Marvellous Marchies 2012 Moving on

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1441

Afternoon lovelys,

Feeling a bit better now. Spoke to the nurse when she came to give me injections and she said its a mixed side effect of them and chemotherapy. Taken some pain killers and they seem to be helping a bit. temperatures fine so keeping a sharp eye on it just incase.
Thank you all for your advice.

Looking forward to tomorrow as mums coming over for the day. will be bringing my nephew with her so my daughter will have a play friend. he’s lived with her for the past 4 years, my youngest sister is not the nicest of people(his mum). Feel really bad about this situation sometimes as i always thought the tables would turn as i got older and would end up doing more things for my parents rather than me depending on them for help again like a child. oh well lots of i o u’s for when Im better. The worst thing for me about having bc is not the bc itself but all the hurt it causes the people i love most, the worst feeling by far for me is that I’ve made my parents cry. in my lifetime I’ve only ever sen my dad cry 5 times and 3 of them have been because of me over the last two months.

Sorry, getting carried away now.

Good luck to all having their next doses tomorrow, sorry for not putting personal addressed messages Im very much a scatter brain at the mo.

Love and hugs to all x x x

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Hi Amylou

Only just saw your post re your aches and pains. I had those on day 6 after my first FEC and Neulasta injection. Everywhere hurt from my jaw, glands, ribs, back, legs - horrible.

Chatted to my onc about it who prescribed some stronger painkillers which have really helped. Just injected myself this afternoon as had 3rd chemo yesterday so have also dosed myself up with painkillers!

I know how you feel about making your parents cry. I sadly lost my dad a few years - I saw my Mum cry then and have seen her cry a handful of other times. The news of my diagnosis really upset her, especially as my Dad died of cancer!! She has been a tremendous support though and we spent a lovely day with her on Sunday. She is only 70 so really good fun and great to be around. Would be lost without her and feel for other ladies who don’t have their Mum’s to support them.

Enjoy your day tomorrow.

Jane x

1443

Hi back from my second FEC and so far so good…going to another place miles away to look at wigs. Cancelled my appt with the wig lady at the hospital and told them I didn’t like her. Hopefully tomorrow will be more fun as they have lots of wigs to try. Love to everyone Georgie xxx

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Hil Wolsty and amylou

Yes treasure your mums especially at a time like this. - when I need mine most shes not here - mum to cancer 5 years ago and dad to cancer last year. I would give anything to have the support that only parents can give.

Georgie - good luck with the wig
Xxx

1445

Evening ladies
Amylou- glad you got answers re your aches and pains
Beryl- hope you and your daughter are haveing a lovely time, has Frankie made an entrance yet?
Dulcie -hope you got on ok at the hospital and now have a treatment plan, hope your Mum in law ok after op,was she admitted to same hospital where your appointment was, my hubby’s cousin’s k6 week old daughter has been admitted to Arrowe park with query Meningitis, bless her.
Good luck to everyone who is having chemo this week hope SE’s minimal.
Jane

1446

Evening ladies

I have been to work for a few hours again today. Will go again tomorrow and then its my third treat on Thursday. Last of the Fec for me! I have a really itchy scalp tonight! Think the rest must be falling out. I have been very tired the last couple of days, but I think its probably as much to do with all the upset around my son at the weekend. I just feel emotionally drained and exhausted, which is a shame as this would have been my ‘good’ week.

Mollie43, I hope you have had a better day today.

Amylou, just a thought, has anyone suggested that you take an anti-histamine tablet just before you have your Filgrastim injection? It was suggested to me and it might help with the bone aches, which are probably an SE of from the injections. Just caught up with your later post and saw what your nurse said, I would recommend you take an anti-histamine as well as the painkillers. Have a nice day with your mum and nephew. Sorry to hear you have family problems too. I am sure your parents are glad to be able to help you all they can. It may even help them to cope with your news, if they can help you through it.

Dulcie, how did you get on today? Hope everything went well for you.

Ceej, my son sounds much like yours, although he hasn’t got the excuse of ADHD. He was a lovely boy unit 16 – 17, then changed and is now a total nightmare at 20! I live in hope that he will come good one day, but he may well finish me off in the mean time!!! Good luck for tomorrow, hope all goes well. I am very impressed with your gym sessions! The story about your boss made me giggle! I guess you just had to get on and deal with it! Bless! I too didn’t know the wigs have a name, I just called her Wendy Wig, like my prosthesis is is Bettie Boob (sorry Bettie!)!

Angelhearts, very pleased for you that you don’t have the injections any more. Did they alter your chemo regime so that you would not have to have them? That is what happened to me, I am now on Fec 75, but have to have an extra session of Tax to compensate. Don’t understand how they work it all out really, but I am sure they know what they are doing and I couldn’t hack the injections again!!

Socks, sounds like there are a few of us in the same boat with problems with sons! Perhaps we should set up a separate thread so that we can vent our frustrations!!! Hope you get used to the scarf / wig / hat thing soon! I don’t get many stares that I am aware of. I also live in a village so any news spreads like wild fire! People generally are kind though and for me, I find it therapeutic to talk about what is happening so I haven’t minded people asking.

