Any of you ladies know if u still have to have a blood test before Herceptin each 3 weeks?
Feeling the love this morning 
I was told no more blood test Trish. First injection already booked for 3 weeks time. And one more onc appointment before surgery.
Kala good to hear from you and you are sounding super strong right now.??Please please join us with the moaning. It is part of the journey and trust me it makes me feel better knowing we all have bad days and I can give back all the support I have received.
You are part of the team.
( may be I over share sometimes sorry)
X
Well done Kala? Great to hear from you. I ?on Thursday so will be feeling rubbish on Monday. I think we’ve all got more treatment to go in one form or another.
I really enjoyed a long soak in the bath last night, especially my PICC free arm (Epsom salts half price in Waitrose at the moment). Not much sleep though… steroid buzz ?.
Hope the side effects are ok Treehouse, the windy side effects seem to be catching here too. ??. I hope you can change Tuesday’s appointment. Day 4 should be appointment free as standard. X
thanks for letting me know Tree house 're blood tests. just been to my local pharmacy for Epsom Salts. run out! on order. I’ve been struggling with watery eyes when I go outdoors and waking up with them stuck together. Got some drops called Carbomer eye gel. let u know of it works x
Hi Girls, today is my day 6. I’m not sure why but this one feels very different. I’ve been relatively lucky on the previous T’s. My main complaints being diet mouth and bad taste with trouble finding s drink I can tolerate but as far as sore mouth and aches and pains I think I got off lightly.
This time however, my sleep is far far worse, my tounge aches, my legs ache, my hands hurt and the tips of my fingers feel bruised. My bottom is very itchy and the dark feeling left from the steroids doesn’t feel like it’s lifting as quick.
I’m not sure if I’ve lost patients with this cycle or perhaps it’s because I have my friends and family constantly reminding me this is the last one it’s over etc etc that I’m ahead of myself!! Maybe I’m just having a bad day?? I feel angry today.
I have my nephew coming over this evening his mum is out on a work do. I’ve planned a chicken roast dinner and his fav chocolate desert and movies etc I had been really looking forward 2 it all week expecting it as a bit of a treat and celebration of side affects wearing off but now the time has come I feel I can’t be bothered how awful is that.
Sorry for the crumple - dad day xxxxxxxxx
Wolfee from my experience no 2 cycles have been the same. Emotions are bound to come out especially when there are mile stones. Don’t feel bad. I understand you being unsure about your nephew. You may find it is good to have someone to distract you. You sound like you normally really enjoy his company.
How you doing Mai. You must have treatment soon?
Interesting you mentioned itchy bottom. I got that last cycle 2. Most unexpected. Used sudocrem and washed lots. Only
Lasted a couple of days. Thanks for sharing. I was a bit nervous if mentioning that. ?
Wolfee. don’t feel bad. easy to say and I know the feelings. I’ve just had a sleep and groggy as hell last chemo was y day so got the horrid moith erc to cone and trying to summon the energy go see a friend but really cba! X
WolfEE sorry you are having a down day. I think the build up to last chemo is so overwhelming and everyone says its the last one etc but we are still going through it, even when chemo is done, there is surgery and rads. It is never really over, we will never get back to normal, it is a bit like grief, it gets easier day by day but you never really get over it.
Sending hugs to all.
Heather
Oooooh mai nearly there.
Welcome Kala.
Ive had bit of marshmellow day too wolfee. And have definitely got the bruised nails which has only happened a week after last one! Hope your nephew cheers you up or is at least a distraction. Put today down as a bad one .
I decided to have a clear out of clothes and underwear . It’s was quite emotional throwing away my old bras that no longer fit. I’ve also just dropped off my son who is on an overnight trip with football in Warwick which is his first one on his own so think I am feeling bit vulnerable today. Having film night tonight with youngest and hubby and greek takeaway as a treat. Tomorrow is another day xx
Sorry you’ve had rough days WolfEE and Katie
Day 2 of last T and already I’m feeling wiped and ot doesn’the help knowing it gets worse before it gets better. Watching the Strictly launch as therapy. X
Morning all, had a lovely evening with my nephew in the end.
Next problem though … my back. I have suffered on and off a bad back for years although not recently. Last night I become crippled somehow I’ve managed to do my back in and worse than ever before. I can hardly move and feel really annoyed as on top of how I’m feeling I don’t need this especially with surgery coming up.
Regarding painkillers are we free to take most things? Is it possible that this is chemo related? I know we get aches but something is telling me this is back problem not chemo ache? Do you think we can use deep heat?
