May 2026 chemo starters

Hi there @dcfc84, lovely to meet you :two_hearts: We’re on near enough the same treatment, down to the same start date! I’m also 4 x EC but only 3 x Doc - was lucky to have no lymph node involvement.

I’m due to start my injections today, feeling a little nervous as I’ve never had to do anything like this before and a bit scared I’ll do something wrong :grimacing: Hoping once I get my first one done I’ll feel better about it.

I’m the same with my appetite - not nauseas anymore but don’t have too much appetite still. Hoping this will improve as the week goes on :two_hearts:

It’s a bit overwhelming with the choices online with all of the head/hair care - I haven’t picked up too much myself. I got myself some soft stretchy headbands from Etsy which are comfortable and I bought a fabric cap with visor from Amazon (not tried it yet, but I love the look of it already!)

Etsy Supplier : DeresinaHeadwear (sorry I couldn’t get a link for it)

Sending well wishes all round today, fellow cheerleaders and warriors :heart:

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Welcome to the May Starters @dcfc84 . Great to have you on board. :heart::bouquet:. Looking forward to sharing all our experiences, gruesome ones as well as good ones. :wink::grin: Good to know injections were easier than expected. One brave lady. Not sure I will be as cool :thinking::joy::joy:

I hope @daffodil_dream you managed to get through the challenge today :heart::person_getting_massage:.

Thanks for sharing your experiences. :folded_hands:Seems to be a common tough side effect re: food, nausea and appetite loss. I love food…thats going to be tough :wink::thinking:. I had my last Big Breakfast Today in preparation for sick feeling :nauseated_face::joy: im also taking previous advice re: not buying in fresh food that may go off due to sickness. So I am staying with frozen and canned until I know how I react.

You are all doing so well :heart::bouquet::bouquet::flexed_biceps:. You seem to be breezing through. We are stronger that we think. Xxx

Good luck to @drella74 for your port fitting tomorrow. My PICC is Thursday. :scream: We are like pin cushions arent we. :people_hugging::flexed_biceps::bouquet:

Thanks for your kind wishes @mssteel :heart: . We will be asking questions I am sure.

I think it is hard for everyone with the expense of cancer. I too was shocked at how expensive items were. Luckily when I went to Oncology the other week, they had a box of chemo hats and hairbands for £10 each. The hats are basic colours for the bands to interchange. Which made them lovely. So, after thinking I would only have one hat for £40 Ive got 4 hats for the same price. :wink::slightly_smiling_face::money_bag:.

Not sure if this is the same with your hospital trusts. Worth asking.

I did get silly and bought some silk scarves at my local Hospice shop . :joy:. For best days out, (as if :thinking::wink:) to use over the chemo hats. But I fear my ā€œbest days outā€ may turn into ā€œbest bed snooze sessionsā€ initially :sleeping_face::sleeping_face::sleeping_face::grin:.

I still love my wig..Ive been trying it out every day prior to hair loss (I have pixie) to see how it feels.

I need to use hairbands with it. To keep hair off my face, plus it feels more secure. Its a tiny bit scratchy with the lace forehead section. But its not intolerable. Time will tell, but so far people think it is my real hair. :wink::joy::joy::heart::bouquet:

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Hello May friends, quick hello from me from March starters. I noticed I’m on the same regime as you @daffodil_dream - 4x EC + 3 Docetaxel, pre surgery. I’m done with EC as of my last infusion and starting D today. Hope you managed with the injections, my oncologist prescribed 5 per cycle with from day 3, so I’m a pro now, handy because he’s giving me TEN per cycle from today :face_with_peeking_eye:.

Happy to help with questions if I can, but really just wanting to wish you all well. I’ve done pretty well with side effects mostly mild and contained to days 1-7, but do keep on top of your anti sickness and moisturiser! I haven’t cold capped and lost most of my hair after day 15-16. Have got a v nice wig courtesy of NHS Lothian so am rolling with that, beanies and a fancy Parisian head scarf. And massive earrings.

Bonne chance to all of you in for treatment this week :heart:

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Cheerleading Team sending extra big buckets of positive vibes for today @neonnomad .

:heart::heart::heart::heart::bouquet::bouquet::bouquet::bouquet::woman_dancing::woman_dancing::woman_dancing::woman_dancing::woman_dancing::sparkler::fireworks::tada::people_hugging: Xxx

Thinking of you and sending love.

