking of you.
Ceej- My onc told me if I had chemo I had an 85% chance of living beyond 10 years and if no chemo the odds were 65% of not surviving 10 years so no contest really.
Bettie- Hope your hip gets better xx
Dulcie- Good luck with Oncologist appt, thinking of you xx
Mollie- Its good for your hubby to cry, am sure it helped him also. I always feel better after a cry because you realise all the pent up emotions and you can then begin to think more clearly! Works for me! Hope you feeling better? You have had it tough xx
Beryl- Have a great time with your daughter, mine gone back today so had a little weep this morning, missing her already xxx
My thoughts are with everyone on the forum
Best wishes
Mary P xxx
Mollie43 i hope your feeling better…please take good care of yourself and dont ever delay! xxx
Hi Twinky was your BH Monday a good day?
Hi Kittyqueen dont pick the spots!
Beryl has your tum settled down now? and did you have a lovely time with your daughter? and you have the funeral Thursday of your dear friend…
Hi Smilesnic
Hi Waitin too
Megsmum i hope you are enjoying your hols?
Hi Poppy are you ok?
Hi Fitter
Hi Raechi i would love to visit Suffolk
Hi Kitcat good luck for Thurday sorry your not well!
Angleheart hi
Chocciemuffin hi
Care-n hi
Kojak hi
Chascat hi
Hi Marie67 Jane
Ceej hi
Patchit Joan hi
Beettie hi
Paragayan love your dog…what a character!
We have just had a message …my OH’s mum has had a fall and broke her hip…she is nearly 98 and they are going to operate…
Oh what a day!she in hospital and me at the ONC’S…we will have to go up and see her after our apt this afternoon …the OH feels everything is falling apart.
Bye for now
Dulcie xxx
Hi everyone
I am still trying to work out who everyone is and am so impressed by the support you give each other.
I am on day 12 of my second FEC and just starting to feel more normal. It is so much easier to be positive when you feel better!
I too am beginning to wonder what the T bit of the treatment will be like but in some ways would rather just face it when it comes!
I have had a portacath fitted and although pretty uncomfortable at the beginning now makes everything so much easier and more comfortable.
I have been using the cold cap and apart from the initial pain ( which I take 2 paracetamols for in advance) it is not uncomfortable and seems to be working as my hair is now thinning but still hair!
I have a wonderful hubby who is coping really well with me out of action for so long and I think more relaxed this time round as we both know I will have some good nearly normal days I also have 2 grown up children so get amazing support from them and an 89 year old mum who lives round the corner. We have been feeding her daily prior to this but now have sorted meals on wheels for her daily which to be honest I think she prefers!!
I am a supply teacher so I don’t have any pressure to get back to a job but also don’t get paid although I am apparently going to get SSP which will help.
I also have a beautiful Finnish lapphund dog and a lovely lady who is walking her for us daily at a reduced rate so when she comes back she is happy to just lie and sleep!
Well that is loads about me and I am sorry I haven’t commented much on all of you but I send you my love and support and hope in time to be able to get to know you all better
Morning ladies
Wow lots of post to read through.
Rae you’ll soon get used to the hair, I actually prefer sitti g with no head covering and fund the wig hot and itchy, but I’ll have to get used to it when I eventually go back to work.
Hope you’re feeling ok for tomorrow Caren, must admit I’m not looking forward to my 3rd on Thursday, feel like I’m goi g down with a cold so dreading any other side effects.
Enjoy your precious time with your daughter Beryl, I’m sure you’ll have a great time.
Thinking of you today Lydia, fingers crossed all goes well with hubby.
My love goes to all of you having treatments this week, I should be glad I’ll be halfway through by Thursday but the thought of another 3 still to go yuck!!
Weather now getting a kittle cloudy here in Hertfordshire, hope it’s better for others in different parts of the country.
Love and virtual hugs to all. Sorry for nit mentioning everyone, so many now, but also welcome to our newbies.
Love Carolyn xx
FEC-2 seems to be worse than last time, still feeling sick and on day 7 now, feel like a failure if i have to phone for more anti-sick tablets, am so fed up with it.
Am much more tired too, went to bad at 8pm Saturday night and slept through till 8.15am Sunday morning - then went back to bed for an hour Sunday afternoon - i normally survive on 6hrs a night and it’s frustrating the hell out of me that I can’t carry on as normal. My poor husband doesn’t want to speak to me in case I snap at him and i just want to cry
Sorry for being a misery, will post again when I feel better x
Hi lovely March ladies,
I’m with you Kojac - FEC 2 is worse for me too - I feel ill and as there’s nothing you can do about it until it passes I think that’s what is really frustrating. A friend came to stay for the weekend to look after me as my daughter went back to Manchester but in some ways I’d have been better on my own! I feel very ungrateful but just want to get through each day -at least I know that by Friday I should be feeling human again!!
The last of my hair is on the way out now - I’m totally bald around the edges - I suppose where it rubs on the pillow - but on top still have the tufts from my hairdresser cutting it to about 1/4 inch all over. Looks particularly weird and very unattractive but I do like my wig and it’s comfy and at the moment not itchy or hot.
I couldn’t stop eating yesterday although I didn’t really enjoy anything very much - it that the steroids d’you think? Must try and have a health day today!
I was going to do some work today (from home) but my brain won’t let me so I think I’ll put my feet up and read a good book until I’m back to me again.
Hope you all feel better soon
Jackie xxxx