May 2026 chemo starters

Goodness @foxgem you have gone through a huge journey.

Thanks so much for all your advice and hearing your experiences. :folded_hands::heart:

I felt more sick this afternoon, as I woke up after a nap. So I took the EVe anti sickness before my tea and its gone. So they do work.

Im waiting for a dip after most meds finish on Monday. Day 4. So like you 5-7 potentially could get worse.

Im following a lot of advice from you lovely ladies. And trying to work out what I can and cant do.

3hrs this afternoon went by in a second. :hourglass_not_done: How did that happen ?? :joy::wink:

We can all do this cant we :hugs::person_getting_massage:xx

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@poppy261 @neonnomad so glad to hear all has gone well for you both so far!
I’ve been thinking about you all that started this week.

I’m anxious now, but it’s a relief to hear your experiences xx

Hi @alannah172 . I think its completely understandable that you will be getting more anxious. Same for @drella74 .

Days loom fast dont they. But with rest it is possible.

Ive been abit more lightly nauseous today. Like @neonnomad its reminds me of lingering morning sickness. :nauseated_face: But doable. Ive gained some lovely baby doll red cheeks :woozy_face::blush: . Seems this is common. But ive managed food ok. Eaten small. Fruit smoothy for breakfast, (apple, plum, mango, tiny amount of beetroot juice and full fat milk).

Advice : get a smoothy maker if you havent got one. They make having food easier. I couldnt have sat eating a bowl full of fruit. But a lovely drink went down a treat.

Then small milk soaked oats with mixed seeds and nuts mid morning. Needing some PASTEURISED yogurt for next time to go with it, and a banana. I have a pot of great LIVE yogurt. Ooops forgot we CANT have these. :pensive_face:. So my friend is having that instead.

For lunch…easy chicken sandwich, avocado and onion chutney. I used those quick baked bread buns. They were lovely warmly baked. Light and yummy.

Ready for tea. But will take anti sickness first. Trying to keep up Protein intake. I understand we need half of our weight of Protein during chemo ( so if you weigh 80lbs you need 40g protein).

I thought that was a huge amount. But then I added up my protein intake daily which was fine with : milk, nuts, seeds, chicken, fish, yogurt, eggs etc. protein levels were easily reached.

But generally….with REST its doable so far. Though, I dont feel able to go for a walk. I am super tired. So I am pottering round the house, seen my friend, and watched TV, slept.

You can do it. We all can.

This is such a lovely forum. Just Post anytime. We will send you hearts of encouragement and kind words all round xxx :people_hugging::heart::person_getting_massage::flexed_biceps:

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Well done @poppy261 you’re so good at imparting information :smiling_face_with_three_hearts:

I have smoothies regularly so I’m ready for them! That’s interesting no live yoghurts, so I’ll have to replace my kefir yoghurt with just plain natural yoghurt instead.

How did you feel that evening of your chemo? I’ve my best friend staying overnight as she’s driving me to the first one. We may shave my head that night too, if not, the morning after.

I wore my wig to the supermarket today and on my dog walk. I’m actually really enjoying it.

So glad to hear the jab was ok? Are you still managing it alright solo?

Hi @poppy261 :heart: Such a relief to hear how you got on - well done you!! I was thinking of you last week as you prepared for your first session. As my friend said to me ā€œyou’ve levelled up!ā€ :joy: Thank you for sharing so much of your experience with all of us, helps us all feel a little more prepared.

Love your idea of smoothies as well - I have some frozen fruit ready to deploy in my freezer!

Big thank you to @foxgem For sharing too, really does help to hear the positive stories, and to know that this isn’t going to be forever :heart: The time has already flown, I’m due session two on Friday. A bit nervous due to me having a reaction first time around, but the nurses have been so reassuring and I think I will be even more of a watch.

@alannah172, best of luck with your own journey :heart: Personally I didn’t find the injections too bad so far - I took them around 8:30 in the evening before getting ready for bed. I also followed advice for taking an antihistamine while the jab got to room temp and a paracetamol around half hour afterwards. So far, I have been very fortunate and had minimal bone pain from them (five so far) I’m very lucky that I have my partner to help me with them. Best of luck to you :heart:

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@daffodil_dream thank you for all the tips and tricks! I’m presuming that the chemo nurses will go through it all with me too. I have my first call tomorrow afternoon with them.

