Welcome lindylou. Hope your ok other than hair loss. My scalp went very sore and couldn’t even sleep on it at one point. Then it all matted after that i made the decision to cut it very short. Has helped loads and you don’t have to see as much coming out x
Gosh ladies you have been busy chatting whilst I have been out at hospital, 25 posts to catch up on.
I have a new Oncologist!! A lady who understands nausea and morning sickness. She has prescribed Emend for the reminder of my 5 chemo cycles. The best constipation meds, didn’t tell her the gp has already given me Movicol (Laxido) and some good sleeping meds. Also at next chemo there will be a mouth wash for me to have in my “take home” pack! I was all prepared to turn on waterworks for Emend but she said she wanted me to be comfortable and happy, as happy as you can with chemo.
Also treated myself to a new reclining garden chair from Home base on way home. Offered to get one for husband too. He declined but I have just turf him out of mine (ours!).
Enjoy the bank hols weekend everyone!
Heather
That’s good news Heather. Hopefully it will make the coming weeks easier. Think your husband needs to get his own chair though. My patio thermometer says 50c so I’ll give it a miss! My son starts school in September so I’ve just been chatting to the teacher so they know what’s going on ahead of time. It’s a really supportive school which helps.
Hi girls. I am good to go for round 2 on Tues. Onc seems to blame pains on the injections and is giving me better pain meds. I have a few questions for you…
Am I the only one that…
a) wears her best undies for appointments? ( my husband thinks I’m odd)
b) was checking the chemo waiting room floor for hair ( mostly my own)
I keep thinking I have walked into spiders webs but I is my hair falling
I put my best undies on too, never know who you need to flash your boobs at or strip down for exam!
My hair is falling out so much whilst we were driving to the hospital for appmt today my husband turned off the fan as he kept getting hair in his mouth. We also sat outside at hospital as had to wait 30 mins for prescriptions. It was very windy and my hair was falling out and blowing on to the people behind us, they were staff eating their sandwiches!!
I also found hair in the fridge this morning, I know that I haven’t put my whole head in there so it must just follow me everywhere I go!
Hair is an issue, I want to chop it off but then I don’t. I really think that over the weekend I have to do it.
Anniej. No Emend!!! Eeek. Sorry you feel rough. If you don’t improve make a call. I am nervous about round 2 as I found the first one so tough ?
Hello, I started weekly Pacitaxol on the 15th so have had 2 treatments so far, 3rd one due next Tuesday.
Not feeling to bad at the moment, appetite good so eating well with no nausea. Tend to get a bit achey on day 4 not sure whether the gardening is helping to contribute to this though. I have noticed that my appointments have a break after the 3rd treatment for a week, I don’t know if this is usual. I haven’t been informed by my oncologist how long my treatment plan is but looking through the forum 12 weeks has been mentioned. Ann
Lol Raitchr poor nurses eating lunch. Glad your appointment went well. Nice to have the meds in advance.
Hows this for service?! I had a blood test at my local GP at 9:45 this morning and they had my results for my appointment at the hospital 10 miles away at 4:00. 10/10
Sounds like you have all had an eventful day! I’ve rested in the garden and now just treated myself to an non alcoholic gin and tonic ! Enjoy your evening ladies xx
Ha they are just ready made ones in a can from Co op. Not bad can almost fool myself. Quite refreshing with some ice and slices of lime x
Welcome annemay. The gin substitute sounds good. I’ve just done my first filgrastim , feeling quite proud of myself. I’ve taken some slow release ibuprofen to help the aches. What other side effects do you get with these? Have to hand it to the chemo nurses - they’ve given me the emend for next time so it’s working when I turn up.
Hi Mai7 I was given omeprazole on my hospital goodie bag and have been taking every day so i expect it is fine for you too.
Hi anneemay. Welcome go our mad bunch. I almost couldn’t log on earlier today. Not sure I would get through round 2 without this extra bit of support.
I’m on 7 days filgrastim injections (fortunately I’m not squeamish). Pilates is much nicer Mai7! Haven’t had side effects but took the ibuprofen to help. Off steroids today so hoping to get more sleep tonight ?. Hope you all get some pampering today. X
I’m on the same one as you MJK although I have the district nurse come to do mine. I just can’t bring myself to inject it! Soft I know! I felt quite rubbish off them last time so see how I go this time . Day 3.
Feeling in a bit of a low mood today like I don’t want to do anything. Thinking it could be the steriods? Anyone else been like this x
And where is the sun! Just typical when the kids have finished for half term x
MJK, Pilates would be much nicer, I agree. I never read the box as I’m in such an automated frame of mind when I inject but mine are the same as yours. I found the first round the hardest to stab myself but this time I just stick it in and don’t feel a thing, like my brain has switched off from it. So…it does get easier the more you do it.
Katie, keep your chin up chick. We’re on our way to have a picnic and it’s RAINING! Really didn’t want soggy sandwiches! We looked for the alcohol free G+T this morning in a local coop but no stock. Maybe need a bigger coop needed. X
MJK well done you. I also inject for 7 days and can honestly say it is the worst part of the treatment for me. IHATE doing them and now I know that is what caused my pain I hate them even more.
Hang in there Katie I got low days . Go with it. Be lazy. Have treats. Let people look after you.
I was walking to the hospital with my husband yesterday and I couldn’t keep up. I am just slower at the moment and I told him I was already doing 3 things , walking , talking and busy fighting cancer.
I remember saying the same when pregnant ( busy making a baby).
Not sure where you all are but I am in the west midlands. Rain passed here at 5am. Glorious sunshine now. Its coming your way ?
Multi-tasking isn’t my strong point at the moment either! There’s nothing soft about not wanting to stick needles in yourself Rosie and Katie. I’ve taught children with epipens so it doesn’t phase me as much, not fun though. I hope it dries up for your picnic Mai7.
I’ve done it, had my hair chopped off and it feels great!
Heather
Well done Heather. X