Thatās great news @tori123
So I had my PICC line out on Friday Had my first lay down soak in the bath since April last nightā:smiling_face_with_three_hearts:Im meeting the surgeon Tuesday, so hopefully will get a date for surgery.I have a phonecall with my oncologist tomorrow, so I will find out how much my tumour has shrunk since starting chemo and immunotherapy.I had the breast MRI two weeks agoā:grin: xx
Been a lot going on for me so been off here for a while and itās so great to come back and see so much good news for everyone itās been a slog for us so to finally start to see the end in sight is so positive!
Selfishly I feel a little sad for myself as Iām so far behind you all, Iāll lose my little support group. Iāve not had chemo for 2 weeks as I took a severe allergic reaction (again) to my dressings after port was fitted so theyāve been unable to use it itās still not healed so no idea of Iāll get chemo this week either, which means itāll be Christmas before I finish chemo still a good Christmas present I guess!! Not only that but watching you all come out the other side is truly heartening
Much respect to you all
@kiltie ,sorry to hear you are having such a hard time of itā:heart: we will be here cheering you through xx
So i had a phonecall with my oncologist today.I had an Mri two weeks ago after finishing chemo.I have had a complete response to Chemo.No tumour showing just the markerā:smiling_face_with_three_hearts:I will meet the surgeon tomorrow and have a date for surgery xx
Great news @budsbails2301
@kiltie you could join one of the later chemo starters groups to continue getting support. Some of the July starters will still be receiving treatment until December
I joined 2 groups as I thought I was having chemo before surgery then it changed to surgery first. I was active in both groups.
Such fantastic news for you @budsbails2301!! Must be such a relief and I hope all goes well with the surgery
Thank you @naughty_boob for the suggestion of joining the July group, I hadnāt thought about that
What wonderful news from your mri scan. Hope meeting with the surgeon went well and you soon get a date for surgery.
@kiltie sorry to hear things are still difficult for you but hope you get to progress with the chemo soon. The reaction to the dressings sounds really sore and upsetting. I hope youāre doing ok.
My final chemo is due next Monday, Iāve got an appointment with the oncologist tomorrow where I should be finding out about next steps of radiotherapy and hormone treatment. It will be the first time Iāve seen him since he set out the plan for my treatment in April which seems like forever ago.
@budsbails2301 great news for you!! I am so pleased! Its such a relief isnt it.
@kiltie oh im so sorry to hear this! As hard as it is, trt to stay positive! We will all be cheering you on! Im sending all the positive vibes for you.
I went for my radiotherapy planning today. Start on the 19th nov for 10 days! I got three new tattoos . Im also getting ready to go back to work next week!!! I have felt like im never going to get there but im so excited. I just want some normality in my life.
My eyebrows have started to come through but the skin where they should be is dark blueā:joy: so looks like ive got a bruise on either side,it makes me laugh every time i look in the mirror which is a huge difference to me crying every time . If anyone can remember i mentioned in August about us buying our first homeā¦ well HOPEFULLY we will be moving in at the end of nov!!
@dragonk That is great news for you, be a relief to be finished chemo Iām sure, how are you feeling about radio & hormones?
@glitteryrainbow wow sounds like things are moving at pace for you now, but the best bit is obviously moving in to your new house! Having just moved a year ago (almost to the day) I can appreciate the effort of packing up your entire belongings and then unpacking at the other end, so take your time and know that some boxes never get unpacked
So no chemo again for me this week and back on antibiotics unfortunately. I asked again about what the delay meant but they keep saying itās the number of chemo sessions thatās most important. I figure of course theyāre not really likely to be like āohhh well itās not greatā and I once read somewhere that you shouldnāt ask questions if you donāt know what to do with the answers, so Iām just not going to think about it too much and just keep plodding on. In other news I had an ultrasound today and lump under my arm is apparently scar tissue which I am only now feeling as the seroma after surgery has finally completely drained away - great I think, but then he goes I can see 6 lymph nodes (I was supposed to have had full clearance) he said they donāt look suspicious but Iād like to do a biopsy!! Iām thinking ugh why couldnāt you have just left me with the good news!! So heās all prepped for biopsy when I pipe up ābtw Iām allergic to dressings and certain antibioticsā and theyāre like what?!? So it was eventually decided to wait until my allergy testing next week before going ahead, so now have more pain, discomfort and lingering uncertainty to look forward to honestly I couldnāt make my life up right nowā¦
Oh @kiltie nothing is going your way at the moment. I feel so sorry for you. The tide will change and everything will fall into place at some point and it will be plain sailing again, i am sure. Its so frustrating! Have you developed these allergies since starting chemotherapy or have you always had them?
