Ha ha yeah the red pee! Did any of you experience the prickly bum when they inject one of the anti sickness things? Very weird although not as bad 2nd time around. I’ve not got antibiotics either , just the 7 day injections from tomorrow .
I found my lump. I was getting pains and when I checked it was there. Mine was inside a cyst they could only tell size of cyst which was 5cm. After it was out and cyst drained it was only half a cm
I thought ur name was mai too. Never imagined it would be a mushroom lol! What was ur name treehouse? What’s the story behind urs? Think I was in too much of a daze at the time of registering. Didn’t even think bout being creative!
As for losing eyelashes all I can say is least it’s nearly summer and we can wear sunglasses xx
I was not sure how the username thing worked and I had spent 4 days in bed. I could see a tree house through my bedroom window ? was the only thing that came to mind. Sorry ?
Jo x
I had sore mouth on both sides of the roof of my mouth, near my upper back teeth. I used 2 x teaspoon of manuka honey and kind of rolled it around my mouth as its quite think and used my tongue to massage it into the 2 areas which were sore. It has healed it well. It wasn’t like an ulcer, more like when you burn your mouth on very hot pizza.
Apart from that I can say my mouth has been ok with the honey, I have 3 more jars left as got it I in the penny sale, stocked up based on 1 jar per month through chemo. I started taking 1 teaspoon each morning when kettle was boiling first thing, before I started chemo as I thought it may help to make sure my mouth was 100% before I started chemo.
I am a doctors daughter and my Dad always told me different way to take meds so assumed that I should start manuka as preventative rather than curative. Nothing worse than a sore mouth.
Hi ladies. So I know a lot of us going through chemo suffer with nausea and loss of appetite. I’m just wondering if anyone else has gone the opposite way and wanted to eat everything in site like me. I’ve been awake since 3:30am and despite 2 bottles of water all I can think about is food. This is happening daily.
Annie x
I was on steroids for 4 days and did notice I thought about food all the time. As also felt sick late in the day for those days and some foods made me feel sick I just ate what I wanted. I did ask my husband to make sure I wasn’t eating the whole kitchen.
Also I made sure I had bananas in the house so that I could have something sweet and found making a dish of fresh fruit took time and looked nice and tasty and went for that rather than half a packet of biscuits. I am not saying I didn’t eat the odd bags of crisps or two.
My favorite daily treat is 2 Brazil nuts and 1 chuck of dark choc, both good for you.
One of the downside of chemo for me is disturbed sleep. I often wake between 3 and 5 am and not on steroids at mo. However I love to hear the dawn chorus and see the sunrise. To me if there is a “benefit” to being off work for 6 months it is being able to enjoy the summer weather, I might have been in a different frame of mind going through this in the gloomy winter!
Ooh Mai interesting about the oxygen. I have about 10 trees in my garden 2 massive oaks. Maybe I should sleep in the tree house? ? I have found eating settles my stomach so any weight I lost after diagnosis due to stress/ fear I have definitely put back on! Well today I am meeting a friend for lunch who is also recovering from critical illness. Almost feel guilty being off work. Almost? . Good luck today anyone with appointments x
Morning girls. So I called the hotline number this morning as my temp reaches 38. They phoned my A&E and let them know I was on my way. I was seen very quick. My temp at the hospital was lower it was 37 something (just under the 37.5 danger range) they checked me over and said that as I haven’t any other sysmptoms I could go home but I need 2 keep close eye on my tempreture and if it rises or I feel unwell get back quick. They told me I need a new thermometer because accurate readings are so important. The one I’m using is a digital ear one that I got new it was about £35 from Argos so god knows what a good one is?? I’m going 2 sort one out this morning. I’m so paranoid now.
Regarding food. Today is my last day of steroids I’ve been eating toast, toast and more toast all the time toast. Oh and sweets sugar does not make me feel sick apparently!! Almost wish it would. Tomorrow I make a big effort and try eat more healthy.
Good to hear from you wolfee. ? oh my thermometer was not expensive. Hope it is good enough. I had the toast thing too for a while. Back on porridge now. Just do what makes you feel ok. I had ice poles for sore mouth.
Glad to hear your ok wolfEE. Eat whatever you need to get through this.
Look your posts MAI7 you cheer me up every day.
Heather our manuka honey guru have you ever used or heard of the healing creams containing the honey? Was thinking of trying it on my surgery scars? I have like an upside down to t shape under my boob and would like to speed up healing as am sick of wearing sports bras. My mum told me she would take me shopping for all new underwear when I was ready but just worried wires would irritate my scars x
I don’t have the option button on my posts to amend. is it just on a desktop version? And now it’s bloody done it again arghh. I’m honestly not this stupid x should say I love your posts MAI7
Hi WolfEE, good to hear you’re ok. I gave up on ear thermometers. The small digital thermometers are cheaper but better. Katie bio oil is supposed to be good for scars and available in most supermarkets. Mai7 I hope you got more sleep, sorry your mouth is sore. I haven’t had the sore mouth yet but discovered a dairy and sugar free smoothy called Frill (you can get it in Waitrose ). They do chocolate, berry and ‘green’ flavours and are healthy and delicious.
I felt quest yesterday but better today.
Mary X
I have a Braun 6520 in ear thermometer, from Amazon. Its great, it lights up red if temp is high, memorises 10 reading and easy to use. It was just like the one the hospital used when I had my op. I spent more on this as will be useful for the children when they are ill so worth spending a bit more.
Hi . Love the slipper incident Mai ?. Had a lovely afternoon sharing medical woes with a friend enjoying a pub lunch. Such a gorgeous day. And a bank holiday ahead. Speaking of which, scalp starting to hurt. X