May 2024 chemo starters

Uh, that is very much not what you need, I do hope you manage to avoid it. :crossed_fingers:

@tori123 oh no. Thatā€™s the last thing you need. Hopefully you wonā€™t catch anything.

Has anyone noticed that their pubic hair is starting to come out. I noticed it today when I had a bath and I saw a very small amount of hairs in the bath. Is this expected? Iā€™m currently on cycle 2 of EC.

@rosa1 Yes! This started for me after my first EC cycle before I lost any head hair. Seems to have stopped now but I think Iā€™ve probably lost about half of it.
Noticed the other day Iā€™ve lost all the underarm hair on the left but not on the right where I had my lymph node clearance.

Has anyone experienced headaches from filgrastin injections? Also my husband had been giving mine but it always hurts when the liquid is being administered. Iā€™ve been using my thighs. Not sure if itā€™s the technique or whether itā€™s meant to hurt.

Hi, yes to the pubic hair, similar experience to @dragonk, about half gone and underarm hair gone. Chin hair stubbornly clinging on :laughing:
Re the filgastram, I do get some pain at the end of the injection and usually 1 or 2 of them will bruise and ache for a few hours while the rest are fine.

Sounds similar to me then. It hurts more in the middle and end of the injection. Itā€™s probably something Iā€™ll have to grin and bear every 3 weeks. I hope the headache goes soon. Paracetamol isnā€™t really working and I remember first time it took 2 days to go

My husband does my filgastrim injections too but into my stomach alternating sides each evening, I squeeze the flesh and find itā€™s better when I squeeze a bit harder. Iā€™ve come to dread them a bit but they donā€™t really hurt that much. We take it out the fridge about 30mins beforehand so its not so cold so donā€™t know if that helps.
Iā€™ve not noticed headaches from them but for a few days my whole back aches, from the base of my skull and shoulders right down to my hips - it eases off before Iā€™ve finished all the injections which is weird I suppose.

Hi everyone :grin:,
I am 52 and i was diagnosed with TNBC on March 28th 2024.It is stage1 grade 2 so caught early.My plan is 12 weekly sessions of Abraxane,3 weekly immunotherapy and carboplatin.This is then followed by 4 EC which will also be 3 weekly.I am awaiting to find out if i am Brac 1 or Brac 2 positive ,if that is the case then the lumpectomy planned will change to bilateral masectomy,followed by radiotherapy.I had my first chemotherapy of Paclitaxel on April 22nd but had a severe reaction.I then had a staph infection and needed two weeks in hospital on IV antibiotics.As my partner said you dont do things by halvesā€‹:rofl:.So forward to May 23rd where i had my first round of immunotherapy, carboplatin and Abraxane :grin: all went well. I didnt cold cap and on Sunday i braved the shave as each day my hair was coming out at an expendential rate. I hve bought a number of scarves and wigs but at present feeling empowered with my new lookā€‹:smiling_face_with_three_hearts: More shocked at how grey i amā€‹:rofl:. The filgrastim injections i take loratidine an hr before and i find this alleviates the bone ache,obviously im not a medical professional so i would check with your team first.I had a PICC line inserted, as 15 cannulas and a central line later in hospital just to get my antibiotics in.The best decision everā€‹:smiling_face_with_three_hearts:, painless and no more neddles.I bought a limbo sleeve ,think it was 22.00.Again best thing ever,never got the dressing wet.Ive caught up on all the chat,so will be lovely to chat with you all and be a passenger on each others journeyā€™s :smiling_face_with_three_hearts::smiling_face_with_three_hearts:.

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@budsbails2301 welcome :hugs:

@rosa1 same on the pubic hair. Isnā€™t this journey just so glamorous!

Ive been losing head hair since Monday - day 13 after my 1st chemo but today day 15 itā€™s just shedding all the time. I meet some colleagues for coffee and my hair kept dropping onto the white cafe table. Luckily they are very supportive colleagues. I think itā€™s just generally shedding all over at the moment rather than specific patches though. So Iā€™m thankfully for that.

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Mines the same @snoop182 So far all over. Itā€™s constantly on my clothes and floor.

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Sitting outside the hospital about to go in for my 3rd EC. Absolutely terrified. I thought this would get easier but Iā€™m not finding it that way. :sob:

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Hi @tsoph i hope you donā€™t mind me popping onto this board! Iā€™m an April Starter. Like you I had an anaphylactic shock to the Docetaxal. Iā€™ve just completed 3 x EC and am due to start 9 sessions of Abraxane.
I remembered that you were due to start the same drug.
How have you found it?
Any tips or advice would be appreciated.

Thanks
Helen x

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Hi Helen,
Sorry to hear you had a reaction too,its quite frightening isnt.Since having the Abraxane there have been no problems at allšŸ˜ and only 30 mins as well Lisa xx

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Hi Tori123,
Sending you a big virtual cwtch.Its understandable that you feel that way xx

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Wow 30 mins thatā€™s amazing! With the EC Iā€™ve been there half a day. Thanks Lisa!

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Hi @hc1973! I remember you from April, I moved over here as I didnā€™t reeeeeally start until May due to the reaction!
Abraxane has been part of a combination for me (abraxane and carboplatin)
Honestly, Iā€™ve had very minor side effects; nausea (managed with meds) bone aches, but this might be the filgrastim and fatigue.
Iā€™ve lost my hair now too, but major side effects, nothing too severe. Iā€™ve yet to have any neuropathy etc that they mention although Iā€™m only 2 cycles in (of 6) Itā€™s so far been okay to tolerate! Itā€™s also quick, Itā€™s only a 30 minute infusion :slight_smile:
Best of luck, when do you start?

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Hi @tsoph thanks for answering! I start next week. Iā€™m due to have 9 x weekly Abraxane.

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@tori123 Iā€™ve just seen your message so I hope you got on ok with your 3rd cycle. Mine is tomorrow and Iā€™m not looking forward to it either. I hope youā€™re ok over the next week. Big hugs.

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Big hugs @tori123 - I hope it wasnā€™t as bad once you got going. Rest up now, hopefully the meds will keep the side effects at bay, and youā€™ll feel better in a few days time x

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