May 2017 chemo starters

Good luck Anniej for tomorrow, taking ages to get to my 1st one next Tuesday. Just want to get started now, don’t like waiting!

 

Heather

Morning all, not feeling too bad the morning after just a bit blah and was wide awake from 2pm! !!! Was just thinking about hair, have you all thought how to deal with the loss? Let it just come out or just go for it and get rid in one go?? How’s ur hair coping Hannah?

Good luck for those starting today xx

Should say 2 am chemo brain is starting already! X

Katie re hair. I haven’t started chemo yet. I was growing my hair before being diagnosed with bc, was in a long shoulderlong bob. Had it cut 7 weeks ago before surgery, into a shorter bob. Had planned to go shorter this week but felt reluctant to splash out 30 pounds on a cut if it is going to fall out in next 3 weeks. I am planning on going to first chemo with hair how it is and then when it starts to fall out just get my husband to use clippers to get rid of length. I have brought a few chemo hats like beenies and a few scarves.

 

My take on chemo is a total body reset, new hair style after and new healthy diet!

Ha, that’s my thinking to, new lifted reduced boobs hopefully some weight loss, healthy diet and exercise. A kick up the behind I needed really even if it is a bit extreme. Have you got a date to start yet? Have you already had surgery?

Hi I had right side mastectomy and SNB, no reconstruction,  on 17 March, chemo starts next Tues. Oncologist said I don’t need radiotherapy so active treatment should be done by end of Aug.

 

Heather

Hi Anniej, how did it go today?
Katie, in reply to your hair loss question, I had quite long hair, but I only ever used to wash it, towel dry it and comb it, so I don’t think losing my hair will be a big deal. I got my partner to clip it (9mm I think) - he did this at the weekend before chemo. It’ll give me a few weeks to get used to it before it falls out, then I’ll just go with scarves and hats. I actually quite like it being short. So you never know, might be the push we need to go for a new style.

Hi Anniej good to hear it was ok today. I was wondering about getting a picc line as that seems much easier for chemo and bloods. Also I think it stops damage to veins. The chemo nurse didnt really push for anything, at meeting kept saying cannula so assume that’s how they like it. They are a nurse led ward, no doctors there. 

 

I don’t start until Tues but today have felt really rough, tired and achy joints., spent the afternoon resting in bed. A friend said it must be my body and mind play tricks like Braxton Hicks in pregnancy!

 

Take care

Heather

Glad to hear it went well Anniej xx

Feeling less anxious today about starting chemo. Enjoyed 2 hrs in the garden in the sun this afternoon, we had to move the bench out of the breeze but it is glorious. Hoping I will be able to make the most of the good weather over the next few months. Maybe even get back to work with a tan!!

 

 

Hi All,

 

I am due to start my first chemo on the 12th May and I am hoping to go back in to work on the Monday after as I only started a new temporary job for 3 months last week so hoping I can get through the 3 months. Reading all the different comments on this forum is amazing and a real life saver.

Anybody else trying to work through their treatment?

Hi. I had 1st chemo on Wed. Off work yesterday and today but if I stay feeling as well as I do I plan to work from Mon onwards, but I can work from home, so I don’t have to run the risk of being exposed to coughs and colds. Stop taking anti sickness drugs tmrw, so fingers crossed everything should still be ok. Stay positive everyone - it helps to keep us sane!

Hi misyangel, I start on Wednesday and am planning to work during my treatment. Was hoping to have Wed to Sunday off and then work from home the next week and maybe office on the third week. My onolcoigst told me that colds/coughs weren’t such a factor, it was all about bacterial infections so didn’t think office work would be bad. What have people reccomendations been about being around people? x

I was planning to work but my oncologist didn’t want me to be in a close working office environment so he signed me off. Feel quite relived really. Hows everyone doing today. I’m feeling more tired today (day 2) or don’t know if that the steroids / sickness tablets that keep waking me at 2am every morning since. Is everyone having/ had the 7 day injections? Xx

Hi my work have left it up to me, I have said that I don’t intend to work through chemo to avoid germs, we hot desk in large offices, you never know  who you will sit by. This is standard protocol, I work local government and I am paid 6 months full pay 6 months half pay then phased return to work when I go back. I am very lucky they have this policy. Also they appreciate my 8 years of service with no sick days. They prefer continued service so take a temp on to cover sickness for a set period rather than wonder each day if I will be in and what work I can do. I have regular meetings with supervisor to update them on appointments either in office or via email. My GP renews my sickness / fit note every 4 weeks and is in touch with Oncologist. I appreciate that I am lucky and makes going through this easier for me.

 

Heather

Hi All,

 

Just butting in to say that I’m a March FEC-T starter and have had 3 FECs now.  I’ve had one virus (chesty cough) kindly donated by my son but nobody was worried as my temperature remained fine.  It’s just not very nice to be poorly when you’re going through chemo!  I’m signed off sick but have been keeping in touch, doing emails and bits & bobs and have been to the office once.  I would say that if I needed to I could work reasonably well during the second half of the cycle but I think I would get pretty tired.  That may be because I’m in my 50s… 

 

Best of luck to you all. xxx

Anyone else feel rubbish after daily injections? Can’t work out if it’s them or just chemo in general. Seem to feel like have stomach / back cramps like period pain just after them. Feel like I’m doing OK other than sleeping , which hopefully will wear off now sickness tablets have all gone x

I’m not daily injecting. Do you mind me asking what is that for? I assume it depends on what chemo drugs you are on as to what else you have to take/do.

Ha ha Anniej,

I’m on EC , having daily injections for 7 days to keep up my white blood cells or something like that and then just sickness tablets which finished yesterday. Xx

Hi Mai7 sorry to hear you have some side effects. I am dreading a sore mouth, just can’t handle ulcers and not being able to eat.

 

I had surgery 7 weeks ago, had mx, I think I would have found it difficult if I had chemo then surgery. It has taken me this long to recover from op. I am starting 3 x FEC then 3 x T on Tues.

 

Best wishes, hope you feel a bit better soon

Heather