Marvellous Marchies 2012 Moving on

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Hello to all,

Especially those whom have had their 2nd dose today, I do hope you are feeling ok.

Walked into town (and back) today to get pre-chemo bloods done. I am not anticipating anything to be wrong, so I guess I will go ahead on Friday.

The hair is coming out in chunks now. I have had it cut short, I’m so glad I did that.

I have a hat on and a scarf wrapped round it and it looks ok, although is giving me a bit of a headache, and today, strangely I felt sick. which is a bit odd.

My sis and Mum are goin to help shave the head, do you think it will hurt though as my head is very tender?

Thank-you and welcome to new ladies, esp jayjay, who has been so poorly.

WS

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Evening xxx

Beryl… I love your piccy…it’s fab xxxxx

Glad 2nd juicings seem to have gone ok for all.

My brazilian is coming along nicely…bit of a shock…as am probably bit of a prude really lmao…maybe all will change…:))))

ChoocieMuffin… I miss you too…xxx Please keep posting you are such a help xxxx

Am having glass of wine tonight as actually been in work all day and oh has made an aubergine bake for tea with loads of garlic… least the vampires won’t be bothering me tonight…

Hugs to all

Love KQ

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I found that when I had my head shaved it was tender as the hairdresser went upwards towards the crown, but the relief when it was done was amazing. and then she washed it for me which was so soothing, it hasnt really hurt as much since, as I think there isnt so much pressure on the hair follicles? It was honestly a blessed relief to get rid of it in the end!

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Hi Socks

My husband shaved my hair and it didn’t hurt at all, even though my scalp was tender, he did only do it on number 3 so not too close to the scalp, it’s driving me mad now though so think he might have to take it all off over the weekend - he sniggered at me this morning when I got out of the shower, loads of bald bits and then the tufty bits sticking up, he wont do that again if he knows what’s good for him! A few days ago I’d have cryed my eyes out at him laughing at me (although a few days ago he would never have done it) but today I found it funny, how quickly we adapt.

Take care

Love Lydia x

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Gabbylamb,

yes, that is my theory the hair follicles being ‘pushed’ is what’s causing the tenderness.

i will maybe ask my sis to not go upwards; as it were, as is very sore on the crown.

Thanks for that

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Hi Gabby - I must have missed the instruction to drink do much water BEFORE chemo and I certainly didn’t do it yesterday - just hope that doesn’t mean I’m gonna suffer ha ha - am struggling with the water now I really don’t like it and would prefer diet coke with something in it :slight_smile: my OH is Mediterranean and drinks water all the time and he just can’t understand why I struggle with it
Kitty - id love a glass of wine :frowning: - have one for me too !
Winter socks - you’re so brave actually thinking about shaving it! I bumped into my sports massage person at the gym this morning and she said I like your hair short like that - but I’ve another appointment tomorrow to go shorter still - this will be the last one I think - is going to be very short for me but hey ho I have a wig and my fake fringe and two more scarves arrived today :slight_smile: x

Chascat - am like you - feeling I should eat something but I don’t know if I really want it - I’ve spent a lifetime suffering from travel sickness so I’ve always known if I eat something it settles it - but I like the fact this is my chance to eat less lol xx

Beryl - love the scarf - some people can just get away with it - and you can ! X

Franoli - definitely plan to get away - from the beginning I made sure they started my chemo to work around when I’m hoping to go to Turkey on a business trip with my OH - they weren’t happy to start with - but it’s something to look forward to and a complete break from the norm - I say yeah!

Run for life in Coventry ? I know I’ve read the post that someone’s sister is doing it - but cant find it now doh! My daughter and I have been saying for years since mum died that we wanted to do it and this year was going it be it! Now is probably not a good time for me lol! We’re in cov too.

Ok I’m gonna close my eyes for ad bit now - I’m being decidedly lazy by just lying in bed when I feel fine - however grandson did wake us all up at 5am for over an hour screaming - poor mite - teething - but it’s not a peaceful environment ha ha.

Hugs to all xxxxx may all the se’s be minor xx

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Me again - funny as yet my scalp is not sore at all ! Am hoping that’s a good sign :slight_smile: x

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Back again,

new pic of short hair, but most of it gone now!

WS

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Love the hair ! I’m hoping that will be me tomorrow xx

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Gabbylamb… do you know what… think now I have given up the coldcap I agree…will be a relief when it’s gone …xxx

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Wow wintersocks…loooove the hairxxx

ceej… 2nd glass wine for you xxx

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Back from FEC no 3 – half way!! I had to wait an hour for my Emend prescription as ‘the boy’ had forgotten to do it (I thought it would just be with the other meds, but no), then first attempt at cannulation went horribly wrong and I now have a big purple lump on the back of my hand. Apart from that it went really well.

