May 2017 chemo starters

Mai7, frozen yogurt or ice cream helps throat, mood and all sorts.
I was told last time I woukd have injections on my next session (today) but then today they told me I don’t need them on FEC it’s when I switch onto the T that I’ll have them??
I’m glad the injections petrify me but I’m also worried that they made a mistake?? Perhaps it’s me taking the information in wrong.
Has round 3 felt worse that first and second would you say? Your doing so well you’ve got one more FEC? Then you’ll start T.
Xx

Ooh that’s interesting. So when do you girls do injections and how many? I start on day 2 and have 7.
I know what you mean about cellular degeneration…mine starts with throat, then as that heals, my skin dries and cracks mostly sides of my mouth so eating is difficult. Then mucous membrane ( nose and girl bits) . Then intestine start causing diarrhoea.
It has been nowhere near as bad this time.

Mai7 I would go to bed but am currently sat watching my son at football pratice for 2 hours!!!

I’m the same as you treehouse. I start day 2 for 7 days. When I start weekly on paciltaxol though I don’t have them thank goodness so just one more set of them to go x

Treehouse I don’t know why but I feel this one will work so kick ass - yep I think I might x

Glad to hear that wolfee ?. And remember rest days are when you’re fighting the hardest. My mum swore by positive visualization. She still talks about her white soldiers now.

Hi ladies. In one of my lovely gift boxes was some scalp oil. I have just done some research and the range also does skin care and makeup specially for cancer / chemo ladies. Jennifer young defiant beauty. They are very strict about what they put in their products. Don’t think it is cheap though. X

Has anyone else had a cold hand? I didn’t feel this last time but my hand (veins) still feel like something cold running through them my hand feels uncomfortable and cold???
I’ve been home hours not treatment started 10:30 this morning. It’s not painful just feels really cold and a bit stiff if anyone has felt this does it ware odd quite soon?
Xx

Sorry for the many typos in that vein message x

Hi Wolfee, how is your hand this morning? Is it the whole hand or just finger tips? Does it look different? Does it go away if you put it in warm water?

Morning Misyangel,
I had my arm rested on a small hot water bottle. In the night I rubbed some ibrogel on my hand it’s helped a bit. It doesn’t feel right still.
I can only use one arm during chemo because of lympth node biopsy so can’t alternate each time.

Morning Treehouse,
It’s mostly my hand along the top it aches and my hand just feels cold (not to touch) but like cold running through my vein still. My arm feels ok. It is a little stiff. It looks ok not swollen. Very uncomfortable.

Mmm. I have Raynauds syndrome and get very cold yellow fingers but it does not sound like that. I do get aching veins for a couple of days but my treatment is different and after 6 hours of being on a drip I expect it. If it is worrying you, call the help line. They will put your mind at rest or check you out. I keep getting asked about tingling fingertips as I think nerve damage is another side effect. Sending hugs x

Six hours!!! Gosh that’s a long time is that eveytime you go. Wow well done you xxx whenis your next one?

Hi Wolfee it’s probably best to just ring helpline for advice/reassurance. It’s probably nothing to worry about at all but that’s what they’re there for.

 

Day 6 for me and I’m about to ring them myself - have got bad case of oral thrush, same day as last time. All over throat, tonsils and difficult to swallow. I know you don’t want to hear this ladies but I’m struggling to keep weight on as it’s so painful to eat !

I might try one of the microwave heat wheat pad things? I’ll have a look on amazon maybe using that each day and squeezing on a stress ball might help??

Oh Rosie that sounds miserable. Hope you get something to fix it soon. I lost half a stone from diagnosis to start of treatment. But put it back on as I keep eating to fight nausea. I will try to keep it steady now if i can but really don’t have the energy to exercise more than gentle walking. Herceptin can affect the heart and everytime my heart rate goes up I feel it and get scared.
Wolfee first treatment was 8 hours. Second was 6. They are trying to push it faster but I got chest pains so they slowed it down again.

Treehouse - I was the same for first three days, just comfort eating to combat the nausea and eating loads and then when this kicks in I go the other way.

 

It is so difficult to exercise and I feel the same, scared that I might overdo it. I used to run three times a week but now can barely walk round a much shorter route without sitting down. I make myself go for a walk and I put my music on and I do feel better afterwards even if I’m not out for long

Rosie65, poor you I’m so sorry sounds awful. Yes call them the treatment for oral thrush is prescribed I don’t think you can get yourself at a chemist.
My oncologist suggested to use a bicarbonate mouth wash daily and also use some in hot wather for washing down below it can help prevent or make both not so bad. I must say I have stocked up but have yet used myself. I get so lazy but I will because it is a common side affect so better try and prevent than wait for it to happen or get so bad.
I hope you get something you can pick up today. And get some relief soon so that you can eat.
Let us know how you get on xxxxx

Found the energy to do some housework. Decided my fluffy bald head is a most excellent cob web detector?

How you feeling wolfee and rosie?

Thanks for websites Mai7 I’ll take a look. Hope you get some sparkle back xx

Glad your fluffy bald head has found a use treehouse! Lol x

I’m currently trying to drink 2 litres of water before round 3 tomorrow! Sick of visiting the toilet! X