May 2025 chemo starters

Hi, I hope your chemo goes well today. Given the lack of sleep - maybe you can sneak in a quick nap whilst they admit the meds. Sending hugs.

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Thank you @sim2 and my thoughts exactly :sleeping: 5 hours is plenty of time for a snooze. Ironically I got up this morning to find my hair is now shedding but also inspired by @hoggie - you look fabulous :heart_eyes: love to everyone x

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That is a beautiful look hoggie! Im so sorry that you are going through losing hair. So far ive lost most of my pubes and my armpit hair hahahaahaha! Not much from up top yet. This is all temporary, keep reminding yourself. Gosh but its hard sometimes. I cant help but gently touch my hair all the time and worry every itch is it about to blow off in one big lump when im walking the dog and its windy :joy:xxxxx

Today had check in with consultant and PICC to be fitted Thurs. Im so scared, i didnt realise it threaded all the way through to near the heart and my panics are back. Anyone else got one and have words of reassurance? Will I feel it when I’m going about my day? If you lay to sleep on that wide will it do something?

I requested a fitnote for my new job, putting off starting until September when school goes back. I suppose I’ll have radiotherapy around that time too. Trying not to think to far ahead but it is hard. I feel so much better since last round of chemo and it seems such a shame to spoil it by having to do it again this week :rofl:

Xxx

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Hi, i had a picc fitted before my first chemo. It was absolutely painless - only a little injection in my upper arm to numb it. A wee bit achey sfter but easy coped with paracetemol. Youll need a shower sleeve, Amazon sells them, and i got a couple of picc covers from amazon too. I bought ones with a silicone tape around one end so it doesnt roll down and pinch the skin near your line. It is so easy getting bloods and chemo without needles every time.

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Major hair loss today. I thought id prepared for baldness by giving myself a buzz cut but i got really emotional when i actually saw skin. I think this is the worst part so far - far worse thsn having a mastectomy. I feel so ‘exposed’ and not feminine. I know i have wigs and scarves but ive covered up my mirror in the bathroom until i readjust and can cope with seeing my scars AND baldness as i step out if the shower!

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I have a picc line, its not too bad having it put in try not to worry! It’s so worth it though very straightforward having bloods and treatment! :+1:

Oh so sorry to hear this Trish! It will take time to accept the new you I’m sure.
Someone said a good way to look at scars is that scars are why you are still here. They are your saviours.

I too am traumatised by it all. But somehow part of my brain is still in a total denial. Today most of the hair on the top of my head is gone and I look like a weird professor who tries to brush the 3 hairs from the side of his head in attempts to cover the bold moon shining on the top. :sweat_smile:

My husband is suggesting I should go for a wigg consultation, but I’m too worried that doing so will prove that it’s all actually happening and I’ll just walk out sobbing


How much did you pay for your wiggs btw?
I can see good wiggs are from £300 to £900 and I’m struggling to justify it for a mere 3-6 months of boldness.

Did anyone find a good wig on Amazon?

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Hi, one of my wigs was free from the NHS but ive also bought some really nice ones from vinted. There are a lo
t of ladies selling them there after cancer treatment. I really like Raquel Welch wigs, they are nicely cut and comfortable. I would say not to spend too much initially - and vidit a wig specialist to try on styles without committing to buying. Most are happy to do this, ive found. Xx

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Hi yes the hair thing is such a big thing mine has now gone from the sides of my head. I’m getting my hairdresser to buzz it short at the end of the week and will get her to also trim my wig into more of my normal style. My wig was also free on NHS and will see how that goes and then perhaps buy something crazy from Amazon because why not :joy:

I had m uh second chemo yesterday although it was touch and go as they were concerned about a rash I have. After some toing and froing we got there as I promised I felt well and would take care of myself at home. Was such a relief not to miss it.

Hope everyone else is doing ok xxx

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Aw. Happy it went well! Did your rash gov away in the end? Did they do all the pre-checks blood tests just before the session?

