Linda Corrine - wow what a difference a day makes ! So pleased for you . Sounds strange that happy you can be poisoned today! But as you have said 1 step closer?. Hope all goes well including cold capping. This is hell on earth but we are all doing so well and getting closer to the end.
Cycle 4 yesterday, 1st docetaxel- feeling surprisingly ok today- unlike fec no swimmy head. Woke up this morning dreading what nasty se today would bring- so far so good. Been out for walk to the sea- always does me good . Children all out at beach with family and friends. I’m now resting . I know it can all change very quickly but doing ok.
Good luck with rest of day xx
Great news Linda ?
Thank you Shi for the encouragement ?
Sarah, my liver has taken a bashing from chemo and strong antibiotics so I’ve just been for a lovely pub lunch and drank teetotal G&T! Anyone who knows me would be amazed!! and yes the fatigue has got worse each time.
Jacq x
Hi all not been on for a while but reading this sounds like you’re having lots of ups and downs but encouraging each other through them. I’m 6 days into 4th FEC, but with no bone marrow injection so v tired and totally locked myself down in terms of going to public places in the hope of avoiding infection, avoiding hospital, and staying safe. Interesting to see comments about bloods - mine are all over the place and in particular liver markers v high - apparently scan will be arranged just as precaution. These last 2-3 cycles do feel harder all round, not helped by the heat, but we will get to the end - have we worked out who is going to be last across the finish line yet? My last cycle will be finished on 22/9 (as long as there are no more delays).
Glad to see you back Hets.
Interesting to see who will be finishing treatment in September. I have been put back 2 weeks but if i am now on track should have last chemo september 13th before 15 sessions of rads.
How is everyone else doing and are we all crossing that line for last chemo in September? We have a plane to catch ??
Hi Tracey and Hets
I may well be last over the chemo line as I’m on the ROSCO trial. Will have last of four Docetaxel next week then a five week break followed by surgery in September. I will then have four FEC sometime in Oct/Nov. Whilst I am looking forward to the break from chemo, I am a bit down about it then carrying on till the end of the year.
Jacq x
Jacqb we’ll all be here holding your hand, and I doubt anybody will be through everything by the end of the year (I have to admit that had been my target until a couple of weeks ago when the surgeon told me the follow up surgery (x 2) won’t be for another 6 months. We just have to tell ourselves it will be worth it in the end xxxx
Herts good to hear from you - stay away from people and germs- antibacterial hand wash goes everywhere with me- children are use to using frequently too. No more Casa NHS for you this cycle, stay on the plane with us?
My last chemo session is 4th September followed by rads - not sure if 15 or 20 sessions- in my head thinking 20- hoping will be finished by half term in October as off to Portugal with extended family- not sure I’ll be fit for much though, lounging round a pool is what I’m planning. I will need a little more surgery to tidy up and give me a nipple back - not seeing surgeon until January- feel this will be the bit for me to make me feel more female again.
Looking forward to stepping off that plane Shi - banking on you being there to welcome us with a cocktail- I haven’t drink any alcohol since Dx in February so just a single shot please- that’s all I will need to be dancing? xx
Jacq have they said you will definately need 4 FEC as if so what is the benefit of being on the ROSCO trial as normally you do 3 FEC and 3 Docataxel so you will do 8 instead of 6 cycles? The more cycles you do the more damage you can do to your body. I am having 6 or 7 cycles as i found out today the reason my surgeon wants me to do all chemo before the op is to minimise surgery to breast and axilla although i am not having any more lymph nodes removed.thought i would ask as the oncologist asked me and i said i thought that was why.x
Hi Linda
It will all depend on the surgery results. I’ve been told to expect four FEC but that could change. I’ve gone into this with the understanding that it will do no more harm than standard treatment and there is a chance that FEC won’t be required. They have assured me that my tumour has responded to docetaxel so I’m sticking with the plan and hoping I’ve made the right choice.
Jacq x
I may finish on 15th august as thats my 6th or if i have 7 5th sept but wont know til 14th august.
Hi all. Been keeping up to date with all your posts hope everyone doing ok.
Got back Tuesday from an amazing 10 nights in sunny Gran Canaria. Lovely holiday and nice to have a little break right in the middle of my chemo. Got my 1st of 3 docetaxol tomorrow. They have to use my right arm from now on as my left veins are completely burnt out and have a strange lump on my fore arm but they think it’s just a bit of fluid under the skin. My last cycle is due on the 7th September. Haven’t been told anything about having radio so fingers crossed that will be me done ?
My hair has started growing back. Think it was the extra time between cycles and the sun. See if keeps growing through next 3
Hugs to all
Leanne xxx
The pathways are so different. Are any of u due to have mastectomy with reconstruction? I had single with implant in February and so far all good. I’ve got another friend who had double with implants and full nose clearance on one side 3.5 weeks and she’s doing amazingly well!!! There is light at the end of the tunnel ???
Leanne so pleased you had a great holiday, sorry you have to come back to more chemo. Hope 1st docetaxel goes ok tomorrow- had my first on Tuesday. So far no se but this evening getting that awful achy feeling back?. Hoping a good sleep will help.
Herts - I had single mx in April with LD flap- very happy with results,scarring is doing well. Hope you are doing well today.
Xx
Bing bong captain costas has asked me to tannoy a message to remind you beautiful ladies to get your meet up arranged ??? It comes round quick once the chemo plane lands so he wanted to remind you all and it’s a good excuse for a shopping treat of new outfit ???bing bong ??shi xx
Thanks Shi for the encouragement jist when we need it.
Hets, I will be having reconstruction at some point after having a mastectomy 4 months ago but my surgeon wants to wait until all chemo and rads completed so this will next year for me. I haven’t wanted to discuss it with them until now but I feel ready to plan for the next steps
Shi thank you for always making me smile ?
Some help please lovely ladies I’m 5 days into 1st docetaxel, yesterday and today feel absolutely terrible - bone pain in joints, legs and arms, feet hurt to walk on- gone from a fit 48 year old to a 90 year old in 1 day. The fatigue has really ramped up too. Those of you who are ahead of me in cycles -encouragements please- taking paracetamol and codeine, resting, drinking lots. How long did this bit of the miserable roller coaster last? Sorry to be a moaning miserable one today .
Hope the slightly cooler weather is helping you all. Xx
Jempd. I only had 1 night of bad lower back pain on Docataxel due to injections I think they told me at hospital. I walk daily and have a high pain threshold. Do you walk? Am thinking of running again now cooler too to help with low neutrophil issue i had on day 21 cycle 4. x
Hi Linda thank you- I have walked at least 5km everyday but not made it out of house in last 2 days?.
Take care xx
Hi Jem, I’ve just finished chemo and was fortunate not to suffer with joint pain however someone on my thread did and because codeine wasn’t working she was given tramadol by her GP. I found I got more tired after each cycle, but didn’t have fatigue as such. Exercise does help with fatigue but not much help if it is too painful to walk. I would say speak to your Doc if it continues especially as this is your first Docetaxol. I hope you get sorted x
For my t darling, Epsom salt baths by the bucket load have always worked well for other threads for bone pains on the t my lovelies Keep focused on those ???in your units and if your unit doesn’t have one then treat yourself on amazon there are even ones with ?faces on them and trust me you will be beaming and skipping with joy after the last one which is soon, keep focused, keep safe and who’s in the galley doing the drinks trolly this time? Mines a la Mumba with a oozo on the side and captain costas would like a Athens smooth landing over ice ??yammas ???shi xx