It’s always the waiting that gets me, I don’t think I’ve ever felt so fluttery. I’ve literally cleared my old clothes out, swapped winter to summer clothes (too soon maybe??? :thinking:) and stocked up with all essentials like I’m about to hibernate for six months :rofl::rofl:

Good luck with round two next week, we’ll all be catching up with each other shortly :smiling_face_with_three_hearts:

@daffodil_dream based on my own experience of three adverse reactions, then a delayed reaction, yes the nurses will be extremely watchful and ready to act.

If you are in the small minority and the reaction was not manageable please know you CAN call the oncologists secretary, talk with them and ask if you can see your oncologist before the next round. Only the oncologist can change chemo drugs if really needed and authorise drugs to help you manage side effects. The nurses can only follow the oncologists prescribing.

No problem :heart: Hope it can help even a little! The nurses are very thorough and will go through everything with you over the phone and when you are with them on the ward. I have very anxious going into my first one, but the nurses were so kind and reassuring and very used to all the emotions involved :heart: their kindness does help ease some of the experience for sure.

Wow!! Putting all that energy into productivity - good for you!! Always good to be prepared :smiling_face_with_three_hearts: thank you so much, will keep you all posted on how I go!

Thank you so much @wibbles , very reassuring to know that they will be even more watchful this time. I’m sorry to hear that you have been in a similar situation to myself. If you don’t mind me asking, did you treatment need a lot of adjustment as you went along?

I had a review with my oncologist at the end of last week to check in on how I was recovering. I’m lucky that the communication has been very good and they very much encourage us to use their services. They are going to try and slow the infusion rate right down to see if that’s makes any difference - and they are going to try and use intravenous anti-sickness early on to try and have me almost drip fed it in a way to see if that helps (hope that makes sense?!)

Again I don’t want to scare anyone with my own experience - if anyone else is unlucky, believe me the nurse team are with you in seconds, very safe hands :heart:

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@alannah172 @daffodil_dream @wibbles @foxgem @neonnomad and everyone else :heart::people_hugging::person_getting_massage:

Such good sharing all round. Really helps get our heads round this. Good and scary is really appreciated. This is not easy, but we need to trust in the care of the Oncology staff. They are having to navigate what works and what doesnt. It takes time. Its not a breeze in the park for them either. They learn with us. Thats normal.

Some ladies are ok with the injections, but some are not. Some are mid way. I was ok with mine, but I was cautious of side effects. These still may bite me, so I have pain killers to the ready. I will never be complaisant going through this.

My take from all of the comments is each journey is different, but similar.

I know a lady who had been fine for 7 cycles of 3 week intervals, then the last one floored her. So these next few months are for us to be vigilant, embrace the good days, but to work on the fear, work on bad days.

To me, some of that fear is very understandable, emotional, fight flight responses. We are hard wired to run from danger. Its normal and it keeps us safe. So we have to navigate fear during chemo. Its tough treatment. None of us want it. We need it. We want to run, but we have to stay. Thats tough.

Some of that anxiety is medication induced. So we need to work closely with Nurses and Specialists. I cant take sleeping tablets ever. They do the opposite to me. They make me anxious, frightened, alert and beyond yeuk. So I refuse to take them. So Ive had to navigate other ways to sleep. Others respond well to them. Its individual. We go with what works for us. But get valuable ideas from others.

Some of that is worrying we may have the short straw. Thats tough. Tough hearing people being OK. But watch this space. I may have a seriously bad day. I have 8 yrs of treatment. It WILL happen along the road.

My take is to take each day as it comes. Rest if I get too anxious. Eat sensibly even when I have no appetite. Find out what meds make me worse and what meds are better. Or what meds I can live without. I cant live without chemo, but the Team around us can use other drugs, or give us more time to recover, or give the doses slower.

On Friday they said I have a 2 weekly cycle but that could change to 3 weekly. Nothing is set in stone. Not the time frame, not the types of drugs. We are on a journey that is constantly changing direction.

Im working on going with the flow as much as I can. :person_taking_bath::person_in_bed::person_in_lotus_position::national_park::ocean::rainbow::beach_with_umbrella::wind_face::bouquet:

I Take anti sickness before a meal. If I crave a crumpet, I will eat it. It may be my body needs more carbs.