Jackie, I am with you on the eating thing! Nothing much puts me off my food unfortunately!!

Caren (and anyone I have forgotten!), good luck for tomorrow, I will be thinking of you. I think your appointment is lunchtime? Hope the arm is a bit easier now. I also thought the nails can be affected by Tax, not by Fec.

Beryl, glad your daughter arrived safely, hope you have a nice time together.

Ali68, welcome! Sorry you have had to join us, but pleased to have you along for the ride!

GeorgieB, good luck with the wig tomorrow.

To all the ladies who have had treats in the last few days, hope you are getting on ok and the SE’s lessen for you. We are all heading for the half-way point now, which has to be a good thing!
Sweet dreams!

Joan xxx

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Thank you all for comment about daughter arriving and we having a nice relaxing time together and husband too. We are all going out together tomorrow so that will be nice. First time out since chemo last week. Feel that I’m more up to it now.

Amylou - I had pains from my WBC injections and got the Helpline/my doctor to prescribe me something stronger that paracetamol. They gave me Diclofenic (anti-inflamatory)which worked wonders. I have to take one tablet after food around injection time and another in the evening. Also advised to take two paracetamol with them as well. Since taking them I’ve had no discomfort at all. Perhaps this is something you can ask for to get you through s/e as well.

Thinking of you all and especially those that have just had treatment or going through it tomorrow.

Everyone take care.

Beryl XX

1448

Evening ladies,
It’s so very busy on the forum still, my brain can’t quite keep up, it’s just so fuzzy all the time now. Well I got the dreaded cystitis again this cycle, at the same point as last time as well which made me think it wasn’t an infection (still no temp). Neither the registrar at the chemo ward nor the gp thought it was anything but an infection but I did a bit of reading and apparently it is a problem SE with the cyclophosphamide (the C in my AC) as a byproduct kills of the cells in the bladder and urinary system. Which means two things, one there’s not much can be done about it per than offer abs so that I don’t get an infection, two it’s likely to happen again with this next round :frowning: thank goodness it’s my last AC round (4th one on Thursday and my halfway point before starting paclitaxel) so not looking forward to it happening again. It’s like standard cystitis x a million it hurts so much. Have to see if they can sort something out for me for next cycle. I do hope no-one else has it happen, keep drinking loads throughout your cycle (starts day 10 for me).
On the prognosis side of things my onc refused to tell me when I asked, even when I said I really wanted to know. I went home and went on adjuvant to see what it was, now I know why he wouldn’t tell me. Even with the chemo, mx rads and tamoxifen i only get 50% 5 year survival rate. I just don’t think he wanted to give me bad news, easier not to I guess. I see him for the second time on Monday after my fourth treatment so will ask him again and get him to tell me himself.
Wish everyone well who’s going for dosing tomorrow and all hugs to those with SEs from recent treats, hope they pass soon.
Xxx

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Evening from my bed :slight_smile:
Patchit - yeah my son has always been a challenge since the day he was born - I like you am crossing everything that if I keep trying and be there for him that he will turn a corner with his anger and attitude - he caused real problems between myself and my partner at one point as my partner couldn’t bear to see how he treated me and spoke to me - we actually split up over it until I realised he was right and the only way was for him to go and live somewhere else! He still stresses me but at least it’s not 24 hours a day lol!

Am glad my encounter with my boss made you giggle - my grandson wasn’t sure either when I walked in from work with my hat on :slight_smile:
Parsnip - I read too before I started chemo that it causes cystitis and I had already bought the sachets from the chemist in preparation - I find they do the trick not sure if you’ve tried them. I am surprised at your onc not being straight with you - maybe he doesn’t want to commit as they are so often proved wrong!

Ali68 welcome ! The ladies here are fantastic :slight_smile:
Right chemo bag packed - even hot water bottle at the ready - on my own tomorrow as partner at his home/work and my sister taking me but she’s feeling I’ll so doesn’t want to stay with me :frowning: I’ll be billy no mates ha ha

Goodnight all - best to everyone and their treatment and se’s xxxx

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Evening ladies, a quick posting before I nod off. Better day today with sisters visiting and nieces to go through my hat and scarf bag! Lots of hilarity trying on various things I have bought. I can’t believe some of the awful stuff I have bought, it must be chemo brain. I look completely mad in some of the hats!!

Tomorrow is wig day and big hair cut day so it will be a mixture of emotions. My niece has already decided that I should have a wig called Honey, bless eh… I don’t know what the wig lady (is that what there called!_ will think when 7 of us descend on her. We’re going out for lunch afterwards so that will be good.

For those of you having chemo tomorrow hope it goes ok with minimal SEs and the rest of you have a relaxing day.

Night Night

Bettie xx

1451

Evening everyone.