:heart::heart::bouquet::bouquet:

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Thanks for joining us @felineoptimist . Thanks for your kind thoughts for us all new starters. :folded_hands::grinning_cat:

Good to hear you have survived EC and injections. :heart::tada:.

One strong lady :flexed_biceps:. Im trying to stay VERY busy today :wink:.

Any suggestions re injections. Did you have much bone pain that other ladies have sadly had to endure. ? Thanks for any heads up with EC also. Xxx

Best wishes today @neonnomad . Sending you lots of strength. Hope all goes well for you x

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I’ve used the same advice as others have given (maybe in this thread but definitely others) - do your injections before bed so any discomfort you can sleep through. Taking an OTC anti histamine is said to help (loratidine I think?) plus paracetamol helps with discomfort, taken when you take your injection out the fridge. I have also had some relief of the stingy injection using Emla cream which I think pharmacy can give you - rubbed on the injection site 1hr or 30 mins before it numbs the skin and helps with the needle going in. I didn’t have bone pain to begin with but have had a few zaps around breastbone this time round. My worse side effect was a strange achy sensation on the area around the injection and headache the next morning on 2nd dose. It’s not nice but I think the consistent taking of them has helped, I’ve not had any temps, have avoided picking up my 6 year old’s bugs, and been able to go into work in person when feeling well enough.

Thanks @felineoptimist that is really helpful. :heart: I will get some supplies today, and consider the best routine. :thinking::wink:

Thank you so much @felineoptimist - so many helpful insights that I’ll carry forward! It’s lovely to hear from people a bit further ahead in their own journeys and so generous with their advice :heart:

My first injection actually went better than I thought it would - but I was a bit chicken, and my lovely partner helped me with the actual injecting (shoutout to all the families/partners/friends helping us along the way) :heart::heart:

I was lucky and didn’t have too much discomfort on night one, but did wake up for an hour or so through the night. But I know sometimes the effects build over time - Think I may take an anti-histamine to see if it helps at all?

My goodness!! Believe it or not we are part of the same NHS catchment :see_no_evil_monkey::joy: Funny how the world works isn’t it?!

Sending you best wishes @poppy261 - you sound very well prepared and treating yourself before you get started is a lovely thing to do :two_hearts:

Oh! I wonder if that’s why we’re on a similar regime. Don’t feel you have to answer but I’m at the western for my treatment, guessing you might be too. I’m a Wednesday girl. I’ve found the whole cancer centre setup here really good and quick and joined up.

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Thanks @daffodil_dream . So glad you are doing so well. :heart:

And yes, huge shout out to all family/friends who help get so many of us through this. :clap::clap::clap::clap:

Plus huge shout out to all those strong ladies that may have to do injections themselves, for many different reasons. :clap::clap::clap::clap::clap:

I honestly dont think my friends would come anywhere near me with a syringe :stethoscope::syringe::rofl::rofl::rofl::rofl:

So I am going out for a coffee and cake with one of them now instead. :shortcake::hot_beverage::teapot::cupcake: :wink::heart:

I can do this :person_getting_massage::person_getting_massage::person_getting_massage::nauseated_face::joy::joy::joy:

I’m starting to wonder the same thing!? I’m happy to share that I’m also at the Western (not the fun kind :cowboy_hat_face:!) But I’m a Friday gal.

I agree completely though, I have to say I have been blown away by how organised that it is - feel fortunate to have access to it in our area

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Hi @poppy261 Hope today went to plan and you are doing well this evening. :purple_heart:

Thanks so much @want2beme .

The first session went too smoothly :slightly_smiling_face::thinking::joy: :rainbow:. Or calm before the storm. :thinking::tornado::high_voltage::umbrella_with_rain_drops:. Not sure yet. Not getting too cocky either. Although I am relieved that I got through it.

It took 2.5hrs. longer than expected. But the chairs were recliners, which meant I was very comfortable. The Nurse even gave me a wheelie stool to put my legs up further as I am tall.

They gave me a pillow to rest my PICC arm on, so no need to take a pillow case to cover chair arms for treatment. But people may like one for the other arm. I didnt.
Perhaps a neck pillow is a good idea. I asked for a pillow for my neck, as leaning back is uncomfortable for me without one. I was given one straight away.