Tonight I took anti sickness then I had: chicken stew (batch cooked and frozen-so no prepping just microwaved) . It had water chestnuts, peppers, baby corn, onions, peas, from a stir fry frozen pack. And well washed broccoli from my friends garden. No prepping. Just microwave.

Id taken @foxgem advice not to buy in fresh veg. The frozen are quick and if I dont feel like eating at all, then im not wasting food.

@alannah172 re going home . I was woozy. I definitely couldnt drive and I definitely needed rest when I got home. I was glad my friend came with me in the taxi.

He stayed over, but didnt actually need to, as I was fine. He cant stay over lots as he has health needs and is better in his own digs. But he rings to check i am OK. Other friends do the same.

It can be exhausting having to entertain people. So I am fine in my own home. If i get anxious I ring 24/7 Helplines, Breast Cancer Nurses, MacMillan Nurses, Oncology. There is always someone out there. We are not alone. Ring when you need to. Ring when you THINK you Dont. :thinking::wink::face_with_medical_mask:

This Forum is lovely and a joy to engage with all you lovely strong ladies. It is fine to have bad as well as good days. :heart::flexed_biceps::people_hugging::person_getting_massage:

I slept ok my first night, But I always wake around 4am for a wee.. annoying but I am drinking loads of fluids. Not tea or coffee, from now on, as they DO make me go more often. Sad loss, as I love coffee in the mornings. But i went to my local Chinese store weeks ago. They had a great selection of dried herbal teas in individual pyramid bags. They are great cold or hot. So if I brew one and forget about it, it is still lovely.

I am aware I may get headaches, anxiety due to no caffeine. I am prepared. Its happened before :wink::woozy_face:. So I will drink more to flush out the headache. After a couple of weeks the caffeine anxiety went last time. Phew.

But have the last 3 days been manageable? For ME, yes. Its a weird feeling at times. A whole body just ā€˜odd’ feeling but it not debilitating.

But on Wednesday Im being fitted with a 24 hr Blood Pressure Test after I had a Heart Scan. Another item attached to my body :scream: oh joys. Another anxiety to master. :rofl::person_getting_massage:. But Hey, they are looking after me. They are there 24/7. :people_hugging::folded_hands:

My white bloods/neutrophils are low. Hence the injections. Oncology are missing nothing.

My gums are prone to bleeding. I get mouth ulcers. So I bought a Waterpik a few months ago. £30 from Argos. I can use it in the shower. Some Waterpiks you cant. But Ive been rubbish using it. Till now :thinking:

Within a week my bleeding gums have stopped bleeding. I wash teeth, then waterpik…takes practise…then corsodyl mouthwash after meals. To date its a good routine. I was told by Oncology Nurse NOT to floss as it aggravated gums during chemo. She was suggesting kinder, thinner made picks. But the waterpik is even better. But does take a bit of practise to get it right. The shower friendly is better to practise with,as muddled use doesnt mean lots of water jetted around the bathroom. Now I can use it over the sink no problem​:wink::joy::heart::bouquet:

Well done to all of us and to everyone in the waiting line. We can do this :folded_hands::people_hugging::heart::heart::bouquet::bouquet::bouquet::person_getting_massage::person_in_lotus_position:. With constant changing practise. :wink::heart::bouquet:

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@daffodil_dream

If you don’t mind me asking, did you treatment need a lot of adjustment as you went along?

Not at all. Please remember 90% of people do not have adverse reactions to chemo drugs. I wish someone had told me that nurses would respond so quickly.

In my case I turned out to have an allergy to the carrier used in ducataxel which is also in paxitaxel. I have history for allergies to drugs having had previous allergic reactions to drugs such as penicillian etc. I wear a medic alert due to previous drug reactions so reacting adversely to a chemotheraphy drug fits with my atopic tendency. Shame that also means l cannot cold cap nor wear a wig as my skin reacts.

the first time I thought I could die I had two nurses on me in an instant the second l was sure l defiantly would again this time nurses plus doctor. That was when I seriously cracked up as l was sure l had failed at chemotheraphy. On advice l called my oncologists secretary, told her what had happened and she made me an appointment to see the oncologist. Oncologist then cancelled chemo telling me l had not failed l just had an adverse reaction they would try to manage and then talked to me about alternatives they could try if I did have another adverse reaction. I agreed to one more trial with every supportive drug possible under the care of the ward sister in charge. I did that whilst the oncologist whilst took on the hospital ethics team to argue for the far more expensive nab paxitaxel on the grounds that the next drug paxitaxel has the same carrier and my response was an allergy. I was under the care of the ward sister in charge and three other ward sisters. The second I started to react they all moved so fast stopped the drip, used rescue drugs and checked vital obs to ensure I was safe. Once they were sure I was able to go home in bits. The oncologist was then able to order in nabpaxitaxel which has to be couriered in for me. I have not had any adverse reactions to it.

