Tanya thank you so much for your update on how you are doing on T! Hope you are continuing to feel better each day. Assessment tomorrow and chemo on Tuesday - T number 1- dreading it. 3 children finished for the summer - not great timing. I’ve roped in friends and family to help for the first week. After reading most people’s experiences on T didn’t think I’d be the best Mum.
Hope everyone keeping well and no visits to Casa NHS this cycle.
Xx
Hi all,
sorry I have been away for a week or so. Haven’t been away on a holiday unfortunately, although the flight is sounding wonderful Shi!
On my good week or cycle 3 of FEC and feeling great as you do so working and seeing friends ?.
Days 5-9. were not so good this time with a temp and feeling unwell day 7. Think I got too tired after not sleeping at night and not resting enough in the day. Got as far as A&E then temp dropped a bit and didn’t go in as felt like a fraud the last time so went home to bed…really stupid but survived ok and told off by the specialist nurse the next day. Took me a few days for my immune to pick up and spent says watching football and tennis till I felt better. Will go in quicker next time.
I have my first Herceptin this coming Friday so need to stay in hospital all day for monitoring then my first T next Monday with the cap. Dreading T as have heard nothing good. Have my nails painted dark, plenty of pineapple in stock, Manuka honey, peppermint tea, ice lollies, difflam and will hope for the best! Busy time at work and have been trying to help out as we’re a small team but will have to work around the down days.
Sorry some of you ladies have very sore mouths…that’s been my main problem so will have to work hard on keeping an ulcer free mouth.
If if anyone needs any cold cap info then I’m still doing it despite losing quite a bit of hair on top It’s given me a lot of confidence. Can’t say that this summer is the easiest to be doing it though as wearing bandanas and hats out and hard to keep a cool head with these steamy nights in a very hot house! I’ll help where I can if anyone has questions.
Will be back soon…no doubt whinging more next week! ?
Best wishes he’s for some healthy days for all
Tropic_al xx
Hello!
Hoping everyone is having minimal side effects and enjoying the sun.
For the first time I can see the homeward straight, after my first radiology appointment this afternoon.
I have my 5th of 6 chemo sessions on Monday, and am being measured up and tattooed ready for radiology on the 6th August.
It’s all coming around quite fast now!
The only negative was that the original 3 weeks radiation has been extended to 4 weeks, as the doctor said it was “a particularly nasty cancer” which threw me a bit.
But I can do an extra week!
Sarah xx
Hi Sarah - 1 more to go ??- light at end of a tunnel. Rads just a shorter tunnel and they lying on beach in Greece waiting for the rest of us to finish- save those sun beds!!
Sorry 4 weeks of rads - I am expecting that too, if then 3 weeks would be a nice surprise. Don’t dwell on what radiologist said - focus on 1 more chemo first.
Tropic_al - my 1st t tomorrow- also dreading it but chatted through with nurse and consultant today and feel a little better- some top tips- nails paint dark - I have navy- then keep high factor suncrean on the nail beds- for the whole time. Take paracetamol before joints ache - suggested to me 4 times a day for 3-4 days rather than wait until achy- if needed add codine. If possible keep walking and moving. But if you have a bad day go with it and the next day might be better- felt this helped a little.
Also continuing with cold capping - lost about 60% now ?but focussing on regrowth- will need to wear theatre cap again - really not looking forward to any of tomorrow but it will be another 
. Children want me to wear wig when we go out- cycling today with helmet and wig was too hot- sweat pouring down my face ?but it helps them and a fab day with them.
Xx
@jempd all the best for tomorrow, you’ll be fine. Sending positive thoughts and strength your way.You got this… Im day 11 now and back to myself. It’s doable even though it may not feel like it at the time. @mustardandgray sorry you have an extra week of rads. I was told 10 originally and then went up to 15, but if that what it takes we can do it. Lgfb tomorrow and quite looking forward to it. Will fill all you ladies in when I get home 
keep strong and well protected in this heat apparently it’s getting hotter ???
Ladies you are doing so well, lovely to hear from you all.
Tanya, I will see you at LGFB tomorrow morning ??
Hi everyone…not had much to report for the last 2 cycles and I count myself so lucky with escaping most SE. I have been checking in daily though and am so impressed with how strong and positive everyone is doing/keeping despite some of you having a few struggles, hospital visits, delays and nasty SE. I’ve been routing for you all daily xxx
Shi’s Encouragement is absolutely fabulous, I can’t thank you enough for taking the time to boost us on.
