Hi ladies got my results in not spine mets thank Goodness but back to being a patient have got two mild spinal cord compressions and significant scarring of the sheath surrounding it not what i wanted to hear now a neuro patient looking like spinal fusion surgery is on the cards as doc say i have myelopathy symptoms which will progressively get worse it can worse case scenario cause permanent paralysis if left but is also dibiltating not what i want at 47 hence why I was red flag… the symptoms are the same as mets in c spine ? i thanked the gp for his swift action on this i have been told i can’t work whilst this is going on and if and when i have surgery i will be unable for at least 6 months afterwards i know this from my previous surgery in 2005 so maybe my redundancy happened for a reason to keep me safe so to speak im fed up i have made such a great mental recovery as well as physical from bc not relishing becoming a patient again ? sorry for offloading ladies ?
Mishy ???fantastic news it’s not mets really ???for you darling, I know it’s not all brilliant news but at least it’s not mets which is a massive relief 
???
shi xx
Mishy18 god what a mess the spine stuff sounds but I suppose something that would have once sounded awful and to most people sounds ok 2 is now because as long as it isn’t the C back it’s good news ? but what a **bleep** 2 deal with after everything else. You can do this and yeah sounds like the redundancy was a blessing.
I’m off to see the oncologist later today 4pm as part of my assessments on the add aspirin trial. It was after my last appointment 3 months ago that I was sent for the bone scan on my back. I’ve not had any results as such but a phone call saying it wasn’t mets so that’s good I’ll ask for any update on why my back is so painful.
I’m getting cold feet about my overies and hysterectomy in two weeks time. I know I have to do it I’m scared not 2 but I’m so worried about the consequences of doing this before 40. Apparently your bones, heart and memory can really suffer especially because no hrt allowed. Also I’m worried I’ll become even more short tempered and moody and end up with no friends (or job) I think also being single I’m wondering with all that lot gone and both breasts will I ever have the confidence 2 meet anyone or do I even want 2?? Oh and it being so final noW that I won’t ever have children. Not that I probably would have because again I’d have been to worried to come off the tamoxifen for a pregnancy anyway and in 10 years I’ll be 48 to old for children anyway. That’s all assuming that the chemo hasn’t ruined that anyway.
Gosh that all sounds doom and gloom but in actual fact I’ve been feeling quite well recently it’s just all of a sudden I’m not sure if I’m doing the right thing with these overies or not???
Wolfee ??if you are having 2nd thoughts about op, speak to your team to say you are unsure and would it be possible to delay? It’s a massive decision you are make by and one you have to be a million % happy to make. There is the someone like me option in here that you’ll could try, might help you. Sending you big ??shi xx
Thanks Shi Wolfee not going to lie i cried with relief to hear it wasn’t mets and i know the other stuff as painful as it is will be rectified with an op just need to be extra careful in the meantime can’t lift anything carry shopping bags and no jumping around or jerky neck movements in the meantime haha you are totally right this would have been the end of the world to me before bc but now its like oh well ? and yeah the redundancy was a blessing in disguise wolfee i hope your back is ok too im really taken back by my results wasn’t expecting it so I hope yours aee good i literally can’t understand how its happened i hope chemo and rads hasnt weekend my bones ? im thinking of asking about the bone strengthening stuff some people are getting to prevent mets as my bones are clearly not very strong!!!
Wolfee re the ovaries have a good think and maybe arrange an appointment to have a chat to discuss all your concerns its a big thing fir you don’t apologise for your rant i was a right okd mess earlier today then i thought howay man mishy you did the worst thing ever already you did bc you can def do this i hope you come to tge right decision for you ?
Wolfee hope you’ve been able to discuss your questions with team ??Shi xx
Thanks Ladies im bloody over the moon it wasn’t mets as i know some are not as lucky i have an app with a neuro surgeon on 2nd Oct to discuss surgery so i have a bit of time to get my head round it!! It has put a massive spanner in the works re my plans for looking for a new job i just want to not be a patient ? but i will do it don’t want to end up with mobility problems which without intervention is the result of this type of thing
Jay back to the GP i bet this feels weird i wonder why some trusts do this but at the same time they will never neglet any concerns you have my trust used to have regular onc apps for 10 years now we see them yearly for 5
If you are comfortable with no recon jay don’t have one its a very personal thing for you
Mai my periods come back regular now roughly every 21 days (until this one?) I had irregular periods since maybe January but then lengthier more normal and regular since May or June. They haven’t mentioned checking my levels but I’m assuming that because of my periods and that I haven’t really had any hot flushes since January I maybe producing eastrogen and stuff even though on tamoxafen?
I am scared of how my life will be after and if I’m able to cope with the side affects and no HRT but I’m also terrified not to so I will do it no backing out.
Good luck today wolffee ?
So at my final onc appointment she suggested I should be tested for Diabetes and Thyroid following the treatment I’ve had (chemo, herceptin, rads (to upper clavicle area). A simple blood test (well fasting for the diabetes one).
Visited the GP last week for results - I’m delighted the diabetes is clear, however the thyroid one came back that I’ve got an underactive thyroid. Further blood tests to re-check and also the TPO part of the test. I’ll get the results on Wednesday - depending on the results will depend on the medication required to treat…
I’ve subsequently researched and it would appear quite common for thyroid problems following treatment for breast cancer.
I’ve also been increased to 2.5mg of Ramipril as my blood pressure is still a bit high!
Other than this - I’m doing OK - put it this way, there’s people far worse off than me.
