Most of us are getting half way through now, can you believe it! @leanne have a lovely holiday, sad to be losing my chemo twin ?. I had been feeling better and had a lovely 2 days with my girls in London beg of this week - and got some lovely lose linen dungarees from the market - think i’ll wear them 24/7! But stress of football was clearly too much because my temperature spiked again Tuesday night so back in hospital. Apparently I’m a bit of a mystery but hoping I will be home today and in the meantime I spend my time talking to the variety of lovely inmates here - woken up this morning to a few new victims! ???
@Hets, get well and get yourself home, how strange that they don’t know why you are spiking that temperature.
We are all doing so well considering several weeks have gone by with a multitude of side effects from us all.
I am day 8 of third FEC and been up all night with cramping and intermittent diarrhoea, temp has been fine and i haven’t gone nover the 4 in 24 hours guideline but it’s something that hasn’t happened before. Seems to be settling now
Maybe coincidence and nothing to do with the chemo.
Sending positive vibes ladies, we can get through this.
Had 1st T yesterday. Couldnt do cold cap as hair too thin round top so cant pull it over top bit so abit peeved. Suggested gauze and hairnet but they said the gauze would stick to my head. So have ordered 4 cotton bandana scarves or similar from annabandana. They said i may keep my hair but its itchy and at least i am prepared.
Had to have an xray as my picc line had moved but was still in an ok position. Thought it could be removed although prob best to keep it to avoid bruises as they said my veins look like i will bruise easily. Was told to be careful but not sure how exactly?
Just felt cold and abit tired yesterday. Feel cold again now whilst in bed but thats usual for me but will check my temp shortly i think. Not felt sick but didnt go to the toilet yesterday so had 3 laxatives. Will see what today brings but so far so good.
Nice to meet up yesterday Jacqi and hope the fasting is going ok?
Jempd thanks for the message re clarity for if got 2 or 3 more T. Yes it would be nice to know but over half way now as 4 down. Yey!
Hope all ok. x
@hets. Hope you feel better soon and can go home!! I feel a little guilty all of you seem to be having these horrible side effects and I’ve been so good. Maybe it was having the holiday to look forward to keeping me going. I just won’t let it stop me living my life.
You never know how strong you are until you have to deal with something like this hey ladies?!???
Sending you all with bad se’s Lots of hugs strength and positivity. Get out there and don’t let it get you down!!! We got this girls ???
??? Leanne xxx
Traceymac, please just give your unit a ring and make sure all ok, you are getting to nadir bit of the cycle where you need to be extra careful, best to make a quick call and keep safe?hets, we’ll expect you to lead the he conga down the ward corridor then ???Triple bonus points for you if you can get nurses to join in too, keep ??? keep focused ladies you are getting closer to your ??? and all doing amazing ???
shi xx
Hi all,
some ups and downs for some of us but hope everyone is doing well today.i treated myself to a big fat second today and now preparing myself for FEC 3… Yes tomorrow will be half way Jem…hoping that they feel I still have enough hair to carry on capping but think I should be ok. Hoping to continue as it gives me confidence but will prepare myself if not. Can’t say I’m looking forward to tomorrow and the week that follows but at least I know pretty much what go expect from these drugs so more tennis and football for me next week with morning or evening walks. We’re all doing brilliantly. Hope everything goes well for those ahead of me moving into T…big hugs.
Tropic_al xx
Keep going ladies!!! I’m still in hospital they seem to be being super cautious this time because they can’t find the source of the infection. So a full 48 hours IV AB and then 24 hours obs on oral AB so I don’t think i’ll be home before sat morning. They have also ordered a brain ct scan because I’ve been having headaches for the last couple of months but I’m really not worrying (much) about that because feel sure I would be a lot sicker if I had stuff going on in my brain (family and friends say there has never been much stuff going on in my brain ?). But what’s now making me more frustrated is that they are delaying round 4 by a week and I am seeing onc next week to discuss whether the increasing risk from worsening infection which seems inevitable with each cycle is starting to outweigh the benefit in terms of risk reduction of having the chemo. Hate being in this situation because other than this I’m generally coping ok and looking really well. I’ve also been really positive but that’s starting to fade as well! Not waving the white flag yet though, I won’t give up that easily:) xxx
Hets, hang in there, this too shall pass and you are strong enough to handle it.
Shi , thankyou, I called my unit as my temp did incresse slightly but settled again so I will.monitor it overnight call them.if I am concerned and they will contact me in the morning for a review.
Thanks for the words of encouragement Willie xx
Tracey MAC - how the temp today? Back to normal I’m hoping- it’s difficult in the heat.