I had my 4th FEC (4/6) on Wednesday. I’m actually finding having the chemo the most traumatic part. Again my WBC was down from the day before bloods, but new bloods on the day showed ok, I find that wait so stressful to see if chemo is going ahead or not. My Veins are shot to bits so they had to go in through my hand and for the first time I was hit by fatigue pretty hard! I was ok on the Thursday, day one, but Friday Saturday Sunday I just kept dozing off! However new week, new me, feeling so much more energised and back to normal…wait what is normal!!!
We’re all about to turn that corner real soon and see that light…keep going everyone xx Melissa xx
Captain costas has radioed ahead to spiros sunloungers and ???rads loungers being set up for ???ladies, duty free trolly will be round soon before you come into land ???nearly there Beautiful ???ladies ???
shi xx
Just been told my neuts are 0.88 and need to be 1 for chemo tomorrow. I have to go in an hour early for another blood test tomorrow to see if they will be able to do the 5th chemo. Not sure why as the last 2 times it was higher than before I started chemo although I am on Docataxel now after having 3 FEC? Just hope it is higher tomorrow & that I havn’t taken the steroids for nothing.
They have agreed to use the cold cap again (as last time they refused) using a paper theatre cap or gauze as I got an e mail from Paxman saying that they can use a theatre cap or gauze!
Hi Linda
Good to see you today, sorry to hear that. Fingers crossed for tomorrow’s blood test ?they’ve agreed to lower my dose by 10% which is a huge relief as really can’t face another admission.
Might see you briefly tomorrow as I’ll be there till three.
Jacq x
Linda my neuts have been down for the past 2 cycles but thankfully when having the blood test redone again on the day they’ve risen above 1 and chemo has gone ahead so fingers crossed this will be the same for you x
Went to my LGFB session today and it was great. A lovely ‘pick me up’ just at the right time.
Was lovely to meet you Tanya, let’s hope we can meet again as we get through these next few months of treatment.
Hi Ladies
Just had a call to say they are not happy with my liver function so chemo delayed for a week. Really disappointed as this one is my last T and I can’t wait to get it done. I’ve taken the steroids and fasted for 36 hours for nothing. I Also have the worry of what is happening to my liver ? This rollercoaster ride is s**t! Good luck tomorrow Linda, Hope the cap goes ok.
Jacq x
Sorry to hear that Jacq. Am at home resting now and prob not going to work before chemo tomoz. x
LGFB was lovely and the goody bag amazing. I can now draw an eyebrow which for me is great . It was lovely to meet u Tracy you look amazing keep strong for T .
Hi all love Rbs got my on today!
Tanya and TraceyMac - great you enjoyed LGFB course and met each one ther - how lovely. Know what you mean about the eyebrows- filling in for me at the mo- enjoy all your new kindly given products?
Jacq- sorry bloods not allowing chemo tomorrow ?- take the extra week to look after yourself . You will get there with the rest and of us.
Linda - hope your bloods are raised to ok levels tomorrow- all my bloods were a little down but still with ok levels. Good news re cold cap and then using theatre cap- this what my nurse does- top tip leave theatre cap on for short while to allow all ice to melt and head to warm up. I cold capped again today- don’t think one can ever get use to that awful 1st 15 mins- what we put ourselves through! The good news about docetaxel is only 2 hours of cold cap?
Shi / your encouragements keeps us all going, thank you. Beautiful towel packed, can’t wait to land - I can now say 2 cycles to go ??
Melissa - you’re doing so well, hope rest of cycle is low on se?
Cycle 4 , docetaxel 1:white_check_mark:- no allergic reaction?no swimmy head that I suffered with on fec. Very very tired but so far ok- long may it could continue. Came home from hospital to ? picked at lunch cal farm by my children- a lovely surprise, they are beautiful?
Take care all, I hope no more casa NHS for any of us this cycle. Xx
Oops - not sure what 1st sentence is suppose to say !!
Thanks Jempd. Hope all will be ok tomorrow as have ultrasound booked for the 6th which may be affected. Really dont want to delay this Hell on Earth as doing a countdown now. 43 days to go or maybe less if only have 2 more cycles.x
Jacb, the liver can take a pounding on chemo, think quite a few of us ended up with high reading near the end and a couple of delays so just keep focused and better to land in Greece safely ??any delays that’ll be passport control so you’ll get through ok Keep ???as you have done the whole flight amazing lady ???shi xx
My neuts are 3.92 today from 0.88 yesterday so chemos going ahead. Hey!