Glad it went well with nephew! I suffer with my hip and take Naproxen and that’s approved as is codeine. I never asked about deep heat it use it and not had any side effects good luck x
I had a bad back after each of my Ts. Put it down to not sleeping well and tossing and turning all night. Has gone now but used hot water bottle and paracetamol / ibuprofen.
My legs feel like I have run a marathon, hurt since Friday.
My diary is now filling up with meeting friends for lunch rather than oncologist appmts.One last week, another tomorrow, and a coffee meet up later in week. How did I have time to work before C ??
H
Jay, got a meeting with work on 19th Sept. Fit note until 6 Dec to be reviewed after 2nd Onco appmt in Nov. Return will be phased as in 2 hrs, 3 mornings for 4-6 weeks then 4 hrs 3 mornings for 4 weeks. Need to see Occupational Health before any phased return is agreed. Also got 3 weeks hols to use up.
H
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Not sure if this works but a new friend of mine just found my mental image of the choppy monsters.
She read my mind ?
Starting to fall down the side effects rabbit hole for the last time. ?
I have a week booked in Spain Oct half term but it doesn’t come out of annual leave as on paid sick leave. Hoping to go back on to full,pay and use hols in Dec then harmonised return in Jan.
Husband is looking to return to job rather than being self employed so if he does get a well paid job in next 3 months then I am considering not going back or drastically reducing hours. I may be able to leave but return as self employed temporary staff, just an idea right now as would loose pension and benefits but after the year I have to live for now.
Surgery - it took me a bit of recovery but started chemo 7 weeks from op. The first week was just a bit uncomfortable doing things but did do the exercises 3 times a day. Husband didn’t let me drive for 6 weeks but I did enjoy being chauffeured around.
H
J - for legal reasons they can’t advise when to drive, you have to be able to do emergency stop and seat belt needs to be comfortable and you have to be confident that you are ok to drive. Practice short known routes until you are 100% happy and safe. I started by doing school run, then a 7 mile trip to local supermarket on outskirts of town until I was ready to go further afield. I spoke to my insurance company and they put a note on my record re surgery. I could have driven after 4 weeks but left it longer as I didn’t need to drive with husband being at home. My Mx was right side so had no issue with gears stick so found it easier.
After op you have to be careful lifting heavy things like shopping bags, even a full kettle was not a good idea. Also I was told to prevent lymphodema,do not put hand bag on op side again especially if it is heavy. Learn to use other arm for lifting and carrying.
H
Good Monday morning ladies. Having a bad vomiting night session which lasted most of the night. First time I have actually been so sick from the dreaded T. Really don’t want to go get my line flushed today as can barely walk but both my daughters say they are taking day off work and will get me in so all I have to do is take sick bowl n blanket , bless them. Luckily my temp is not over 37.3. All I want to do is stay in bed, mahhhhh!!! How do you all manage if you can’t get to hospital to get your line flushed cos you feel so crap.
Had my last T on Wednesday so that’s why I chose today for line flush as I knew by this Wednesday I would be crawling.
How do the holidays work as I have been off since march, I work full time for the nhs and I have only taken one weeks holiday so far but my sick note will carry on till after Xmas and some if I’m not well enough to work. Can I claim the holiday back at all as I get near six weeks . I’m not planning on returning full time . Going to do some things I never had the time to do before lol. Like walk in the park, drink coffee in the cafe, go to the pictures, go on a train, visit the beach, eat candy floss and a mega size burger with fries . All the little things I never did are going to be on the top of my list.
My mouth tastes awful and the domperidone doesn’t seem to help. Is cyclazine any better? As I have some of these too.
My tummy is bloated and my feet are burning and the list is endless. Jeesh I could whinge for like ever.
Today my husband was sick watching me be sick , bless him, he has a low tolerance for this type of thing so he’s kinda keeping out the way, although he refreshes me with water n ice cubes and sweet tea.
How are you all coping on these early days after treatment. Is this normal to feel so bad so soon as last time I was okay till day six.
Seems to have hit me early this time.
Has any of you lovely ladies had herceptin injections yet as I have had the last three in infusion but now I guess they will be in the leg for a year . Is it painful.
Not sure when my op is as I have to have yet another MRI scan in a couple of weeks so fingers crossed .
I feel I am almost on the same road as you jay and you are doing so well compared to wussy me .
Anyway I hope this week goes so well for everyone, especially if your going away somewhere nice and relaxing xxxxxxxx best wishes and a thousand hugs ? to all you amazing brave super strong ladies xxxxx