Settling down for the night after pigging out on sandwiches lol. found some diclofenac in the cupboard from a past complaint so hopefully will have a good sleep. thanks for the advice beryls will let you know in the morning.

goodnight all.
Lots of love x x x

1452

Evening ladies xx
I feel very down tonight …they have found a nodual? in each lung! I wasnt expecting that! they say not sure what it is…but i’m sure its METS…i came away not knowing what day it was…like a stunned mullet…i looked like i was holding my own …even though i was falling apart…
And i start chemo on my birthday very very soon!(and its a special one too) I am having 3…chemos of EC and 3 of Taxotere over 6 months…
No Jane she is at Arrowe… we where at the other one!
Must go make a list of things i need…and get an emergency dental appt. for temporary fillings…
Tips please for my chemo pack…?
Dulcie xxxx

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Oh Dulcie…a massive hug for you. What a shocker. The sooner they start chemo the better but what a shame it clashes with your birthday (and a big one too…21again? ). We’re a here to help you with your journey & don’t forget that there’s the BCC helpline if you want to talk it over with someone

Twinky x

1454

Dulcie,

That’s not a good thing to hear, but they don’t know what it is for sure yet?

You will be getting a chemo cake for your birthday! I had a diagnosis cake as was told day before my birthday I was bc.

Life does throw some S**T at us,

Am thinking about you, sending love

WS xx

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Chemo cake lol… so its moved already …i wish she had said that it is METS…she knows i google a lot …I really am P****d off tonight!
Off to look for a chemo sleep hat…shall i get one with a bobble…very fetching…also they found gall stones…!!! and i might put weight ON!
You really are a lovely bunch …do you know that? I am so pleased i’m with you all on this journey…
Dulcie xxxx

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Hi All,

Kind of feel as though I am gate crashing a well established party!! I am very new to the whole “forum” thing but having had such a rough time since starting my chemo at beginning of march a friend recommended I give this a try so, here I am, lol!!
Guess I should say s’thing about me…I am a 40 yr old, happily married Mum of two beautiful girls aged 8 & 12. We live with our dog, Alfie, 2 cats & 2 chickens in the Welsh Valleys. I got diagnosed at beginning of Jan with lobular BC, stage 2 with a 70+mm tumor. I under went an open incisional biopsy followed by LMX & then 2 wks post MX had full node clearance. I started 6 rounds fec/taxotere at the beginning of March , a 3 wk break then radio. It all has happened so fast & was obviously completely unexpected. I am actually a senior nurse & my husband is a consultant anesthetist so I have found it difficult to comprehend the fact I had this large tumor growing inside yet no idea!!
I have had 2 lots of fec with my 3rd due in a few wks. My SE have just been horrendous, leaving me completely debilitated on both occasions resulting in 3 hospital admissions. Firstly I became neutropenic and the other 2 admissions have been for symptom control. I had my 2nd chemo 8 days ago…had it on the Mon, went into hosp on the Weds out on the Sat & today I am only just feeling back to me.
I have lost all my hair and my eyebrows. My hair began falling out in clumps so after allowing my girls to play hairdresser and cut my hair in to various hilarious styles, I made the decision to shave it off. For me this was the best decision as I found the clumps of hair falling out very traumatic, as did my family. I have actually found having no hair rather liberating and I am certainly much quicker at getting ready! Before it fell out I had dark brown long straight hair that I insisted on washing daily…my husband is a happier man, lol! I miss my hair & hate the fact that I now look like a “cancer” patient but for me the hair bit has not been nearly as bad as I expected.
Well guess that is me, today has been a good day. Lets hope tomorrow will be better or at the very least not any worse.
Night Ladies & hope you do not mind my delayed start on chemo March 2012??!!
Goodnight

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Dulcie, what a massive shame for you starting chemo on your birthday. Big hug for you. Its horrible how things just happen completely out of the blue and turn your life upside down. I’ve just had to cancel a holiday to New York for my 50th and I’ve been so excited for the last twelve months. On the day I’m supposed to have been travelling I’m at the hospital again, some consolation eh… I suppose what we have to think of is the last treatment and then celebrate. I’ve already got a bottle ready. I can’t face alcohol at the mo and I used to love a drink. Mind you I suppose thats not necessarily a bad thing!

Just washed my hair in preparation for wig and hair cut day. Its thinning already. Really hope I can make it into a positive experience but I am sooo nervous.

To all of you having chemo today best wishes

Bettie xx

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Dulcie, just a note, I have gallstones. I was diagnosed 6 years ago, refused an operation and cut out fatty things. I’ve not a twinge since so don’t assume you will need an operation.

Best Wishes

Bettie xx

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Hi Everyone
Welcome to Alli and Jayjay, we are all in the same boat here ladies so please keep posting, it has helped me a lot. Jayjay it isnt easy when you are a nurse!! We have too much info on the bits that can go wrong!! I am in senior managment on the community paeds side.
Bette- I had a G+T on sun when out for dinner with friends, made me feel sick so dont think i will be touching alcohol for a while! I like a drink also!
Dulcie- I am so sorry to hear your news wasnt better, I had been thinking of you yesterday. Ring the chemo/BCN nurses to ask them to explain what the mean by nodules, nodules to me dont always mean they are cancer/mets. Big hug xx
New financial year so have to get my act together to organise my spreadsheets for cafe accounts, usually well organised but cant be bothered at the moment!!
Thinking of everyone having treatments this week.
Mary P xxx