Hope everyone else is doing well x
Hi everyone hoping you are all well ita been a while i know you are all on Facebook im not unfortunately so pop ib here to say hello
had bloods ran and results xame back definitely through menopause doesn’t need to be checked again!!! My periods stopped after 2nd fec last August never returned but my onx said they could so the blood test confirmed otherwise im am officially no longer of child bearing age so the chemo obviously shut down my ovaries permanently gp says should probably check my bone density just in case
Hi everyone. You may not remember me as been a very long time since I was on here. Last time I posted I had just had my big op for mastectomy with immediate reconstruction. It didn’t feel right to post much after that time as we were at very different times in our treatments and I was finding it quite difficult to cope with.
Anyway I Hope everyone is doing well and coping well since surgeries and starting medications etc.
I attended the moving forward course in June which I found to be quite beneficial and it was lovely to meet some ladies in the same position. I started Zoladex injections in April and 2 weeks ago switched from Tamoxifen alone to Anastrazole along with Ibandronic Acid whilst also taking vitamin D and Adcal on a daily basis. Feel like
I’m rattling at the moment!! I’m finding the ibandronic Acid very difficult as having some very uncomfortable side effects - aches around the shoulders, lower back, uncomfortable feeling in the rib cage?? And very windy/gassy with bit of acid reflux - oops. Hoping all will pass and settle down otherwise I’m not sure I could cope with it for 3 years, plus I’m missing being able to get up and have my early morning cuppa!! Lol. Is anyone else on the same delightful concoction of meds? Would be nice to hear others experience on them.
Hi Mishy / Sarah. Good to hear from you.
I am now 3 weeks post hysterectomy and Oophorectomy and so far so good no menapause symptoms as yet. Pain wise is all manageable. The worse thing was developing massive toothache that was worse than the surgery. Today I had the nerve taken out. I’ll have the tooth removed or root canal in a few weeks when I’m off the blood thinning injections.
So I’m still on tamoxafen but I’m guessing when I see my oncologist in November I’ll be swapped as I’m obviously post menapause because of having my overies removed. So I am interested in your little list of meds Sarah as I’m guessing I’ll be on similar? I’m not that clues up and don’t recognise the names and what they help with??
My GP will put me on an antidepressant if hot flushes get bad. Apart from that I’ve not been put on or changed from anything yet???
Hi Wolfee,
So pleased to hear you are recovering well.
So from what I understand the Zoladex injections push me into the menopause. Because I am now considered menopausal I’ve had to switch from the tamoxifen to the Anastrazole (and I think there is another called letrazole so it’s either or) and the inabdronic acid is to improve bone density as menopause weakens bones but my oncologist also said it has shown some reasearch to benefit overall survival as well?? The Adcal is a calcium tablet to ensure I’m getting enough. I’d be very interested to see what they decide to put you on. I don’t mean to sound ungrateful and Moany as I am so very very grateful to be here and have the chance to take tablets!! But it’s hard when you have gone from no medication what so ever to feeling like there is lots!! Small price to pay for the grand scheme of things I know but will just be happier when all the side effects do one!
You poor thing with your tooth!! That must be so painful! Hope it’s feeling better soon
Ladies i don’t take any hormone drugs as my bc was TN but im interested in the bone strengthening drugs as i too heard that about menopause weakening bones and how the strengtheners can protect against mets too my onc never persued this with me my GP ran my menopause status check and given that my mam has osteoporosis and i had chemo so will probably have a density test then hopefully get the bone things
Wolfee im pleased to hear that you have recovered well from your op hopefully if you are lucky you might dodge the hot fluses as you had enough of them with Chemo!!!
I still get the odd night sweats and random flushes but think thats it for me ?
Sarah lovely to hear you are doing well yes thats some cocktail but at least your onc is proactive re the bine strengtheners and their benefits to you in terms of preventative measures x
Hi Ladies, lovely to hear from everyone.
Mishy, glad you are doing well and glad you are now menopausal without the scary oestrogen factory! Xx
WolfEE, well done and I don’t know why but I though you had only had oophrectomy. I didn’t realise it was the full hysterectomy. Hope you are taking it steady. Xxx
Welcome back Sarah and glad you are doing well considering all meds and associated side effects. I’m just on Tamoxifen and find it ok except for joint stiffness if i sit still too long or try and exercise too hard so it’s a fine balance. I walk a lot to keep fit now which is working well for me. Send WolfEE a private message if you want to join us in Facebook. Xxx
Sarah19, I’ve also written a blog if you want to have a read: lifeafterlola.com Its a space where I can get it all off my chest (pardon the pun) in an artistic fashion and hopefully help others who are newly diagnosed. Xx
Hi May ladies,
I hope you don’t mind me asking a question or 2 about a nail cream I have been advised about by my new consultant for using through T part of chemo. It is called Polybalm and had been trialled in my area.
Link here:
polybalm.com/nails-chemotherapy
I have explained more about it on the August thread, but wondered whether or not anyone could say whether or not this may have worked for them. I could then report back to the August ladies.
Many thanks
Georgie
Hi Georgie Gee, most of us on this thread used CND solar oil with varying results. I haven’t heard of the one you mention but might be worth a try if it’s not too expensive. With the docetaxol you need to wear dark nail varnish until the end of chemo and 3 months after that. Docetaxol leaves the skin, including nailbeds, photosensitive to UV rays so protection is important I think just look after them as best you can but if the docetaxol causes splitting or peeling it’s nothing you did or didn’t do… It’s just that it seems to get some people more than others. Xx