Sorry, yes I’m fine obviously having an emotional marshmallow day!! I am day 1 or is it day 2 - do you count chemo day as day 1? See what I mean the medication messes with my brain ha ha
Annie A I’m booked on one on June 20th it does look really good if you can get to it. I was told I could bring someone with me and just assumed they could come in with me.
Hi Rosie soft centre days will sneak up on us completely allowed and probably healthy too. I count treatment day as day 1. Just makes sense in my head. I definitely have chemo brain, I forget things. Today was the first day I had the energy and motivation to do stuff after round 2.
I heard ’ call me Al’ on the radio today made me think of you Mai7. It is definitely one of my chemo anthems. My onc is Israeli and no one can pronounce his name so when we met him, he actually said “you can call me Al” even the nurses call him Dr Al.
The other song has to be " Nothing compares to you" for obvious reasons. Help me out ladies we can make a compilation album. ??
Sounds lovely Annie I’m looking forward to it x
Hickman line friends, do I have to wait for the nurse to remove the plaster on the entry site? And does it need to stay covered until the stitch is removed (I know the exit site does)
The plasters really tight and driving me mad ?
I’m not sure about Hickman. I have to leave it with the PICC. Give the community nurses a call. X
Yes Annie I’m keeping my bra on it’s seems to help. The exit site is fine that’s not bothering my that much it’s just the plaster on my neck pulling like mad. I’ll have to try and find out who I phone and I have no number for the community nurses yet. Thanx for the advice ladies will have to bare with it for now xx
Thanks Mai I just had a look. I don’t tend to stray far from our little group as I feel I get all the support I need here. But I have just read some 10 year survivors stories and that is definitely encouraging to see the light at the end of the tunnel and life beyond. Feel happy and positive for a weekend with 4 kids. ( my step kids have yet to see me without a scarf ?)
I agree, survivor stories are wonderful in the midst of Google-negativity! I appreciate it’s easy to forget about this period, after 10years+ of being clear (my prayers for us all!), but I for one have vowed to post my own story (in faith) at future dates to give hope to ladies undergoing this tough period, especially younger ladies like myself. It’s always hard being the youngest person on the chemo ward, but I hold on to the hope of a long and healthy life ahead of me.
Positive thoughts
Wande x
My sister met a family friend on Thursday. She had stage 3 like me in her early 40s and is still fit and healthy (with nice hair)14 years on ?. Very encouraging. This morning’s shower was less so. I’m now almost bald. ?
I know the feeling MJK. Not much hair left and scalp covered in spots. Not the sexy Sinead look I was hoping for ?
Trisha, sorry your awake and worrying, not sure what happened with your bestie but I hope it can be resolved with a bit of grovelling and a sorry if she is a close friend she will know how up and down your mood is right now and forgive?
I’m having a struggle with my appearance also I feel so fat I’ve gained so much weight none of my clothes fit my comfort eating has court up with me literally over night. So even when I make an effort to feel better I am limited what I can wear and have to put hot frumpy clothes on then I reach for my makeup that is full of nasty sand parabens and I feel bad and then pull on the hot itchy wig!!! But I know this will pass I think it’s because I’ve been feeling well this week and know tomorrow I’ll be starting again with the next cycle and possibly feeling crappy again!!
We will get past this we are allowed ‘bad days / moments’
Try and get some sleeep, eveything is worse in the night and when you tired.
Thinking of you, chin up xxxxx
Bless you ladies. Those chemicals and steriods do play with our emotions don’t they. I’m sure your friend will understand Trisha. She knows what you are going through and a true friend will see that.
Remember our appearance is temporay. Don’t know why but I’ve got in my head I look like a hatchimal! Bald with a bit of fluff on top lol! It’s not easy with the wig but I tell myself it’s easier for my boys to see hair than no hair.
As for the make up my hubby bought me some paraben free stuff as a mothers day present. I actually quite like most of it xx
Keep smiling ladies and do whatever you need to do to get through this. We can deal with appearance on the other side Xx
I love your posts MAI7 always put a smile on my face. You should start writing a book of your journey it would be inspirational to anyone xx
Katie11, what brand is your makeup?
Mai7, ? Your the best
Most of it is benecos. Can’t really find much in boots / supermarkets but much more online x
Tesco are quite good for shampoo, deodorant etc and the sanex zero range is good for body wash , bubble bath x
Mai7, it’s stage 3 because it was a big tumor with lots of lymph nodes infected but no sign of secondary tumors. So I’ll take the hair loss and all the other delightful side effects as a sign that the chemo is being nasty to the cancer too. My son was sad this morning because he’s a cuddly lad and I’m not as comfy with a picc line on one side and flat on the other. ?
? Mai7 you keep us smiling ?. How do you manage such long and personal messages, do you take notes while reading our posts? Chemo brain has hit big time for me. Concentration is limited and oh look there’s a bee…
Benecos makeup looks good and reasonably priced compared to some. Roll on payday ?
A lovely weekend being ‘normal’ . Bumped into a work mate in a cafe and joined her for scones. ? hope everyone is ok and Trisha I hope you worked things out with your friend. She must know you have been through a lot. My youngest has just told Me that he is off school tomorrow due to teacher training day. If he had not said I would have sent him. I really had no idea. Not even got it on the calendar I checked the website, he is right!
Brain has packed and left for a holiday… I miss it!