The staff did everything they could to make me comfortable. :heart::heart::person_getting_massage:

I needed to unplug, but take the stand with me, when I needed a wee for the E out of EC. I couldnt go for a wee with the C part of the drug. So be warned go to the loo prior to treatment as much as possible. But ask what treatments mean you cant go to the toilet, so you know to drink less.

I had two syringes for E (2x100). Then two for C (1 x 1000, 1x 300).

With the new PICC I felt nothing. No pain, no stinging. My PICC area is bruised, as expected. The lovely nurse looked so apologetic, but I reassured her that I seriously was fine. Note: The PICC took 2hrs to insert as Id agreed to staff training session re new equipment. Go to PICC threat to hear story :wink:. Hence the bruise.

My wee is pink :scream::wink::joy:. Ive been told to flush twice and up the bleach and disinfectant in the bathroom. But sensibly not through fear. :person_getting_massage:all normal. The E was red liquid. :alembic::toilet:.

After the C I did have minor odd sensations (micro minor) around my nose. But it was fine whilst I chatted to another lady. I was going to tell the Nurse but the machine buzzed her anyway. The dose had finished. So she couldnt have reduced the speed anyway :wink: which she would have done. They need to know HOW to navigate our bodies. So ask, ask, ask.

I felt light headed and woozy leaving the hospital. But the same as I would if I had a glass of wine. Sorry, I am a lightweight with wine :joy::joy::joy:. Like wine…i went to bed after having something to eat at 5.30pm. I was woken at 9pm when a lovely friend rang to see how I was. We had a good long chat and I couldnt sleep afterwards :rofl::rofl::first_quarter_moon_face:. I would have slept longer. But the chat was lovely :heart: Re symptoms: ….No sickness yet at 1am :thinking::nauseated_face::rofl:.

They gave me lunch…sandwich, yogurt, biscuits, cupa soup and 3 cups of tea. No sickness. Nothing.

Prior to the EC I had 30mins of anti sickness and steroids, given via the PICC. So I am assuming thats why food hasnt bothered me.

They also flushed out the PICC a few times. Painless. The machines are super sensitive. So the Nurses are on the ball in seconds. Nothing worrying at all. Just needed to alter things, re do, alter speed of administration. Id rather that than being given too much. So dont worry about a buzzing machine. There were the odd minor air bubble. Tiny. I asked about these and was told the body just sorts it all out. You need ā€œhugeā€ air bubbles to be a serious concern. These were tiny (a mm at the most/smaller). Im curious so it was good to ask questions.

Nurse was happy to answer all questions. She gave me all the names of all the drugs. Cant spell any of them :joy::joy::joy:. I wrote them down in phonetical form :rofl:.

My meds bag for home? …. its actually quite tiny really, thank goodness, there are 3 small boxes of different anti sickness, to be taken at different times and a small box of steroids. I need to take 4 of the steroids at breakfast. For two days. One of the anti sickness needs taking at nighttime because it makes us sleepy. Some For ā€œ as and whenā€. Most finish by Monday.

I got a taxi home ( a friend came with me home).

I would not have been safe driving. Even though I could walk and chat. I was too woozy.. At the level where someone would have a beer and say ā€œOh Im not that bad I can take a riskā€. My answer would be a clear ā€œNo. stop. think. Its not safeā€.

Joy of all joys, I have the single jab for white blood cells. :clap::joy::kissing_face_with_closed_eyes::hugs:. Soooooo Happy. I can do that. :flexed_biceps:.

So that needed to go in Fridge. I take it out 30mins before using. It has to me taken at 1.30pm. 24hrs after treatment.

Im not fooled by the fact this is a journey. But I am prepared for the moon falling on the world :rofl::rofl::rofl::scream:.

I was advised to use cuticle oil, and clear nail varnish. So I went to Boots and got a clear Protein varnish, and a vitamin enriched oil. I put those on toes/fingers before treatment. I put lots of moisturiser on as well.

I wore my wig to see how it felt in the hospital. It was fine. People were shocked it was a wig. :rofl:.

I am not cold capping. I dont like the cold and I dont want to be sat on a chair all day. My back would not cope with such a long time, in a chair .