I am super excited to move into our home! We keep driving up to the house and at the weekend we went and showed the dogs (saddos i know ). We hung them out the car window and said āthis is your new home!ā We then went to their ānew fieldā to take them for a walk . It honestly feels like weāve been in this process forever. Im seeing the new house as a new beginning for our lives
I wonāt be finished until mid December. I joined the September group as well. I restarted my treatment in September and will be having weekly chemo until then.
@glitteryrainbow thank you for your words of encouragement, having been on this rollercoaster yourself I know you truly understand when you say itās frustrating, but you also know from experience that you can come out the other side!
And love that you took the dogs to their new home I can just imagine that they were in the car doing that doggy thing of looking everywhere but where their supposed to when your pointing things out (or at least mine does!!) Our dog (Hamish the cockapoo) was a bit out of sorts for a few days in the new house but he soon settled in and loved exploring all the new walks and meeting new friends! Are you moving far from where you are at the moment?
@rosa1 how are you getting on with the wee one most importantly? Is your other daughter enjoying her big sister role? Also wondering how youāre finding the weekly paclitaxol, are you having any side effects? I think I might join the September group too, as did look at July but a lot of them are finishing November and with this weeks delay Iām now looking at Boxing Day for my last chemo! Hoping at this point I donāt end up joining any further groups and ending up in a full calendars worth
I think our new neighbours must think we are nuts already. The dogs didnt take any notice of the house, they were more interested in going for a walk. We arenāt moving too far, just about 20 minutes from where we are now. We started renting this little flat when we were both at university and didnt have any belonging to our names but now weve out grown it.
Ive got mixed feelings about returning to work on Monday. Im so excited as I have been so unbelievably bored but i am also feeling a litte bit sad. Mostly because i am going to miss being with my dogs . But ive become very lazy over the last couple of weeks so can imagine going back to work is going to tire me out, even if it is just for the mornings at the moment.
Hi @kiltie. Iām getting on ok thanks. Mia keeps me busy. Itās definitely hard work but Iām loving the newborn stage. So far Iām not having any major side effects. Just slightly tingling in fingers and toes and achy joints/muscle. How about you?
Aw @glitteryrainbow sounds so nice for you to grow into this new house together; new year, new house, new beginnings and good luck with work on Monday, and Iām sure your doggies will be very happy to accommodate lazy afternoons with you instead
@rosa1 I imagine this definitely wasnāt how you imagined spending the first few months with her, Iām glad that youāre both doing okay and enjoying this time together Itās good that you say youāre not having any major side effects; although Iāve only had 4 I found it much easier too, compared to the EC, but interestingly enough seemed to suffer the same side effects that you mention. Although now having had a 5 week break I note that the joint ache is still there but the tingling died right down, so Iām hoping that thatās a good sign that your nerves can recover, but also that this break might almost be a reset for them so itāll be like starting from scratch again when chemo resumes. Iām not sure if youāre still cold capping or not but I did find my hair (which had grown back in the last break I had ) started to fall out again, so itās obviously quite hard on hair (although itās now stopped again - poor hair follicles have no idea whatās going on at this point!)
Yes @kiltie i am continuing to cold cap. Iām not shedding as much hair as I did on EC but hair is failing out daily but it did also start to grow back whilst I had a break. Itās definitely not how I imagined life would be with a newborn again but unfortunately I canāt change my situation x
Just popped on to catch up on everyoneās news. @tori123 great news on your clear margins. @budsbails2301 hope you enjoyed that bath and again great news on your mri results @kiltie sorry to hear of your dressing reaction and delays @glitteryrainbow I hope return to work goes well, the image of your doggies checking out their new pad made me chuckle @dragonk final chemo, hooray for you, @rosa1 good to hear from you, enjoy what you can of those early days and baby snuggles in-between treatment
Iāve probably missed someone, i do read all your posts but donāt always get a chance to respond. Iām back to work on Monday with a phased return until Christmas and feeling a little odd about it. Iāve checked my work calendar and can see I already have more meetings to attend then my initial 12 hours will allow and find myself wondering how much part time Iāll actually be doing. Iāll have to be strong willing with tracking my hours and being kind to myself. Looking forward to getting stuck in but not too all the firsts ā first time people see me with short hair, first time seeing people who didnāt know, first time answering that how are you question, first time experiencing that freakishly hot sweat from the tamoxifen when Iām supposed to be chairing a meeting! I do hope these hot sweats tail off as they are deeply unpleasant.
Any how, Iāve decided to go with the, āitās been pretty tough, but Iām coming out the other side now. Hair, eyebrows and eyelashes are growing back well and Iām feeling goodā . Iām not sure everyone really wants all the details really.
Hi all, has anyone had unbearably itchy hands and/or feet from paclitaxel? Is there anything that youād recommend to help with the itchiness? I finished 12 rounds of paclitaxel a week or so ago, and have neuropathy in my hands and feet but have also started getting unbearably itchy hands (having had it in my feet before).