I feel a bit teary tonight, which is very unlike me. It started when the nurse doing the FEC asked me how my daughter had taken it, I managed to hold back the tears then, but have shed a few since… She was very nice but told me she didn’t think her daughter who is the same age as mine would cope with anything like that happening to her. I know its stupid but I feel guilty for putting my family through this.

CM, it’s lovely to see your post – please don’t abandon us! Good luck with the interview, and enjoy your day tomorrow.

Beryl, your scarf looks lovely, I wish I could tie them like that!

I hope you are doing well Ceej, Twinky, Lydia and anyone else who had chemo today and good luck tomorrow Joan, Carolyn, Gabby and anyone else having chemo tomorrow – sorry I can feel the fog coming down as I type!

Love and hugs to all
Caren xx

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Hello ladies,
My OH clippered my hair on a n.o1 prior to 2nd chemo, didn’t hurt at all and felt quite soothing I massaged Aloe Vera gel into scalp. I then expected that remaining stubble would fall out but so far it has stayed attached, and re grown on some of the bald spots, I had an image of having a nice smooth sjiny head!!!
Beryl- lovely pic of you and your daughter. Just want to give you a BIG HUG for your friends funeral tomorrow.
Chascat, and Ceej, hope you both do ok with the SE’s tonight.
Mollie - hope you are continuing to do ok and that they have come to a decision if they are delaying your chemo.
Amylou- hope you had a lovely day with your Mum and Nephew.
Kittyqueen- so envious of you being able to enjoy a glass of wine, my stomach is definitely not up to that yet.
Parsnip and Gabbylamb- hope all goes well tomorrow.
Hugs to all that I have missed
Jane

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Hi hope everyone is ok. Wig day today and it went really well. I have an amazing wig which looks fab. Went out for lunch afterwards and then had my hair cut short and dead pleased with it. It’ll prob only last a week or two but heh if it makes you feel better its worth it. Thought I’d find the whole experience dead stressful but it wasn’t and I had my family along for support which really helped.

Must go, watching Waterloo Road and then The Apprentice and then bed. Its been an exhausting but good day.

Hope you all have a good evening and sleep well

Love Bettie xx

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Oh, I haven’t abandoned you, how could I!

Sore heads and shaving. I found that as my hair was coming out, it felt like a pulled ponytail. I got my OH to clipper it to a very short something or other, and then I went home to my own house, got in the shower and took the rest of it off with a BIC razor. Well, four razors, actually. It took quite a while as I wasn’t used to shaving my scalp, but it felt so much better, and a lot less raggedy. I just couldn’t bear the patchy stuff, as my hair’s very dark and I looked like I had some nasty skin disease with all the bald patches in the dark hair! I used to shave my head in the shower every few days throughout, just to keep it smooth and not prickly. I kept doing so until the end of May 2011, and decided to stop shaving my head when the bristles on my chin decided to start growing back. That was just before FEC5. I think I probably should have kept shaving until after FEC5 as a lot of it came out again, so when it started growing back I started out looking like a convict with mange. As it grew I just looked like a convict, and finally it looked like a rather severe haircut. I think because I’d kept it shaved during chemo I escaped having long fluffy bits, so I haven’t been near my hair with anything sharper than a bottle of conditioner, and don’t intend doing so until it’s long enough to put in a plait again. I might then decide to cut it short again, but I want it to be MY decision, not cancer’s decision.

I WILL get an updated picture, I WILL…!

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Hello ladies

Such a lot of pages to read! I think we will be on page 200 by May! I have been to reflexology this evening, before my 3rd treat tomorrow. Desperately drinking water as I forgot earlier in the day. I worked till 3 today then had to go and buy some manuka honey as I had run out. For anyone drinking Aloe juice, its half price in Holland and Barrett at the moment.

Beryl, your scarf looks lovely, you have a knack, which I am sadly lacking! I hope tomorrow goes as well as it can for you. Xx

Parsnip, big hug for you, you are going through a really hard time which must be even harder with a young child. Hope you get some answers to your questions next time you see the onc.

Bettie, hope the wig session was fun!

Dulcie, big hug to you too. As others have said, you don’t know exactly what the nodules are that they have found. They might not be what you are thinking at all. Try to keep things in perspective and not to panic. Easier said than done, I know, but you will feel better if you are feeling in control. In my chemo bag (sorry, I haven’t actually got one!), I just take a bottle of water with me! Very under prepared, I know, but I find the time goes really quickly and the nurses are always coming along and changing your drugs over.

Socks, like the hair!!!

Welcome Jayjay! Crickey, you have been through the mill with your SE’s! I really hope the Tax will be better for you. Wish you weren’t having to join us, but we will give you lots of virtual hugs and hold your hand along the way. Xx

Gabby, Carolyn, good luck for tomorrow, can I please hold your hands as I am feeling that ‘dread’ which I know we all experience. I KNOW it will all be ok and I KNOW it will all be over in a couple of hours, but I just want to get off this rollercoaster!!!