After that the Chemotheraphy ward have gone above and beyond to try to help me feel a bit safer. Ward allows my DH to stay with me to help keep me grounded. Let’s just say three adverse reactions amplified already existing hospital based ptsd - l get support with that from a charity run cancer care centre who have organised trauma counselling a trauma therapy. First round of new drug regime ( Phesgo, nab then carboplatin) took seven hours as it was done so slowly, as was the second. The third was done within 41/2 hours. I see the oncologist every three weeks so they can check l am coping with the side effects from the chemo drugs and to ensure I have the supportive drugs to manage the side effects at home. I know l have a very good and very supportive oncologist.

I had a delayed skin reaction to the first nab and broke outwith the most awful severe eczema flare after. This is now managed with an extra course of predisalone and daily antihistamines. I still need I/v steroids and antihistamines prior to infusion. I have soap substitute and emoillents from the hospital to keep my skin damped down. ( have history of nasty eczema flares) still working on the ā€˜oh crap’ gut reaction using the worlds most bland and boring diet ( mostly soup, tinned fruit in juice, plain rice and some well cooked casseroles of veg and easy to digest protein. I dream of baked beans on wholemeal toast) and lopermide from the hospital.

Talk with the chemotheraphy nurses about reactions if you do have them, take photos of any skin reactions you get to show your oncologist as that will help them to help you and above all else DO call for urgent medical help asap if you suspect you could be having a severe allergic reaction at any time.

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Morning all! I’m 10 days post first chemo infusion and have to say it’s the first morning I’ve woken up feeling fully human. The past week has been one of a combination of symptoms and feelings. I really hate being under the weather, being unable to do things to my best ability. I know it’s a temporary thing but it’s frustrating.

Looking forward, onwards and upwards to this brief chemical interlude in my life :smiling_face_with_three_hearts::laughing: xx

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Hi @alannah172 re natural yogurts: im struggling to get clear info re yogurts. :woozy_face::thinking:

My understanding is: the yogurts have to be fully pasteurised. NO bacteria of any sort.

But many ….use pasteurised base milk, THEN ADD LIVE good bacteria, pro biotics. …. We are advised NOT to eat these.

But equally, NATURAL yogurts ….they are fully unpasteurised, so risk having ALL types of bacteria.

The ones they say are fully pasteurised are the UHT ones.

I would check with Oncology Team, as the info is very muddled and confusing as yogurt manufacturers are not legally expected to list all bacteria that are in their products.

Im frustrated as I love yogurts at breakfast and in smoothies, but I may just avoid them until chemo is over. As I dont feel confident enough with information out there. .:person_shrugging::person_facepalming::person_frowning::person_pouting:

Re injections: joy of joys I only needed to use the injection that we use ONCE only. So no 5 days of injections for me. :partying_face:Such relief.

:smiling_face:xxx

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Goodness @wibbles you have seriously gone through a tough time. My heart goes out to you. :heart::heart::heart::bouquet::bouquet::bouquet:. Sending you a huge hug and love. :people_hugging:. This is in no way easy is it xxx

Thankyou so much for sharing your experiences. They are invaluable xxx

Well done @dcfc84 . 10 days :person_facepalming::person_getting_massage:. Thats a long time. Goodness how strong we all need to be :flexed_biceps:.

Im just planning on resting as much as I can. But Yes, when you are busy with families, jobs, life, it is certainly easier said than done.

:heart::bouquet:

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Probiotics always contain LIVE bacteria. These are best avoided during chemo.

Yogurt is a fermented product that can contain microorganisms. LEss likely to contain LIVE bacteria than a probiotic yogurt. IF your immunity dips down, and the hospital will warn you if this is likely to happen or happens, then they may advise you to avoid all yogurts unless UHT treated. UHT will and does kill bacteria.