A lady was there for post treatment. Shed cold capped and hated it (7hrs in the hospital​:hourglass_not_done:). She had got hair thinning, and patches at the side of her crown, but other than that a lot of her hair remained. From a distance you couldnt tell. But I still dont want to cold cap. Go with your GUTs but be informed. Its got to be right for all of us,what ever we choose.

I will lose my hair, it may grow back differently. But I see so many women smiling and having fun with no hair. I will just cope with pain and discomfort with my option. It seems there are yin and yang elements to both.

The lady went through it as her husband was worried about her losing her hair. So she did it for him. I admire her for that. Truly so, but for me :thinking: mmm, mastectomies, pain, seromas, medication, side effects, treatments have a toll on us. So I make informed choices. We are all different and our lives are different.

What to take? I took water and snacks. But food and drinks were provided so I didnt need them. But worth taking just in case.

I chose not to take a blanket as reception agreed it was hot in my hospital. But :thinking: next time I may just take a light one. Id taken a shawl instead of a coat. It was cosy having my soft shawl on my legs. That was nice as Nurses move around and cool air moves with them like a fan :wind_face:, so a light blanket would be nice. I wore thin socks. Bare feet may have got cold, as you sit a long time.

I did take light layers…two TShirts, light cardie, Shawl. I was very comfortable.

I didnt take slippers but these may have been handy going to the toilet. I just went in my socks. But not ideal.

Hope this helps navigate a complex process.

Oh I meditate. Not in any extreme way. I learnt to simply relax years ago. I use to get horrid panic attacks. But I learnt to just focus on one thing. Something nice. Push away all the yeuk stuff.

I do it walking, shopping, resting, reading throughout the day. Anytime. Seconds or minutes. I shut out the clutter. :thinking::person_getting_massage:

It seriously helps me cope.

I had my blood pressure taken. The Nurse was surprised at it being normal. She said people usually have higher BP due to anxiety going for their first treatment. So it clearly works.

I think about what will stress me and do something nicer eg. I went earlier and chose some nice snacks. The Nurse gave me a cup of tea prior to treatment. Ooops hence needing a wee mid way through :joy::scream:.

So, save spilling a bit, :teacup_without_handle::hot_beverage::teapot:ooops, I was fine.

Id gone on my own as well. Half of the people, men as well went on their own. One lady was fast asleep, reclined backwards. Totally relaxed. A man was reading his book :person_getting_massage::heart:.

This was a relaxed and caring environment. Certainly nothing like we can create in our minds. :wink::grinning_cat::slightly_smiling_face:

Its not easy, Im not fooled, this IS tough, but I am also realistic. I choose my battles.

I work on the idea…..Only fight the battles we need to. Let the others go. Dont fight ones that are not battles. Yesterday and today were not battles. They were quite pleasant and relaxed.

HUGE shout out to the Nurses, cleaners, Admin, Drug companies, Surgeons, Inventers, manufacturers, people who make chemo hats. Therapists, etc etc who are making my treatment possible​:folded_hands::folded_hands::folded_hands::folded_hands::heart::heart::heart::heart: . Without them helping strangers, me, I wouldnt be alive today. Thankyou. :folded_hands::heart:

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Ooops correction: PICC thread NOT threat. Excuse my mistakes. :joy::person_getting_massage:

Ive linked above. Xxx

Thank you @poppy261 thats very helpful in easing some of the anxieties around the first dose. Great to have your advice and tips :heart:

Hello all, hope treatment is being kind :crossed_fingers: Wanted to jump back on and say thank you for the well wishes!

Chemo day was a lot easier than I expected tbh, I took the optional lorazepam (not making anything harder than it needs to be on this journey, give me alllll the drugs please :sweat_smile:) which I think helped with my claustrophobia of the cold cap! Only been sick once, I’m treating it like morning sickness - eat little and often of what you fancy because if you let yourself get really hungry it’s 10 x worse!

I slept all day yesterday (day 3), could not stay awake. Today has been a bit better (made it to the couch and had a bath :flexed_biceps:). I’m off of steroids and anti nausea (unless I really need the back ups) from tomorrow and onto the wee jags. Its early days but I would honestly say its not been as brutal as I expected. Hoping I’ll be more use next week as I swear my wee boy has shot up and changed since Thursday so I best not be in bed too much! :face_holding_back_tears:

Got a lovely parcel delivered from Preloved Reloved - I had asked for a hoodie and Jo put a lovely wee keepsake keyring and a really funky headscarf in. Will send my surgery bits that I’m finished with once I can make it to the post office. Definitely have a look at the Insta page, lots of what you need for this journey adds up, its such a lovely idea! Also went to my hospital’s Maggies for the first time, they were fantastic and I’ve signed up to Talking Heads in a few weeks. My husband can also work from there when theres not much time for him to go home on my chemo days.

