1st check up today with oncologist and she looked at the ‘new’ lump she didn’t really comment good or bad she wasn’t giving anything away. She said it’s to early after just one treatment to know if it is working. I’m to have my second chemo Monday as planned then a week later I will have a scan and if it appears that it isn’t working then they will change the drugs for round 3. I’m so worried it’s not working If it isn’t controlling the breast lumps then perhaps it’s not slowing the lymph nodes down either my CT scan was clear on all organs I’m petrified of it moving out of the lymph nodes because the chemo isn’t working.
Does anyone know how often the chemo drug combo isn’t correct or how often this happens? I’m sure it’s because it’s such early days??
I actually feel bad discussing this with you girls incase I make any of you start worrying or questioning out treatment so I apologise and don’t want to make anyone feel more stressed but I don’t want to voice my concerns with my sister because she is worried enough and I don’t want her having this added concern.
Sorry girls but i needed to tell someone. Xxx
Bless you wolfEE. Its completely normal to worry during this journey. We are all here to support you. I’m sure it’s doing its job it’s just early days.
On a lighter note ladies what your weather like today? It’s very windy here in Manchester. So much so I thought I was going to lose my wig this morning in the playground taking my boys to school! Lol! Think I need to invest in some wig tape unless you ladies have any other tips xx
Wolfee. Sending you a big hug. I think that was my biggest fear of having treatment first so I completely understand your anxiety. Try to be positive for treatment 2 and wait for the scan. If they change your treatment that can only be a good thing . I have an undiagnosed lymph node that they can’t biopsy near my neck and I have some how managed to not think about it. I think my tiny chemo brain can only focus on one thing at a time.
Just seen the MacMillan advert and burst into tears. God that was too real for me right now. Was not expecting that emotional outbreak. ?
Big hugs WolfEE and treehouse. I think if we’re honest we all worry about whether the treatment will work. It’s good that they’re checking it with a scan between 2 and 3 and can adjust if needed. My hair started falling out so I have taken your advice and am now grade 3 all over. I put the hair on the compost and Tribble is now in use. X
Well done Trisha? Awesome!!
Glad Tribble has joined the party too.
WolfEE - big hug, please don’ t worry too much. I hope my news the other day hasn’t contributed to feelings of anxiety if lumps aren’t noticeably shrinking immediately. I think my experience was quite unusual and they seemed very surprised.
I was also told they would need to do a scan to see what exactly is going on in the breast/armpit and tweak the chemo if necessary and it sounds like they are going to do that for you which is really positive.
When they told me originally mine was fast growing I imagined it getting bigger by the hour and got quite upset. We all read too much into what’s said (or not said) and our minds work overtime.
Thank you all for your hugs and support.
It’s true I think it’s what is not said that sends us in2 overdrive and panic. Because the doctor didn’t really say anything at all good or bad I come away thinking well if she woukd have had something good or positive she woukd have just said it but because she never then it must be bad and becaue it’s bad she avoid any answer because she can’t say anything just yet!!!
That is all me and my brain and no reason that is the truth when the truth is probably she just doesn’t know it’s really to early!!
I wish I could fast forward two weeks have a peep and then rewind back and happily do the process even some dreaded sickness I’ll do!!
I’m feeling better already it’s just a let down when you think the day has come for some answers you’ve been waiting anxiously for a while and then the day comes and your no clearer. I’ve had my sulk and now I can just get on and take it as it is.
Thank you - I’d be lost without you all x
Mai congratulations on being tentacle free ? ? that is great news.
The verdict on my hair is in. ‘Shinead O’ Connor’ from my husband, ‘you look like a boy girl’ from my 4 year old son. Alas, I think his is more accurate. ? I’m keeping a headscarf on as more comfortable in my itchy scalp than Tribble. Trisha, well done for braving the salon and boss. X
Well this will be a birthday I will never forgot, chemo this morning (I took cupcakes in for all the nurses) then the chemo Floored me and I spent the afternoon in bed. When I woke up and looked in the mirror I realised how much hair I actually lost and noticed a few bald patches so I braved the shave.
Phew that’s enough for one day I think.
Thinking of Every single one of you brave ladies this evening xx
Oh anniea . Probably not the birthday you thought. Hope you managed to celebrate in some way. As your under 40 there is a project called willow foundation where you can apply for a special day out. My chemo nurse recommended it for me . I’ve applied for weekend in centre parks with my boys so just waiting to see. Maybe you could do something nice for a belated celebration. Stay strong and enjoy the rest of your day xx
katie I didn’t know that but you’ve actually just made my day and I’ll definitely look into it thank you x
Sorry your birthday was poop Annie. You really are so young to have this. Katie I just looked up Willow and started leaking again. That is so great. Go for it girls.
I am an emotional marshmallow today
Hi Trisha my mum was ER pos and I am not so need genetic results to decide. Surgeon said I have as much chance of it not being related to mum as is!.
I have been waking up at 4am for the last few nights in a hot sweat. Could this be chemo induced menopause? My temp is normal and my period never quite made it.
Oh well here we go again! Ding ding Round 3
Good luck Rosie. Thinking of you. ?
Good luck for today Rosie. Treehouse, my oncologist warned me that chemo would shut down periods and put me through the menopause (at least temporarily). She said that sweats are common especially at night. I expect being emotional marshmallow is partly due to this too, that and everything else going on… Trisha the grade 2 is a bit of a shock to the system. Let’s face it, the cold weather doesn’t help. I’m keeping my beanie on. ?
Pick something special anniea and enjoy yourself. How you feeling today?
Good luck rosie65 xx
Trisha u will get use to it in some weird way. Im still looking at how white my bald patches are lol!
U feeling any better today treehouse! Maybe it’s just having an effect on your hormones if you are emotional too? Although I am now craving marshmallows now you’ve mentioned them.
Good news bout tentacle free mai7!
Love the boy/girl comment MJK. Love how innocent 4 year olds are. My 4 year old turned around and said are you wearing your wig today mum. I actually have every day so dont know why it was any different yesterday!
Have good day ladies. I’m making a white chocolate and raspberry Cheesecake for hubbys birthday x