Anyone got problems with their NHS Trust being hacked? I have a Genetics appmt on Tues so should be ok.
Ha Heather I’m interested to see the new routine of wash and go too although still quite sad at the thought of hair loss. It’s starting to feel tingly so know it’s sooner rather than later. I haven’t been told anything has affected me re the NHS hack, sure you will be OK by then. Are you tnbc too? I have my genetic testing in a couple of weeks too , let me know how you get on x
Yes I am TNBC too.
Are you on the Facebook private group, Triple Negative Warriors UK? Lovely group of ladies sharing lots of help and advice, you should join if not. Just contact them via Facebook, they ask about you and your treatment just to protect members then let you join. Maybe see you on there…
Shame, I’m not on facebook, maybe I’ll have to go for it and join x
I am doing well thank you. Very tired today but finished steroids too. Constipated if you really what to know but hoping senokot will do the trick tonight, too much info?? I don’t usually take much medication except vitamins and hay fever so struggling a bit!
Hope everyone else is ok.
Heather
Hope Mai7 and Heather are feeling better. Mu still have been worrying to see blood coming up.
How are other ladies getting on?
Anniejust did you book a masterclass or workshop or are they both the same? I’m definitely going to book on one its worth it for the goodyear bag. Please do tell us what it’s like.
Hope you all enjoy ur weekend. We were going to have a BBq but have now woke up to rain! Typical xx
Sorry for spellings stupid predictive txt changing things without me realising!
Anniej as for mirco blading it didn’t really hurt to be honest it was more of a scratching in a nice weird way. Kinda like if you have ever had them threaded. X
Morning all, 5am start for me too! Caught up on Masterchef final before anyone told me the result, so bonus for being up early!
Drinking black coffee to see if that helps the bowels, may have to go and bounce on the trampoline in the garden to see if that works.
No sickness feeling this morning!
Have a lovely weekend, stay well.
Heather
Gosh Mai7, that’s scary. Love how the cat tries to help but other half snoozing ! It would be the same in ours. If I have even been sick in the past the dog comes to sit with me and hubby doesn’t even know I’m awake! Xx
Hi sodastream, so lovely of you to think of us and let us know there is light at the end of the tunnel. It is lovely you are all still in touch and are all fit and healthy - very inspiring xxx
Mai7, sad thing is she doesn’t she just sits there looking at me! Lol xx
Don’t know the ages of some of you ladies but my chemo nurse has given me a leaflet from the willow foundation. They arrange special days out or weekends away for those with illnesses for those under 40. She said one lady has just had a weekend to centre parks with her family, which sounded lovely as I’m feeling pretty guilty at having to cancel our summer holiday this year for our boys xx
Hi ladies. Had a rough day 5, for 24 hours. Weepy and constipated and just tired. I know chemo is supposed to kill the cancer but last night I felt like it was killing me instead. Was so thirsty but nothing quenched my thirst. Nostrils felt like they were on fire. Cried myself to sleep.
Woke up 6am feeling better, constipation is now dealt with! I knew when I felt as low as yesterday I could turn it around and fight. I just had to get to that low point. Sounds crazy.
Hair is getting the chop very soon. Washed it this morning but it is full of dandruff. Leaving my legs fuzzy now as just can’t be bothered! The less I have to do the better.
Trying to eat healthily but all I want today is cheese and onion crisps, something that tastes strong.
Will be asking GP for Movicol and will take from day 1 next time, nothing worse than constipation.
Hope everyone else is ok.
Heather
Oh no Raitchr, sorry to hear you’ve had it rough, glad you managed to sort it and get in control again. It’s the feeling of powerlessness to do anything that makes it worse. Do the things you want to do when you’re feeling good, all in moderation of course.
Thankyou sodasteam for dropping by and helping to show everyone how life carries in and in fact gets better. Just what we all need to hear.
Hey Mia7, I think I’m as prepared as I can be. I thinking going for a visit to the unit on Tuesday might hit home a little bit but I just keep thinking whatever it takes to get this out of me. How are you? X
Had my first session on Friday of fec, I part fasted Wednesday and Thursday i.e. Only had 500 cals as I had read this can help alleviate symptoms. Friday was groggy all day Saturday felt great today feel great just very tired as had no sleep last night, anyone have any tips for helping sleep. I am hoping to go back work tomorrow but worry if I don’t sleep like last night I will find it impossible. As I am only temping soon as I stop going work I will have to finish straight away. 7 more sessions left to do feels like a long road
Misyangel, all I can suggest re sleep is if you are on steroids for 3 days like me then take them 8am and 12pm and never after 2pm. Also I kept busy in the mornings in between steroids then powernapped straight after lunch for 1 hr max.Kept me going until bedtime which was 10pm latest.
I had a bad day 5 yesterday, could not focus or hold an in-depth conversation, I could not have driven or gone to work in that state. I think my problem was too much medication on my system and my body just had enough.
Sleep better tonight.
Heather
Can’t believe round 2 is coming round quickly Mai7, feel like your our guinea pig going in first to test the water.
Hope your feeling bit better Heather.
Misyangel, I had problems sleeping too even not taking steroids after 2pm. I just put up with it and it stopped once the steroids finished although I do seem to still wake up early most days.
Good luck for Wednesday anniea. It’s a weird time isn’t it. Part of your just wants to get started and the other part wants to put it off forever. Sure you ll be fine, just take each day as it comes xx
Forgot to say mouth is doing ok, a bit fury but ok so far.
Good luck to those starting this week and those on their 2nd dose!
Early night for me tonight, same time as the boys.
Thank you katie, yes you are right part of me does just want to get it started just so I know how I’m going to feel so I can deal with that. My daughter is 13 tomorrow and I’ve tried to talk to her about how she’s feeling about this coming week but she just got upset and said she didn’t want to think about it 
so yes it’s going to be a rough week I imagine x