Ooh trish I’m jealous they don’t give me creative or bilirubin levels!
Not sure if levels are individual though based on what you were at the start, so should maybe read with that in mind
Was told HB should be 120-140 (but mine has never been above 120 the whole time. It was 134 pre chemo)
WBC >3
platelets >100
neuts>1.5
That’s why I was freaked out last week when levels were
HB 93
WBC 43.9
platelets 580
Neuts 42.5
Nobody seemed concerned and the nurse said they had been checked. I thought he’d written them in incorrectly. I guess it’s better that they’re high, apart from the HB and I shouldn’t get an infection with those neut. but they still gave me 5 injections.
Katie - do you have injections?
Oh well off for my weekly dose now so I’ll find out this week’s levels. Good luck to all having treatment today
Hell I am there for hours I could copy them in myself if they pull up my notes. might try that next week.
Does anybody else get pain in their lump? I get it every cycle for about a week. I can’t sleep on my front without painkillers. I imagine little Chemo monsters are chomping it!
Not feeling too bad this morning after first weekly withe no steriods, slept all night too, always a bonus. I don’t have injections on weeklys rosie so will see how I go.
My ward for chemo is very small. There is a Christie centre on site for certain cancers but breast cancer and one other can’t remember is in the breast unit so very small but nice as it is the same 5 nurses every week. They are quite happy with patients coming early /later to appointments. So when have a 9am start they are quite happy for me to drop boys off at school and then go in. Feel like I know the nurses quite well now and one even went to school with my sister.
Ooh letter just arrived with appointment to see oncoplastic surgeon next wed.
Looks like I will have to start getting my head around the next phase ?.
Big girls pants!
Great news Mai. If you are anything like me, I hit a wall as soon as steroids stop and I only perk up when injections have finished. Be kind to yourself.
Are you doing injection? I have 7 days.
I feel so much better today, I managed a short visit to work !!!
Have fun in Devon Misyangel! Weather bit up and down here in East Devon. Lyme Regis and Axminster seem to have their own micro climate. Im feelin bit rough. Saw nurse as a precaution and have a slight temp and red throat. On Amoxycillin. Th boyfriend done one again. When o when will I learn. Anyways cuppa tea and a biccy. Film then zzzz’s. Night all.
Hi everyone. I’ve just been catching up on your week. My eyes have been less sore but I struggle with the small print. I’ve also noticed my memory is a bit patchy at random times. Otherwise a week of feeling ‘normal’ which is great. Good to hear the gene test was negative Heather. Sorry you’re still having such a rough time treehouse. Hope you’re ok after T1 Mai7. Have a great time in Devon Missyangel. Sorry I can’t remember more but hugs to you all. I have another week of (hopefully) normal before T1 on the 27th. Ok so this will sound shallow but timing is a bit annoying as it’s the day our new M&S opens. Our entire town centre has been rebuilt and this is the first one to open and I’ll miss it (grand opening of the whole ghi g is on the last day of chemo). By the way, I gave blood once, when I came round my blood pressure was 70/50 and was told not to come back…
A lovely session learning a few new tricks. Lots of lovely ladies to chat to. 2 who had been on fec had lost toe nails eek! Several recovering and doing really well. Lots of smiles and a nice goodie bag too.
Such a shame I have come home to wash it all off.
Mai no one mentioned avoiding Garlic I have eaten lots. Does taste a bit funny. Will try to avoid from now on.
Big tip revita lash. Stops them falling out or helps them grow back if they have.
Hope you are ok today Mai. I am back to normal ( chemo normal).
I know what you mean about eyes. I always wear specs but am questioning if they need checking again. I think I will wait for chemo to finish then go get another eye test.
Onc couldn’t find lump ( but he never really saw it before treatment either) but that makes me happy. He said I can have another blood transfusion if they drop again but fingers crossed it won’t be necessary. He also mentioned radiotherapy for the first time so I may need that for the cheeky gland by my collar bone that they can’t get to.
All good. The fog ahead is lifting and I am starting to see what is coming.
Last day at school ??
Hi Mai7, good to hear bottom is ok and using sudacrem, I had to use it last week, just to soothe a slight burning feeling, worked in a day and have been fine. It is good stuff as it doesn’t wash off easily, I remember plastering it on the boys when in nappies!
My bone pain started day 4 of chemo, day 1 being chemo day for me. It wasn’t severe, just aware in hips and lower back. My nails started to hurt day 4, like I had a clothes lpeg on each finger, a slight throb. Keep using Epson salts as that has reduced my finger pain. They feel a bit like they are bruised and I have been a bit clumsy, struggled opening packets and doing buttons but better each day. TMI alert! I did struggle bottom wiping with poorly fingers so have used moist toilet wipes for a day or two…
Hi Mai and Heather.
Sorry to hear about your finger issues, make sure you mention it at next appointment. I know when my arm was an issue every little thing was a pain, opening doors, turning keys, toilet stuff. Even holding a fork and typing. Does paracetamol help?
My heart scan results were not on the system yesterday but onc was very reassuring and said only 5% of people have problems and that I shouldn’t worry, the scans are just a precaution. So that was good. I have an MRI in 3 weeks which is great but that will be day 7 of treatment 5 and that is usually me at my worst re side effects so not looking forward to a long drive and all the shenanigans when I would rather be in bed. I have weeks on the calendar that I have just written off.
Support wise, my family have been beyond AMAZING. My mum and dad are ALWAYS available for school run, cooking, laundry etc. My sister in law has now been to stay 3 times and each time completely takes over and pampers me.
I feel truly blessed and well loved and cared for.
My husband is the most amazing man in the world!!!
Also I have had regular cards and cake sent from work colleagues letting me know they have not forgotten me.
As support goes I am spoiled rotten. And love and appreciate everyone of them.
My work have been fantastic too. I have been in twice to see them and they ask to come and visit at home or go out for drink and meals. I do put them off as I don’t want germs and don’t like the thought of picking up germs at a cafe etc. They understand me and my fear of germs! They have sent me a gift card for a meal out when I finish chemo and my tastebuds come back, as at the moment all food tastes like cardboard boxes, except marmite on toast and salt n vinegar crisps. I hate the taste of chocolate right now…
Just had a call from the hospital something or other was slightly low from my blood test today can’t remember what she said it was 1.3 and needs 2 be 1.4. So I have 2 turn up Monday an hour early for another blood test and they will see if what ever it is has recovered enough for the chemo if not it will be delayed. Hope not I don’t like the idea of a delay incase something spreads??