Big hugs :heart::heart::heart:

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Thanks @want2beme hoping a problem shared is a problem halved. :heart:

Just had the single white blood injection at 1.30. My friend was good at supervising but not doing. So I told him to keep quiet and let me concentrate. :joy::joy::joy::joy::heart::face_with_medical_mask:. We laughed.

The tiny needle went in very easily. No worse than getting a splinter out. Its very fine and super sharp.

You have to push it in first, then inject after a quick test (full instructions are provided) re: hitting a blood vessel. If you do, you had to move to a different spot.

I had a tiny stinging sensation locally. But that has gone now.

Id forgotten we needed antiseptic wipes to clean the area. So I had some older ones that I found in my extensive ???!!! (Actually it is :hugs:) First Aid Kit but out of date ,:rofl::wink::thinking:. Ive rarely needed it rill now :face_with_medical_mask:.

Not ideal but I couldnt drive (too woozy) and my friend doesn’t drive. So I hedged my bets and hoped the older ones are fine.

Advice: Buy a BOX of these in ready for injections.

My PICC was cleaned yesterday but there is slight blood around it today. I rang Helpline just for advice. They said fine so long as I have no itching, stinging, pain.

She told me to mark edges of blood on see-through plaster, with felt penā€¦ā€sharpieā€ to see if it bleeds more. They were lovely and very reassuring.

Im going to sleep now. :sleeping_face::sleeping_face::sleeping_face:.

Reassuring hugs sent to all you lovely ladies going through this. :heart::folded_hands::people_hugging: Xxx

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So pleased you are fighting your way through this @neonnomad .

What a true star. And with a tiny toddler :glowing_star::person_feeding_baby:. One truly amazing lady.

Yes, sleep is soo important. We need to rest as much as we can.

Fingers crossed are journeys stay manageable. :crossed_fingers::crossed_fingers::crossed_fingers::crossed_fingers::heart::folded_hands:

Sending you all positive vibes. :heart::people_hugging::flexed_biceps: From a very sleepy one timer :sleeping_face::sleeping_face::sleeping_face::sleeping_face:

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Popping over from the March starters to say hello and wish you all the best of luck. Looks like you’ve all got off to a good start already :heart:

I can’t tell you how mad it is that there is already a May thread! My journey here started in October last year and by the time id gone through the scans, biopsies, 2 surgeries and all the waiting for results it felt like time had slowed down to an absolute crawl. When it got to March and all I could see ahead of me was 8 rounds of chemotherapy I thought that time would stop completely. And although at the time it feels slow, I’ve had 5 rounds of chemo now and looking back it really is going fast! You will find your new normal, your new rhythm.

My first 4 rounds were EC and the pattern became obvious very quickly. Day 1-4 I felt normal-ish, managing nausea with the medication. Day 5-7 I had a mixture of the jitters and muscle pain from the filgrastim injections. Nothing unbearable and managable with paracetamol. Then day 8 id wake up as if nothing happened! Same thing for 3 rounds. Only the last round felt a bit harder and it wasnt until day 9 that I felt normal (day 1 is chemo day)

Small meals got me through. Mouthwashing twice a day and using a sensitive toothbrush/toothpaste. Walking everyday especially in the begining. Hydrating as much as humanly possible. This became really hard for me and in the end I had to swap between water/juice/soda water. And I tried to eat as good as possible. Some days all I wanted was carbs and cheese haha but I always tried to add lots of fruit, smoothies and salads/veggies. Yogurt and honey with some nuts and ground flax seeds for fibre was a firm favourite.

The antisickness medication can cause major constipation so I also had to include some herbal tablets to help. Its probably been one of my biggest struggles to be honest. Not the side effect I expected!

If you can massage your nails/toe nails daily with oil and balm then try to. So far my nails are the best they’ve ever looked!

Wishing you all the best. Just to say again, you will get through this quicker than you thought. None of this is forever, just for now :heart: big hugs

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