Hi everyone, I have had a diagnosis of DCIS in nov and just had a mastectomy and tissue expander fitted. I’m awaiting results of tests to determained my next surgery in April.
I am here at this point today as my mum had BC stage 2 and in lymph nodes 2 years ago and I pushed for a mammogramme with no symptoms at all. Due to my age I wasn’t eligible, 12/18 months of fighting, I got one, and 2 days later I was called back in and here I am today. I wish we didn’t have to fight for somthing we want for our health and assurance.
I am a strong person but I can’t bear to look at myself yet. I admire all of you guys on here, and I’ve joined so I can read your stories and see all your strength as I go through my journey. 
Hi @momarie19,
Firstly, welcome to the forum - we hope you find it a friendly and supportive place. I’m so sorry to hear about your diagnosis, and that of your mum’s. I’m so glad you have already found strength in some of the stories shared on here, and hope you continue to do so.
I’m sorry you haven’t had any responses yet, but I’m sure that someone soon will share their experience of going through DCIS. You can also use the search function in the top right corner to find related conversations.
In the meantime, if you ever want to speak to someone over the phone or have any questions, our nurses are only ever a phone call away on on our free helpline 0808 800 6000, or you can reach them on our Ask our Nurses topic. We also have a whole other range of support available which you can find out more about on our website We’re here for you | Breast Cancer Now
Sending you all the very best,
Alice
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Hi Alice, thank you for the reply.
I’m so nervous of the biopsy and lymph node biopsy results coming back as somthing else, I hopefully should know next week. If it does get upgraded from DCIS I’m unsure of what this means and what next.
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Hi I was diagnosed with multifocal IDC ER+ and HER2+. I have undergone 6 rounds of chemo first and like you 2 weeks ago today had mastectomy and tissue expander fitted. I am also awaiting results to determine if more chemo and radiation is needed so understand the worry of waiting. How are you feeling post op and with the expander? x
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Hi brincat
Gosh you’ve gone through a lot so far but good that it’s been treated so quickly. I feel like mine has gone on for so long ( since oct ) and I had the op 14th Jan which was the first treatment following 4 stages of biopsies. The waiting is the worst! I’m stressing thinking because I havnt hear yet are they planning next stages/treatment before they call me in!!!???
With the op and expander fitted, I’m doing surprisingly well. Was difficult to sleep the first week and was very painful but settled ok. I’m hopefully having my dressing changed/ off today with my nurse at GP. Although I havnt actually looked at it yet, that’s hard for me.
How are you getting on? How long have you got to wait for your results? I really hope it’s very soon so you can move forward with all this. 
Hi thanks for the reply. I too had the expander on 14th Jan. I first found the lump in june so feels like a very long process with back to playing the waiting game as chemo wasnt a full response but was a possitive response none the less. My next appointment is 3rd feb which will be roughly 3 weeks post op an they did say results will take that long so assuming that’s what that appointment will be for to discuss next steps. Tbh im not too sure whats happening with the expander. I feel like the hard metal part is pushing in centre of my chest. The first week I was fine an feel like its getting worse. As I had lymph nodes removed too my arm has gone from feeling numb to a bit painful and armpit feels swollen an sore an the exercises seem to be getting harder. I keep telling myself this is normal as surgeon did say this last week but now I’m wondering about cording or fluid build up etc. Wow dressing off today thats quick, fingers crossed ypu will feel okay with it. When i went last week they did have to remove as there was a mark on dressing but turned out was just their pen haha. Only the drain dressing has been taken off. I know what u mean about looking etc as i do t like to touch or feel at min hopefully these things will change over time x