Btw How do you get a wig via NHS. Do I need to go through the GP?

Hi there, contact your bcn and they’ll arrange the wig appointment and voucher. Get it booked in early as you’ll need to arrange it when you’re having a good week on chemo x

You can try at your MacMillan at your trust they usually have pre loved wigs that you can purchase for a donation, try there and also love ya babes do a great range not just fancy dress ones, you can also find a great range in independent shops where they have wigs, hair extensions, makeup, hopefully you have a few near you, they are all extremely helpful and understanding and have a range of real or synthetic wigs. I had both real hair one and synthetic ones and ended up happier in synthetic ones so do try a few try all sorts of styles and colours :heart: also don’t forget to ask your trust about a wig voucher too if they’ve not already given you one :heart:hope that helps :two_hearts::two_hearts::sparkles::sparkles:Shi xx

Hi @sim2 and thanks. I still have the rash and have been told to carry on with antihistamines and cream. I have to see doctor next Thursday before my next session on the following Monday 16 June to check I am ok to go ahead. I did my bloods last Wednesday 28 may before my session yesterday. Although to be fair I hadn’t been told to only found out when I phoned my nurse to ask when blood tests would be done so perhaps worth phoning your nurse? Good luck with next session! Xx

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My hair was coming out on Sunday in clumps so my husband shaved it for me. It’s down to a level 4 I think. It is now really patchy but I can’t bring myself to go completely bald. My scalp is so sensitive though, to the point I was rushing home to rip my wig off earlier. Have any of you found your scalp is sore and found anything to help?

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My hair has all fallen out and I found that my head was very itchy to start with but it is now also tender. I can’t seem find any information on what best to use either :pensive:. I am currently wearing some soft head coverings which I ordered online from Annabandana. I find these to be really nice and comfortable to wear.

I am due to have EC number 3 tomorrow and I can’t say that I’m looking forward to the week ahead. The side effects just completely floor me.

I hope everyone else is having a good week.

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Good luck for tomorrow. Is this your last round of EC?

I’m wearing a soft turban style hat I got off Amazon which doesn’t seem to irritate my scalp. Wearing a bamboo cap at night. Today it doesn’t seem to be as sensitive thankfully. Dreading washing my hair tonight as I think it will all go in the shower. My sister saw my head for the first time today and she started crying. Strange thing was I literally felt nothing when it was being shaved off, no upset tears or anything, just numb.

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Hello ladies - @maystart25 and @sunflower9 like you my hair is now falling out quickly so am going to my hairdresser next week to get it buzzed off and to get my wig trimmed. Went shopping with daughter this morning to get some nice headscarves. It’s hard though having to adapt to this. Hope you’re ok and good luck tomorrow @sunflower9 hope it goes well and another one done and another step forward on this difficult journey :heart::heart:. Hope everyone else is doing ok x

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Picc all done. Took a while and went wrong 3 times but 4th and final time we got it. My anxiety has spiked again. I told the nurse i just suddenly flush with heat from toes up and think my heart will stop. Ive been sat all day saying out loud ‘calm down’ but i have stiped images of the wire pokeing around near my heart. Why does my brain do this, its so unhelpful. I took steroids this morning and again about 230pm and have felt a bit nauseous today - picked up daughter from school and she said ‘oh your like
greeny grey’. Immediately thinking I’m bleeding inside or something. Jesus
maybe i need some therapy?!
Xx

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Hello everyone
How is everyone doing :blush:

I guess I missed out a lot, lots of catching up to do :blush: I was away with my mum
In London for few days.

Just little update

My mum completed her second treatment EC on 22nd May. Today, you can notice how the lump has shrunk even more than before, my mum can finally relax her arm more :hugs: One more EC treatment left before they switch to Phesgo and Anti-Her2. In total 5 treatments left.

She lost her hair completely. She prefers wearing hats than the wig. She feels more free hehe. More tiredness but other than that, all is well :blush:

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Hope you’re feeling a bit better today @fancyhooves x

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