Herts - so sorry you’re back on AB?, hope this morning finds you feeling a little better. When are you having brain scan? All this on top of chemo ?. But you have always been positive and hopefully home on Saturday- are you watching the match? We are all here cheering you on and giving you big virtual hugs?. The nurses and doc are always saying to me I’m looking good - what am I suppose to look like? Hair thinning and looking very sorry for itself , eyebrows starting to fall out!! Not sure how I’d be looking if they said not looking good today!!! ?However like you try and keep positive and smile.
Tropic-al good luck today- after today 100% fec 
- for me this felt really good. SE have been ok for me this time , had to get up really early today as my youngest had school trip leaving early- my head is feeling a little swimmy now?. Hoping no problems with needles today for you.
Linda Corrine - how are the SE with the T? Hopefully you’ve been sailing through it. Sorry you couldn’t cold cap, I remember reading somewhere that hair might grow on T!! Hope bandana shopping has helped.
Shi- thank you for your messages to us on this thread, you keep us going. Now many of us are over half way hope you’re preparing for our arrival in Greece!! We will need towels on those sun beds , lovely cold cocktails:sunny:?
??
Sorry if I’ve missed anyone- take one day at a time and then off?
Big hugs to all you amazing ladies ?
Hets you keep ???Darley by like you are, discuss a reduced dose with your onc, I went to 80%dose for 2-6 because Chemo 1 floored me, my view was well i’ll Try anything and you sound the same as me ?Jem, hets is getting the cocktails from the gally and will be maceranering back down the plane isle when she’s out ???tomorrow ???Keep going girls ???shi xx
@Jempd I am at work today as feel ok! Yes i heard that too re T and hair but seen people who have lost it on T. I think its thinned since last FEC. couldnt sleep much last night but just feel like waiting for muscle pain to start although am taking patacetomol to pre empt it as better than treating it apparently after the event. Not been to the toilet yet today so taking laxatives still.
Hope hets67 you feel better soon.xx
Linda Corrine - we’ll sone for being at work. I woke up this morning e pecking achy muscles - ?happy to say I’m ok?. I’m bathing with Epsom salts and my favourite Neals yard each morning - think it helps. Xx
Linda Corrine - should read ‘well done for being at work. Woke this morning expecting achy muscles’!! Xx
Thanks everyone, glad to report temp returned to normal, didn’t need hospital visit and feeling much better.
Great news Tracey Mac x
The heat is getting to the inmates. One lady walking around with a paper mache pee pot on her head, another one shouting at all the doctors because they won’t operate on her piles as a priority because ‘she lived through the war and is entitled to it’. I just turn up the volume on my iPad and keep reminding myself I’m actually in the middle of the Aegean Sea (although at times I do wonder who is more mad???). All ok, home tomorrow, head scan done (no results but i’ll assume all fine unless someone comes to tell me otherwise!). I’ll then take it easy and try not to overthink things before Thursday. Thank you all for your support, I really was imploding yesterday and knowing you were there made all the difference. I don’t envy you all in this heat because everyone who comes in to visit says it a lot hotter today!!! I have a friend who has finished her chemo and her hair started growing back whilst she was having her T. We’ll all get there - and if I do bail early I will practice the cocktails so they’re up to scratch by the time you get there ???
Hets, so glad you are seeing some humour in your situation, being a nurse I can relate to the ‘other patients’ you are experiencing to amuse you during your stay. Hope you.get home tomorrow as planned.
For all us cold cappers, i have finished 3 x FEC and I have lost about 50% of my hair, no bald patches just thinned out alot. I got it cut shorter today and I was dreading it but it looks and feels so much better. Glad I took the next step. Will continue cold capping as long as I can.
Hi hets xx hope your feeling ok and fingers crossed home tomorrow. Has anyone experienced watery eyes. For the past 2 days my eyes keep running and yawning is worse. I seem to be loosing eyelashes slowly the bottom row is vary sparse now and noticing gaps on my eyelids too. I’ve been wearing my contacts up to now but back to the specs from now on, this is going to be fun as I’m blind as a bat and need contacts in to put my make up on lol x hope everyone is ok and managing se ok 
Tracey mac, so glad you got yourself checked out and all ok ???you are all ???and hard and can do this, just do it safely, it’s ok to have the red flashing batman hotline through to units, they’d rather you check things out and keep safe, I know quite a few of us on last oct’s thread were platinum phone members during Chemo ??hets, great news you are leaving Casa nhs for home ???You’ve done your holiday stop over at casa nhs, let’s keep you on the plane now, the may girls need you to swoosh their cocktails up the aisle of the plane please ???i’ll Have a large raspberry, pineapple and kiwi crush over ice please and plane captain costas will have a Shirley valentine wall banger please ???shi xx