Each of us will have a slightly different care plan so the best people to ask are the team looking after you at the hospital as they will be the ones with access to blood results, knowledge of drug interactions and your overall health. As an example my guts are blitzed by Chemotheraphy but my oncologist is happy for me to have a Muller BLISS mascarpone based yogurt on the days I can face them. My chemo is three weekly.

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Good to know @wibbles .

Its such a mine field trying to work it all out. :folded_hands::heart::heart::flexed_biceps::bouquet::bouquet::bouquet:

I think the message is definitely check check check FIRST with Oncology. Xxx

Then, enjoy the treats we can have. :smiling_face:

Then when its all over…..have a feast :joy::smiling_face_with_three_hearts:

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Quick shout out to @drella74 and @alannah172 for tomorrow. Sending you both positive vibes from your dedicated cheerleaders.

:bouquet::bouquet::bouquet::bouquet::heart::heart::heart::smiling_face_with_three_hearts::people_hugging::partying_face::partying_face::heart::clap::clap::flexed_biceps::flexed_biceps::person_in_lotus_position::woman_dancing::woman_dancing::woman_dancing::woman_dancing::woman_dancing::people_with_bunny_ears::men_with_bunny_ears::women_with_bunny_ears::rose::wilted_flower::hibiscus::blossom:

Thinking of you. Today is a tough day waiting for the unknown.

Dont forget pamper stuff, e.g. book, neck pillow, soft comfortable clothes in layers, light small cover for legs, thin socks. Snacks, juice.

Remember you may not need anything. I was given plenty of lunch and drinks. You can also ask for extra drinks/biscuits. I just felt safer having supplies but never used them. :wink::heart:

You will know your hospital re cold/hot, so you will know what may work best for you. But i was glad i had socks and a shawl as nurses moving around created a minor draft in a very hot hospital.

I needed slippers for toilet stops but some people just kept their shoes on. Slippers are nicer. :heart:

So cold cap or no cold cap, sitting for a long time needs a touch of comfort. :socks::scarf:

Im on day 5. Slept well last night. All meds finished. So just have some daily anti sickness, as and when. So far light meals have worked well. Smoothie in the morning, plenty of veg, protein. Sleep, pamper, rest.

Xxxxxxx :heart::heart::heart::heart::blossom::hibiscus::person_getting_massage::person_taking_bath::person_in_bed:

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Thanks so much @poppy261 :smiling_face_with_three_hearts:. I’m glad to hear you’re feeling settled and are doing well!

I had my picc line put in this morning, so feeling a little sore this afternoon. However, I’m having a rest on the sofa with a cuppa now, so doing ok.

The nurse did advise they give a prescription for the picc cover, but I don’t have that in any paperwork given, so I’ve ordered one on Amazon to arrive tomorrow in case.

I got in touch with the charity mentioned previously, preloved reloved, and lovely Jo who runs it has sent me some brow transfers to try and a selection of headwear as I was stumped with both when looking online.

I feel like I’m pretty much there with prep, which makes me feel calmer.

Good luck tomorrow @drella74 :crossed_fingers:

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Good to hear you are coping @alannah172 even though it is tough. :heart: Thinking of you. X

PICCs are easy for administering drugs and taking bloods. But they can have problems. :person_getting_massage:my arm is still bruised and has bled slightly. But it made last Friday so much easier.

I would ring Oncology re PICC Limbo cover prescription. I had to literally ask for mine, then, I had to take it to my GP. Then wait 4 days for it to go to local named pharmacy. I think they are sometimes over stretched. So miss things.

Then I was suppose to collect appointment card from Reception after Fridays Treatment. Noone told me​:person_facepalming::person_shrugging:.

So I came home and suddenly realised I had no date for weekly PICC clean. :person_shrugging:. I rang them up, to find there were 3/4 appointment dates that I needed. !!! :scream:But the Nurse had forgotten to tell me to go to Reception before I went home.

Not her fault. She was trying to navigate looking after numerous patients. :heart:

I just collected my PICC cover today​:wink:. So used cling film this morning. My friend helped me. :folded_hands:. Cling film is not easy one handed. :wink: But it was fine as a temp measure. But if you use cling film, remember to start from the bottom of your arm NOT THE TOP. And wind upwards. Think of slates on a roof. Then the water runs over your arm rather than getting trapped in layers. :wink::person_taking_bath: Xxx

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Ps glad you got some treats from Preloved Reloved @alannah172 :smiling_face_with_three_hearts::bouquet:we need mountains of TLC.

Xxx

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