@shi haha now that a cocktail worth trying!!! @tanya my eyes are starting to water a bit and lashes v thin now, barely with trying with mascara. Although it must be much harder with CL. Poor you. I’m still in Casa NHS ?. I so nearly made it, keys in my hand, then doc yesterday said he wanted to get new bloods checked before I go, I started feeling sick, feelings rotten, sleeping, and before I knew it my temp spiked back up to 39, and I’m back on IV AB, so the whole wretched cycle starts again! Needless to say my temp is back to normal after a few hours on IV. But now there’s no chance i’ll be out before tomorrow. My fellow inmates are losing it - one of them work me up at 2am standing over my bed asking if I was’in on it’. Anyone ever seen One Flew over the Cuckoo Nest? I’m feeling like jack Nicholson!
Hers- so sorry you haven’t checked out of Casa NHS yet?- however they responded quickly and I’m hoping you’ll be back on the plane with us all soon. Sounds like the other patients are keeping you on your toes!!!
Sending hugs to you today. Take care xx
Feel well soon Hets, sorry you didn’t get to go home when you were almost there. I loved one flew over the cuckoo’s nest, you are certainly getting entertained during your stay.
Hets?or aka Jackie Nicholson, frustrating my darling but better to be safe and all ok before escape from casa nhs, me zing you up a special I’m a may girl get me outta here cocktail in the galley ???have you managed to do a quick ymca dance to the loo yet, that’s today’s mission, report back how many strange looks you get and if you need a good laugh look up bristol stool chart cakes images on google ??? some people imaginations are ???keep ???and get a bit of internet shopping done so you’ve lots of nice bits to open when you get home ??
shi xx
What does reduced signal mean re response to FEC?
Hi all,
just catching up on the many wonderful and sometimes mad conversations on here…you’re all amazing.
Hets hope you’re feeling better and have escaped the asylum now?
Friday went ok…that’s 3 FECs done and dusted. I seem to have a strange problem and can’t swallow so well in the evening…even water sometimes but didn’t panic do much this time so no A&E! Have felt a bit tired the first few days but not too bad and even managed to go and visit a friend for lunch today?. The heat is a bit much for me though do not sleeping well. Back to the ginger, pineapple and Manuka honey and hoping for the best in the next few low days.
TraceyMac- well done on the cold cap…I’m persevering too even though it was definitely more painful this time with less hair on top. It does give me confidence though…we’ll see how much drops out then may chop more off the back. I’ve probably lost 50% too but hard to judge…I had so much. Going to start to take Biotin and use some Biotion and collagen shampoo to see if it helps.
Hoping I don’t lose more on T but we’ll see.
Had a heart echo on Friday ahead of Herceptin next time too…it seems I have a heart and it’s OK for now ?.
Keep well everyone, will be back soon.
Tropic_al xx
Still here! I’ve switched from One Flew Over the Cuckoo’s nest to Girl Interrupted. I’ll be running this ward before too long. But I’m back on oral antibiotics so fingers crossed i’ll be home later today. Well done ladies on surviving (or not!) the heat. That’s been a plus side to being locked up:) ???.
@topic_al well done for avoiding a&e and finding your heart (as if there was ever any doubt!).
@linda Corinne - never heard of it I’m afraid, sounds slightly scary.
@shi I only just saw your challenge. I have to get to the bathroom in the next hour so will take it on board and see how I go. I’m def the veteran of this ward now.
@jem pd - thanks for your thoughts. Like you I am now losing what’s left of my eyebrows and lashes. Let’s hope they grow back!! ??
@Leanne, you must be all packed for your holiday now aren’t you? Soooo lucky!!!
Xx
Good day here after a few horrid ones. My body shouted loudly to me on Sunday- ‘I’m not doesn’t like all this’ -chemo then steroids and then nothing - I think every cell in my body ached- took me 5 mins just to stand up ? however woke up today feeling positive and much like me ?
Tropic-al - know what you mean about swallowing, I’ve now gone off coffee (decaf) as couldn’t taste or swallow, again today feels a little easier (day 8 post cycle 3). Try cold sparkling water- i’m finding easier and enjoyable.
Herts - ? sorry you’re still in casa NHS. How did ymca trip to the toilet go? Thinking moon walk could be tried - who notices?? Waiting to hear the good news that you’re home v soon xx
Hello Ladies, I am on the June chemo page but I often pop on to yours to see whats “waiting in the wings” for me and just wanted to say, your thread has me rolling around laughing… I know its not funny being in hospital and being pumped full of chemo but just reading your posts makes it so much more bearable… Shi you have helped on our thread too… I can’t wait for a cocktail!!! Hets just the updates on the “inmates” in your ward have me in stitches and as for picturing the YMCA walk to the loo… well so funny.
Thanks again for getting me through another day…you ladies ROCK!!
Hello!
I haven’t been on for a while, distracted by the sun 
Yesterday was my fourth session, where I swapped over to docitaxol after three FECS.
To say I was apprehensive is an understatement, as it’s the step into the unknown sude effect wise.
Plus, I haven’t really heard anything positive about docitaxol.
Veins were an issue this time around.
I have plebitus in one vein, rendering it unuseable and tight when I stretch my arm sideways.
The doctor said it was probably scorched from the FEC.
However, luckily there was a vein whisperer on site who managed to get a vein to play ball after the nurse had one failed attempt!