Franoli, your hats sound FAB! Hope you manage the trip to OSLO!

CM, lovely to hear from you again, masses of good luck for your interview next week. I miss your posts, but its very comforting to know that you are keeping your eye on us. I totally understand that you must move on with your life now that you are so far down the track. You have given hope to us all for the future and that this path we must tread over the next few months is doable, so thank you! Xxx

Big hug for Caren and anyone else who have had treats today, hope you all get a good night sleep and minimal SE’s. That ‘boy’ seems to be a liability Caren! You are allowed to be teary and emotional, this is a big thing we are all doing so don’t be hard on yourself.
Xxx

Off to watch apprentice now and eat minstrels!
Joanxxxxxxxx

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Hi Everyone
Hope everyone doing ok that have had their treatments today and not suffering too much. Had a really good day today the best day so far and it is day 15!! Next session 18th april.
Shelley- Hope you get to Oslo ok.
Beryl- Love the scarf, very adept at fashioning it!
CareN- Please dont feel guilty about having BC this is not your fault ande I am sure your family know that. We live above our cafe and I am lucky that my OH comes and checks on me periodically and brings me food and drinks.I do feel guilty that he is running up and down the stairs a lot but I know he does it because he cares. Your family care about you so loet them do what they need to do.
CM- Lovely to hear how you are doing 12 months down the line and keeping fingers crossed for your interview. Wish you the very best of luck.
KQ- I love a glass of wine but unfortunately cant stand the smell at the moment, although the desire is still there!!
Dulcie- thinking of you hope you ok?
Got my wig appt on Sat just in case, hats and scarves arrived today so all ready if cold cap doesnt work!So far so good.
Best wishes to everyone
Hugs
Mary P xxxx

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Morning All

We had a problem with our computer last night and I didn’t get to check messages before going to bed at 8.00pm. Had quite a full day and was so tired that I knew I had to hit the pit. Up with the larks and already had some toast to start my breakfast off.

Helena (daughter) had been reading my diary entries and left me a message which I read this morning. I would like to share with you what she wrote, which made me have a few tears:=

‘For The Days’s That You’re Down’

We’re all so proud of you and we love you more than words can say.

Never for a second think that you won’t do this. Your’e strong, determined and stubborn and together we’re going to kick cancers arse!

So chin up, best foot forward, today is a new day and it will be better than the last. Every day is a step closer to being cured.

You are already a survisor and even on your worst day this is no match for my Mum! All my love Helena XXXXXX

She’s such a love - bless her.

So many messages to catch up on over a few hours missed.

Everyone going today I/we will be thinking of you and everything will be OK. Another one done and near the end.

thank you for your lovely comments on my scarf look and tying skills. I have had to practice it a few times but it’s not very hard. Putting that contrasting scarf around the front gives it a little height to help take away the flatness from the top of the head. That’s they way they showed me at Head Start. I’m going to wear the same scarf for my friends funeral today. Originally thought I would wear a black had with contrasting band, but thought that Joan would have really liked the lilac one so going to wear it for her. Going to be an a tearful day but we will get through it.

Wintersocks - Great hair and I like it as well!

CM - Thank you, as always for watching over us and joining in whenever you can. We always welcome you and very best wishes for you job interview. We will all be spurring you on.

Caren - If the boy’s not up to scratch perhaps you can request to see the big boy next time. Someone ought to be monitoring him, perhaps they think he’s doing a good job. Sounds a bit of a waste of time to me. Big hug to you X

Bettie - Glad you’ve got your wig, another job done and it sounds like you had a good outing with your family to boot.

Care N - I think that sometimes the nurses think that a routine question to them is quite normal but we are not in a normal state of mind going through this. I can understand you getting upset so don’t you feel any guilt about your family and what they are going through. There’s nothing you can do about it other than to try and be as strong as you can. They are doing the same and giving you all the support that they can. I just try and make sure that my husband and family know how much I appreciate their help,support and advice, which is mainly via words, hugs and loads of text messages.

This is getting all too long so I will break off now and come back again later.

Love to all and big hugs

Beryl XX

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Ah beryl, that a beautiful message from helena! Had me in tears 2 ! Not good this time of tge am on treat day! Ha ha! Big hug xxx

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Beryl- What a lovely message from your daughter, they are so precious arent they, thinking of you today at your friends funeral. I wore red for my friend as that was her favourite colour, i stood out like a belica beacon but didnt care as i knew she would have laughed about it.
Patchit- hope all goes well for your treatment today.
Feeling good today thank goodness so going to make an effort to get out and about!!
Hugs to anyone having treatments today
Mary P xxx