Uh, that is very much not what you need, I do hope you manage to avoid it.
Has anyone noticed that their pubic hair is starting to come out. I noticed it today when I had a bath and I saw a very small amount of hairs in the bath. Is this expected? Iām currently on cycle 2 of EC.
@rosa1 Yes! This started for me after my first EC cycle before I lost any head hair. Seems to have stopped now but I think Iāve probably lost about half of it.
Noticed the other day Iāve lost all the underarm hair on the left but not on the right where I had my lymph node clearance.
Has anyone experienced headaches from filgrastin injections? Also my husband had been giving mine but it always hurts when the liquid is being administered. Iāve been using my thighs. Not sure if itās the technique or whether itās meant to hurt.
Hi, yes to the pubic hair, similar experience to @dragonk, about half gone and underarm hair gone. Chin hair stubbornly clinging on
Re the filgastram, I do get some pain at the end of the injection and usually 1 or 2 of them will bruise and ache for a few hours while the rest are fine.
Sounds similar to me then. It hurts more in the middle and end of the injection. Itās probably something Iāll have to grin and bear every 3 weeks. I hope the headache goes soon. Paracetamol isnāt really working and I remember first time it took 2 days to go
My husband does my filgastrim injections too but into my stomach alternating sides each evening, I squeeze the flesh and find itās better when I squeeze a bit harder. Iāve come to dread them a bit but they donāt really hurt that much. We take it out the fridge about 30mins beforehand so its not so cold so donāt know if that helps.
Iāve not noticed headaches from them but for a few days my whole back aches, from the base of my skull and shoulders right down to my hips - it eases off before Iāve finished all the injections which is weird I suppose.
Hi everyone ,
I am 52 and i was diagnosed with TNBC on March 28th 2024.It is stage1 grade 2 so caught early.My plan is 12 weekly sessions of Abraxane,3 weekly immunotherapy and carboplatin.This is then followed by 4 EC which will also be 3 weekly.I am awaiting to find out if i am Brac 1 or Brac 2 positive ,if that is the case then the lumpectomy planned will change to bilateral masectomy,followed by radiotherapy.I had my first chemotherapy of Paclitaxel on April 22nd but had a severe reaction.I then had a staph infection and needed two weeks in hospital on IV antibiotics.As my partner said you dont do things by halvesā:rofl:.So forward to May 23rd where i had my first round of immunotherapy, carboplatin and Abraxane all went well. I didnt cold cap and on Sunday i braved the shave as each day my hair was coming out at an expendential rate. I hve bought a number of scarves and wigs but at present feeling empowered with my new lookā:smiling_face_with_three_hearts: More shocked at how grey i amā:rofl:. The filgrastim injections i take loratidine an hr before and i find this alleviates the bone ache,obviously im not a medical professional so i would check with your team first.I had a PICC line inserted, as 15 cannulas and a central line later in hospital just to get my antibiotics in.The best decision everā:smiling_face_with_three_hearts:, painless and no more neddles.I bought a limbo sleeve ,think it was 22.00.Again best thing ever,never got the dressing wet.Ive caught up on all the chat,so will be lovely to chat with you all and be a passenger on each others journeyās .
@budsbails2301 welcome
@rosa1 same on the pubic hair. Isnāt this journey just so glamorous!
Ive been losing head hair since Monday - day 13 after my 1st chemo but today day 15 itās just shedding all the time. I meet some colleagues for coffee and my hair kept dropping onto the white cafe table. Luckily they are very supportive colleagues. I think itās just generally shedding all over at the moment rather than specific patches though. So Iām thankfully for that.
Sitting outside the hospital about to go in for my 3rd EC. Absolutely terrified. I thought this would get easier but Iām not finding it that way.
Hi @tsoph i hope you donāt mind me popping onto this board! Iām an April Starter. Like you I had an anaphylactic shock to the Docetaxal. Iāve just completed 3 x EC and am due to start 9 sessions of Abraxane.
I remembered that you were due to start the same drug.
How have you found it?
Any tips or advice would be appreciated.
Thanks
Helen x
Hi Helen,
Sorry to hear you had a reaction too,its quite frightening isnt.Since having the Abraxane there have been no problems at allš and only 30 mins as well Lisa xx
Hi Tori123,
Sending you a big virtual cwtch.Its understandable that you feel that way xx
Wow 30 mins thatās amazing! With the EC Iāve been there half a day. Thanks Lisa!
Hi @hc1973! I remember you from April, I moved over here as I didnāt reeeeeally start until May due to the reaction!
Abraxane has been part of a combination for me (abraxane and carboplatin)
Honestly, Iāve had very minor side effects; nausea (managed with meds) bone aches, but this might be the filgrastim and fatigue.
Iāve lost my hair now too, but major side effects, nothing too severe. Iāve yet to have any neuropathy etc that they mention although Iām only 2 cycles in (of 6) Itās so far been okay to tolerate! Itās also quick, Itās only a 30 minute infusion
Best of luck, when do you start?
@tori123 Iāve just seen your message so I hope you got on ok with your 3rd cycle. Mine is tomorrow and Iām not looking forward to it either. I hope youāre ok over the next week. Big hugs.
Big hugs @tori123 - I hope it wasnāt as bad once you got going. Rest up now, hopefully the meds will keep the side effects at bay, and youāll feel better in a few days time x