So, one day later and buzzing from the steroids I have yet to feel any side effects at all, as opposed to FEC, which sent me crashing into wooziness and fatigue after just a couple of hours.
Although I am fully expecting a crash tomorrow when I stop the steroids tonight.
Sending a big hug to all you lovely ladies and hoping side effects are minimal.
Sarah xx
Hello ladies. Hope your all feeling better!! @Hets praying you get out today ? as for packing I’m a last minute girl. Plus I have family over from California so been busy last few days.
@ Tanya my eyes are awful. Loosing eyelashes and brows now and eyes are constantly streaming making my nose run too. Woke this morning and eyes we’re VERY puffy but settles a bit now.
@ Sarah. Who was the vein whisperer so I can ask for them when I’m back of hols. I’ve got the same issue with my veins. Very scorched and hard to straighten arm but hoping the holiday break befor next cycle will give them chance to recover a little.
I should be having bloods today and 4th cycle Thursday but will be 27th now. So glad I was determined to go on this holiday really think it’s kept me going and kept the side effects at bay!! I’ll prob be terrible for last 3 cycles but hey ho we’ve all come this far!!!
Hugs to everyone xx
@leanne17 I can’t remember the vein whisperer’s name but he’s really good and all the nurses turn to him when they come across iffy veins. He’s the only male nurse I’ve seen at the unit and he’s always worn green when I’ve seen him. Definitely worth asking for him. The scorching is pretty awful, it’s felt bruised to the touch aswell as when stretchjng my arm all cycle. I was advised to use an ipuprofen gel, which is soothing, and to keep an eye out for swelling in my hand incase of a blood clot, but my hand is fine.
Hope you’re enjoying your holiday!
Sarah x
I’m out!!! Free!! All it took in the end was a ymca scoot to the shower (I got the inmates signing), and 3 goes of Wizard of Oz heel clicks, and some mild bribery of the nice young doctor and I was gone! I even couldn’t wait for the meds from pharmacy so he agreed to give me tonight’s dose from the trolley and my husband isn’t going to pick up the rest on the way home. REEEEESULT! My other inmates managed to get out except for a young girl with tummy pains which the docs can’t diagnose - but since she felt well enough to go outside several times a day I don’t think the medical teams had much sympathy! Oh and my lovely new friend Maggie who was going through chemo for the 2nd time for non Hodgkin lymphoma and had to be moved to a side room because her white blood cell count went too low - so we sent packages to each other of biscuits and cake through the nurses. I will be willing her out tomorrow. @mustardandgrey welcome back! I hope you don’t crash but if you do we’ll be ready with the refuelling support plane. Somehow I find that at least if I expect to crash it somehow feels more tolerable?
Happy Tuesday - the only way is up:). Oh did I tell you guys my brain scan was clear (probably of brain cells as well as tumours!) ???
Hi all
Went for bloods and clinic today ready for the dreaded T on Friday. As they struggled with veins on last cycle have to up my water intake I’m already on five pints a day I was also advised to keep my hand warm so I’m wearing a wolly glove next time, gonna look really stupid if it’s still hot but I’ll try anything. SE sound a bit more intense though. I have to have an injection in my stomach 24 hours after chemo to boost me right up which I am gonna do myself will be shown on Friday how to do it. Any one else done this. All in all still doing well so roll on Friday and then only 2 left. Hope your all ok pink sisters 
???
Hets:sparkles:Excellent news brain scan is clear my lovely and great news you jumped on the magic carpet we sent to get you outta casa nhs ??Leanne have a beautiful holiday ??Tanya, t is a lot kinder to your veins and please don’t be too ??it’s like fec becomes a security blanket and you want to stick with that, we were all the same on the Oct thread. Just do what your unit tells you and be vigilant yourself as you have been and look at the bell in your unit and think I’m ringing you soon ?get your bell ring outfit planned, it’s a celebration for you to look forward to, we had ladies in pink wigs, ladies in wonder woman pants, tinsel wigs whatever you fancy really and what will make you smile is the most important thing, keep ???beautiful amazing ladies and if you break it down into weeks as you start your 4th Chemo, that’s only 3 weeks now of any se’s, then it’s wing ???On the wings of captain costas plane to Zorba the Greek tune as we land in Greece ???shi xx
Fab news Herts - welcome back on board- a lovely window seat for you with extra leg room??. We’re all over half way now and can still smile?
Hets xx excellent news glad all ok woke up this morning and now my sparse eyelashes are non existent. Eyebrows very thin now, can’t believe how much eyelashes and eyebrows define your face until their gone. LGFB booked for end of month hopefully will get some tips on this x
Tanya - sorry about your eyelashes and eyebrows ?my eyebrows thinning.
So today my mouth is covered in ulcers , I’ve been having Manuka honey, mouthwash etc, really painful. Does anyone have any suggestions on food please? Managed a few pieces of pasta today. Tried a piece of chocolate but it made me cry. Drinking sparkling water but anything else isn’t good.
Thanks
Hi May ladies, I meant to put a message for you on here but it’s gone up as a separate message called After treatment. X
Jen, please keep eye on your mouth and temp, just give unit a ring to see what they advise. I know I’m a mother hen in the cockpit with captain costas, but it’s about you all getting safely through Chemo ??shi xx